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Sarcoma Foundation of America (SFA)

@curesarcoma.bsky.social

Official Bluesky account for Sarcoma Foundation of America (SFA) www.curesarcoma.org

130 Followers  |  10 Following  |  162 Posts  |  Joined: 18.11.2024  |  2.2386

Latest posts by curesarcoma.bsky.social on Bluesky

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We're celebrating SFA's 25th anniversary with a special episode of the Sarcoma Stories podcast! We’ll be sitting down with the founders to talk about the last 25 years. We want to hear your questions. Leave a question below for a chance to have it featured on the podcast. #SFA25 #sarcoma

11.08.2025 18:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Today marks 25 years since Sarcoma Foundation of America officially became a non-profit. Throughout our anniversary year, we will look back at our progress and look ahead to our continued mission to improve outcomes for people diagnosed with #sarcoma and increase the number of survivors. #SFA25

10.08.2025 13:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Race to Cure Sarcoma Returns to Louisville August 9th Dawne Gee welcomes Race to Cure Sarcoma Louisville to the WAVE Country studio to preview the 2025 Race to Cure Sarcoma.

Learn more about the Race to Cure Sarcoma in Louisville from committee member and sarcoma survivor, Katie Wintergerst. Watch her interview to hear why you should join the #sarcoma community this Saturday, August 9, for this meaningful event. www.wave3.com/2025/08/04/r... #CureSarcoma #cancer

07.08.2025 14:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We are proud to honor Christina Kim, a nurse practitioner at Mass General Cancer Center, with the Compassionate Care Award at our Stand Up to Sarcoma Gala. Her dedication to person-centered care for people with #sarcoma makes a true difference. curesarcoma.org/ways-to-help...

05.08.2025 18:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thank you to everyone who participated and helped raise awareness during #SarcomaAwarenessMonth. While July has come to an end, our work is never over. We must continue to educate others about this rare cancer and advocate for the needs of the #sarcoma community. curesarcoma.org/sarcoma-awar...

01.08.2025 20:09 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Your experience can bring hope and connection to others in the #sarcoma community. We invite you to share your story with us. curesarcoma.org/sarcoma-pati... #CureSarcoma #cancer

30.07.2025 19:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This Why I Give #SFAGivingTuesday, we're honored to share Lisa Clark's sarcoma story, as told by her daughter, Jenna on Lisa's birthday. Learn why Jenna gives monthly to SFA in her mother's memory and how your support makes a difference for the #sarcoma community. #CureSarcoma #cancer

29.07.2025 18:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Light Up for Sarcoma 2025 Β· Jul 25 – 28 πŸ“Έ Shared album Β· Tap to view!

We've seen some incredible photos from Light Up for Sarcoma, which lit up the skies this past Friday! We'd love to see yours. Email them to socialmedia@curesarcoma.org, comments below, or upload them directly here: photos.app.goo.gl/dqf5PFf3q5kF... You can also view all submissions at this link.

28.07.2025 15:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We're so inspired by Ti Ying and the students in Malaysia for their fantastic Wear Yellow Wednesday participation! It's amazing to see young people globally unite to raise #sarcoma awareness. Their initiative, symbolizing strength & hope, shows our community is worldwide. #CureSarcoma #cancer

27.07.2025 14:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Light Up for Sarcoma 2025 is almost tonight! Visit local landmarks, snap photos, tag us, and use #LightUpforSarcoma #CureSarcoma. Share images in comments or replies. For the latest updates and live streams, visit: curesarcoma.org/light-up-for... #sarcoma

25.07.2025 20:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Help us increase awareness for this rare #cancer by sharing these #sarcoma facts. Your share is a simple and powerful way to make a difference during #SarcomaAwarenessMonth. #CureSarcoma

23.07.2025 14:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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The Faces Behind the Ribbon series continues. We're sharing more powerful, personal stories from the #sarcoma community, reminding us that every voice and experience is unique. Join us as we continue to highlight these incredible individuals. #CureSarcoma #cancer

22.07.2025 18:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Join the #sarcoma community at a 2025 Race to Cure Sarcoma event near you! Your participation directly supports our mission to improve outcomes for people diagnosed with sarcoma and increase the number of survivors. Learn more and sign up: curesarcoma.org/race-to-cure... #cancer

21.07.2025 14:06 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This #SarcomaAwarenessMonth, encourage young artists to participate in SFA’s Children’s Artwork Contest! Last call for submissions! Winning artwork will be featured in our newsletter & 2025 holiday card. Learn more: curesarcoma.org/childrens-ar... #sarcoma #CureSarcoma #cancer

20.07.2025 13:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Next Friday is Light Up for Sarcoma! Buildings worldwide will shine yellow to raise sarcoma awareness. To help, contact local building management through a quick web search. Direct connections boost participation. You can also light your house yellow and share photos to support #sarcoma.

18.07.2025 21:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Today, members of the sarcoma community are in Washington D.C. for Sarcoma Community Advocacy Day! We are meeting with lawmakers to advocate for increased research funding and improved access to care for those impacted by #sarcoma. Add your voice by contacting your elected officials: buff.ly/Inh4kM7

17.07.2025 15:13 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Coping With a Rare Cancer Diagnosis, Like GIST Dr. Breelyn Wilky discusses challenges that patients with GIST face and shares advice with those who feel overwhelmed by the rarity of their condition.

