Jamie Hill

ME/CFS research program shuts down at Columbia after Trump cuts ME/CFS, which affects millions of Americans, has few dedicated research centers. Now the one at Columbia has been shut down over Trump funding cuts.

God, I hate that man so much.

ME/CFS research program shuts down at Columbia after Trump cuts www.statnews.com/2025/03/19/m... via @statnews.com

When I reopened TikTok, I got a message saying I was suspended from using promote for 10 years....What? If you follow me on TikTok, you'll see I post the least offensive content ever and try to bring awareness to the realities of Long Haul. So ya....what?

#chronicillness #TikTok #longcovid #mecfs

So it looks like TikTok is actually getting banned? It was a way to actually connect and show the world that our Chronic Illnesses were real and that we exist as people. It also helped me pay rent. This is devastating and sets a terrible precedent going forward.
#chronicillness #longcovid #mecfs

Definitely following. TikTok is how I paid rent as a disabled person. I'm going to be very on top of other mediums that can eventually help get back to that place.

We reached our go fund me goal for our documentary on living with Long Covid/ MECFS! Just raising money used spoons. But It's worth it if I can do my part to help. I'm excited for what 2025 will bring.

#longcovid #mecfs #cfs #pots #chronicillness

I think I figured out why I never used Twitter much in the first place. I talk too much and always go wayyy over the word limit. Maybe I can learn to shut up for once?

I am.

Donate to Living in Hell with Long Covid: A Documentary, organized by Jamie Thompson I'm an actor based in Atlanta, GA, that has been suffering with mild Long… Jamie Thompson needs your support for Living in Hell with Long Covid: A Documentary

I've started a gofundme for my documentary on Long Covid and ME/CFS. Unfortunately, the video is too long for bluesky.
Take a look and contribute if you can!!! The time for action is now.
#mecfs #longcovid #POTS #chronicillness #cfs
gofund.me/70fff0b2

How I wake up every morning this time of year with Long Covid. First year of my life that I'll be alone for Christmas. It sucks, man.
#longcovid #mecfs #cfs #POTS #dysautonomia #silenthill

I think 60 seconds max here. I'm the same as you. A lot of my videos are to spread awareness, so they are longer. However, I did start making money off TikTok recently because my channel kinda blew up. I'm not gonna complain since LC took me out of my job!

Since BlueSky is still so new, I have a feeling this is something they will ultimately change. Hopefully.

Everything I do is mostly for TikTok, and then I repost on Instagram. I wanted to branch out to Bluesky, but only like 3 of my videos are long enough 😫

When you're a hardcore sports fan but can't get emotional so you won't get sick.
#longcovid #mecfs #pots #chronicillness #sanfrancisco #49ers #acting

90% of my Long Covid related videos are at least over 3 minutes, so I can't post them here :( Unless I'm just still completely tech illiterate and just am not getting it.

What it feels like to stand up too fast with POTS.
#pots #longcovid #cfs #content #chronicillness ##acting #silly #wacky #funny

Long COVID science, research and policy - Nature Medicine This Review outlines the current state of scientific evidence on long COVID, discusses its impacts on patients, health systems, economies and global health metrics, and proposes a forward-looking rese...

Hi @medsky.social could you possibly also make a category for #LongCovid and #MECFS specialists? With 400 million Long Covid sufferers as of 08/2024, many of which have developed ME/CFS, and such a lack of knowledgeable clinical care, this would be really helpful 🙏

www.nature.com/articles/s41...

Question for my Chronic Illness community. Mostly because I'm internet illiterate. I have an entire TikTok dedicated to Long Covid awareness. Is it acceptable to post my videos here? For those interested, my TikTok handle is @jamiehill5546

#chronicillness #longcovid #pots #cfs

How do I find my mutual contacts on here. I know I'm computer illiterate, but I can't find anyone I know. I'm like a lost little child :(.

I'm actively trying to get banned on Twitter whilst starting an account here. Shouldn't be too hard, right?