La M.E.U.F. 🇨🇦

40%! 🤯 I’ve always believed 10-20% of the gen pop w/ Long Covid is an underrepresention bc not everyone with LC symptoms report it to their Dr. & not every Dr. recognizes symptoms as LC.

Why are you letting yourself become chronically ill? Mask up 😷 clean the air bc vax does NOT 100% prevent Covid

Caught my cat being cute, then spotted the reflection of where I've spent the last 1277 days—so I made a thing.

#LongCOVID un-awareness hurts.

It invalidates an already unbearable reality. COVID is 'no longer a threat', see. So surely, none of this must be happening to me.

"You go from running marathons to barely able to run errands…Suddenly, you can't work, parent, or play. But the world's moved on, as if it weren't even a thing. Research goes underfunded, prevention's the butt of jokes. Welcome to Long COVID — The disease that disables hope."
#MedSky #ChronicIllness

The Hidden Link Between Inflammation and Hypermobility in Long COVID, ME/CFS, POTS, and MCAS

(Skip Ex-Twitter, here it is straight from the horse's mouth):

jeanniedibon.com/me-cfs-eds-l...

there's so much bad in the world but there's also people who lift up and carry an elderly bat around every day so he can pretend he's flying again, and that's the part of the world I think is worth fighting for

What I find so demoralizingly paradoxical is how utterly unknown it remains for something so allegedly widespread.

At a friend’s bday party last week (for 20 min) w/College teachers, osteopaths, all I got were blank stares. ALS, MS, Parkinson’s they know. Long COVID? No.

Widespread? Really? (1/2)

There’s no denying what happened to me. There’s a clear before—infection—and after. I’m now disabled; unable to work/play. If millions were like me, we’d know

Until we have diagnostic tests—biomarkers—actual Long COVID prominence will remain speculative

That’s a problem, because we need help (2/2)

Someone send this to Kristaps Porzingis. #LongCOVID #POTS

Public Health's failure is everywhere. And Kristin, I agree with everything you posted, except re: the vaccines. They prevent hospitalizations and death in the acute phase—not #LongCOVID disability. 🙋‍♂️

We need to better ventilate, mask when sick, use common sense. And fund research. Please.

Tabarnak! 🤬

Remember when the WHO & CDC refused to call COVID airborne? It wasn't because they didn't know, but rather because society didn't 'want' to know. That political pressure made public health (and continues to make most people) ignore the clear and damning evidence.

Long COVID is no different: 🧵(1/4)

The dismissing of #LongCOVID as a possible outcome is a source of frustration for those of us who've been kneecapped by the disease. On darker days, "Why me and not them?" morphs into "Is this even a thing?"—knowing full well that it is. It's why I salute Dr. Sutterer for stating the obvious:

(4/4)

The Warriors Have a Huge Problem with Kristaps Porzingis - Doctor Explains Illness YouTube video by Brian Sutterer MD

Brian Sutterer MD calling out the Golden State Warriors and Kristaps Porzingis for not being upfront about his "mysterious illness" made my year. Cause ALL of us who've been kneecapped by Long COVID know it when we see it.

Society pretending this ain't a thing doesn't make it so. #NBA #POTS #Medsky

As a Steph Curry superfan and ex-baller, this was LONG overdue. #NBA #Porzingis #POTS #LongCOVID

About Project Syndicate Project Syndicate - The World’s Opinion Page

Just stumbled onto this:

"Project Syndicate taps the most insightful contributors—from Africa, Asia, Europe & the Americas—to provide trenchant, authoritative analysis of the issues commanding global attention & promote viable solutions to the world’s urgent problems."

i.e. What the world needs.

"…adequate[?] air changes in the hospital ventilation system alone may not be enough to protect staff and patients"

1st thought: Uh oh. But then:

"…portable air purifiers could further reduce the risk of transmission"

So COVID remains a problem because ventilation is NOT yet adequate 🙄 #MedSky

Policy Win: Health Canada Releases New IAQ Guidance Health Canada announces new IAQ guidance, providing essential insights for improving indoor air quality and safety in buildings.

Ontario engineers: "Treating airborne transmission seriously, setting measurable operational targets (including CO2), and deploying layered controls—ventilation, filtration, & UV Germicidal Irradiation—where appropriate" #IAQ #CleanAir #COVID #CdnPoli #PublicHealth

It's a good start. However:
(1/2)

What's still missing:

1) Adoption & training
2) Routine CO₂/ventilation checks
3) LAYERED DEFENCE promoting source control, ventilation upgrades, filtration & HEPA air cleaners to reduce risk for respiratory pathogens

We know what's needed. We're just not doing it.
#PublicHealth #CdnPoli #IAQ
2/2

Faites-nous part de votre expérience de covid longue - Société canadienne de la covid Nous voulons montrer au public les répercussions crève-cœurs de la covid longue.

On cherche des témoignages. Date limite, 1er mars.
@cancovsoc.bsky.social

Long COVID studies stymied by pharma’s lack of cooperation Academic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them

"Pharma groups have come to us and said, 'We're not interested in COVID. We're not interested in any anti-infective,' (…) If a long COVID trial were to fail, that could leave a negative perception of their drug’s usefulness in acute COVID-19."

Evil. Incarnate. #Medsky #LongCOVID

What Cats Can Teach Us About Long Covid - Catster For years, the prevailing belief was that the virus infected just one type of immune cell, but in a recent interview with Amir Kol, lead author of the scientific study shared the exciting discovery.

"The research found that traces of the virus remained in immune cells after treatment had ended and the cats appeared to have made a full recovery. Because some immune cell types live for years, this could explain why some clinical signs persist or relapse." #LongCOVID

@openmedia.org Made a one-pager for you. The future of our democracies depend on digital sovereignty. To everyone else reading this: Write to your member of parliament here: action.openmedia.org/page/186119/...

Unless we apply pressure, nothing will change. And it must. Time's up #ElbowsUp #CdnPoli

Every senator who voted to confirm RFK Jr owns this tragedy. Every single one.

Hey, could someone do me a solid and ask @elhopkins.bsky.social why she blocked me for pointing out that a "song" about Long COVID by Mack Barnhardt was exploitative, disingenuous, A.I. generated slop?

I didn't get a response. No discussion. Just an immediate block. 🤨 I have some questions: (1/2)

Si on ne continuait pas à prendre un pas en avant, il ne resterait que les pas en arrière.

Chapeau bas, @cpdesrosiers.bsky.social.
Message à nous tous: voici pourquoi faut pas baisser les bras.

"En fait, si certains de nos politiciens [se retrouvent du mauvais côté du débat public], c’est beaucoup à cause de vieux réflexes populistes qui sont aujourd’hui dépassés. Ils ont encore de vieilles croyances et voient les immigrants comme des « voleurs de jobs »". Entre autres…

#PolQc

«L’Assemblée nationale est un espace toxique, où tout ce que je dis à mon fils de six ans de ne pas faire—mentir, manipuler, intimider—fait partie du quotidien» - Haroun Bouazzi

Aussitôt dit, aussitôt prouvé:

« Propos radicaux… » - CAQ
« …injurieux, indignes » - PQ

Quel cirque
Quels clowns
#PolQc

Or the Habs ? 🥰

Auston Matthews cannot support a President who wants to annex Canada 🇨🇦 and captain a Canadian team. What the fuck are the Leafs doing?