SFA Medical Advisory Board Member discusses the challenges patients face when diagnosed with a #sarcoma. She mentions SFA’s Jordan’s Dream Fund – a program that helps people participate in trials and second opinions. Listen here buff.ly/NbmsT25 and learn about Jordan's Dream Fund buff.ly/jBTk1rJ

17.07.2025 12:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Raising awareness starts with facts. We've created a series of shareable #sarcoma facts and stats you can post throughout July. #SarcomaAwarenessMonth #CureSarcoma Download here: drive.google.com/drive/u/2/fo... #SarcomaAwarenessMonth #CureSarcoma

14.07.2025 13:31 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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July 13 is #GISTAwarenessDay. Did you know GISTs are a #sarcoma subtype affecting the GI tract? SFA is dedicated to advancing research across all #sarcoma subtypes, including #GIST. Learn more about this #sarcoma and the research we support: curesarcoma.org/sarcoma-subt... #SarcomaAwarenessMonth

13.07.2025 14:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Today is PEComa Awareness Day. We invite you to watch our recent webinar to learn more about this rare #sarcoma subtype, treatment approaches, and research in progress. youtu.be/1ZalBjTnYgE #SarcomaAwarenessMonth #CureSarcoma

12.07.2025 14:03 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Thank you to everyone coming to our Race to Cure Sarcoma Milwaukee today! We're excited to see the #sarcoma community come together. Your support helps advance research for better outcomes. #CureSarcoma

12.07.2025 11:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This #FlashbackFriday, we're looking back at a major milestone: our first research grants funded in 2003! SFA's commitment to advancing #sarcoma research started then and continues today. Learn more about this important step in our newsletter: buff.ly/5hQxbof. #CureSarcoma

11.07.2025 17:03 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Post image At 22, I'm a Ewing sarcoma survivor, an advocate with autism. Diagnosed in 2021 with a rare and aggressive cancer on my spine, my pain was dismissed for months due to diagnostic overshadowing. Doctors ignored my swollen leg, but meeting a doctor who truly listened saved my life.

After 14 cycles of chemotherapy and 31 days of radiation, I'm three years cancer-free. My medical team became like family; they took time to understand how I communicate and saw me as a whole person, which made all the difference. Today, I advocate and educate so people with disabilities are heard, believed, and treated with dignity. I believe healthcare is a human right, where every voice is heard and every life is valued.

At 22, I'm a Ewing sarcoma survivor, an advocate with autism. Diagnosed in 2021 with a rare and aggressive cancer on my spine, my pain was dismissed for months due to diagnostic overshadowing. Doctors ignored my swollen leg, but meeting a doctor who truly listened saved my life. After 14 cycles of chemotherapy and 31 days of radiation, I'm three years cancer-free. My medical team became like family; they took time to understand how I communicate and saw me as a whole person, which made all the difference. Today, I advocate and educate so people with disabilities are heard, believed, and treated with dignity. I believe healthcare is a human right, where every voice is heard and every life is valued.

Post image Patrick Johnson, a guitar player and son, experienced a small bump on his bicep after a fall. Doctors repeatedly misdiagnosed it as a hematoma, and despite its significant growth, only X-rays were performed. Living in another state without family, Patrick's condition worsened, leading to a diagnosis of sarcoma that had metastasized to his lungs.

In September 2023, Patrick moved to Texas for aggressive treatment, pursuing chemotherapy, radiation, and homeopathic remedies. He lived with courage and endurance, but the sarcoma progressed, and he passed away that November. Patrick's story highlights the critical need for early and accurate diagnosis in sarcoma.

Patrick Johnson, a guitar player and son, experienced a small bump on his bicep after a fall. Doctors repeatedly misdiagnosed it as a hematoma, and despite its significant growth, only X-rays were performed. Living in another state without family, Patrick's condition worsened, leading to a diagnosis of sarcoma that had metastasized to his lungs. In September 2023, Patrick moved to Texas for aggressive treatment, pursuing chemotherapy, radiation, and homeopathic remedies. He lived with courage and endurance, but the sarcoma progressed, and he passed away that November. Patrick's story highlights the critical need for early and accurate diagnosis in sarcoma.

Behind every yellow ribbon is a real person. This #SarcomaAwarenessMonth, we’re sharing Faces Behind the Ribbon β€” stories from those affected by #sarcoma, highlighting their powerful and personal experiences. Follow their stories throughout July. #CureSarcoma

10.07.2025 14:06 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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It's Wear Yellow Wednesday! Join us in raising visibility for #sarcoma. Post your photo wearing yellow, tag us, and use #WearYellowWednesday #SarcomaAwarenessMonth.

09.07.2025 11:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join SFA tomorrow for Wear Yellow Wednesday to raise sarcoma awareness. Wear yellow, share a photo, tag us, and use #WearYellowWednesday. Let's highlight this rare cancer. #SarcomaAwarenessMonth #CureSarcoma

08.07.2025 15:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join us in spreading awareness this #SarcomaAwarenessMonth. We've created a toolkit with graphics, sample posts, and printable signs. Find it here: buff.ly/W8x7DNb #sarcoma #CureSarcoma

07.07.2025 18:30 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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We're inspired by the support and visibility for #sarcoma during #SarcomaAwarenessMonth! Your commitment is making a difference. Add a free Sarcoma Awareness frame to your profile picture to show support: buff.ly/HdDHbod

06.07.2025 14:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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