@janmye.bsky.social
ME: A disease that induces an acute psychiatric condition in doctors confronted by it. Co-founded Let's Do It for ME raising funds for Invest in ME Research (UK charity) - now too sick. Bedbound. ME since 1999, MCAS, CCI. she/her #pwME #MEspine
Lighting candles for all of the PwME lying in dark rooms today - including my James 💙🕯️
Please know that you’re not alone x
Please follow Mike! He is an incredible Human who has run over 9000 miles to raise money for @investinmeresearch.bsky.social over ten years raising over £50k to help #pwme #myalgicE 💙
This app has me remembering pre-Elon Twitter. The sheer dread and helplessness #pwME felt as COVID loomed. Knowing it would cause millions more people, including many children and young people, to develop ME. Then face the same neglect and mistreatment.
The number of #pwLC on here says it all.
Our Christmas cards are now available to order
10 cards per pack
£2 per pack (for UK delivery - email for outside of UK)
investinme.org/ccard2024.sh...
#mecfs #research #philanthropy #CofEforME
This no drafts thing is a problem
Hi Sarah 🙂👋
Hi Niko. Sorry you can relate! Glad you’ve improved some. Nice to meet you.
Thanks for following if you don't know me.
I've just passed the 10 year anniversary of when I began running marathons for ME research.
I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet
🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪
Hi Anne. Nice to meet you. Sorry you can relate, sending love 🫂💙
Hi Anna, thanks. Lovely to see you. Sending love back
Hope you're awap too, Geoff 💙
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Hello Geoff 👋🙂
Would love to be added 💙
Hi
Looking to connect (and reconnect) with people who understand very severe ME, when health allows. Woman of few words (not by choice). Appreciate follows.
The International ME conference week events for 2025 are now spanning five days - 26-30 May
26-27/5 #YoungEMERG ECR workshop
27/5 European ME Research Group workshop
28-30/5 #BRMEC14 Research Colloquium
30/5 #IIMEC17 Clinicians' Conference
investinme.org/meconference...
#research #mecfs #EMERG
A decade-long effort to establish the UK/European Centre of Excellence for ME in @NorwichResearch
investinme.org/iimer-newsle...
#mecfs #research #CofEforME #alreadyhere
We have released the videos of presentations from our 16th International ME Conference #iimec16 investinme.org/iimec16.shtml
#IMECW2024 #mecfs #research #brmec13