Hyperemesis Ireland

Just one €35 would get Amy to €900 raised - €100 for every month of HG www.idonate.ie/fundraiser/A...

Support Amy Sage's Fundraising Page on iDonate.ie Amy Sage's Fundraising Page for Hyperemesis Ireland, created by Amy Sage | iDonate.ie

The amazing Amy is running the VHI mini-marathon for us today 🏃‍♀️🏃‍♀️🏃‍♀️

We'd love to see her smash her target - can we get her to €850 (or more 👀) ...?

www.idonate.ie/fundraiser/A...

✅️ HG can have lasting physical and mental effects, which is why proper treatment and support is so important.

✅️ Mental health tips are valuable, but you can't think your way out of a physiological condition. Rest can help HG symptoms.
✅️ The most common outcome of a HG pregnancy is a healthy baby, but HG can increase risks including preterm birth, growth restriction, and pre-eclampsia.

✅️ HG has specific diagnostic criteria
✅️ HG often improves in mid-pregnancy but for ~20% lasts for the whole pregnancy
✅️ Ginger is useless for HG - it can't replace medical treatment
✅️ There are several safe medication options for HG, many of which your GP can prescribe. Untreated HG can be dangerous

Propaganda we're not falling for: HG is just bad morning sickness HG will get better by 12w Ginger treats HG Medications to treat HG are too risky Cariban is the only medication for HG If you tried harder you'd feel better HG never affects the baby HG only affects you in pregnancy

We still hear these too often - from family, friends, even healthcare providers!

#hyperemesisgravidarum
#pregnancysickness
#womenshealth

The more people we can reach, the better the impact on HG patients all over Ireland

3 - for everyone: sign up to our e-news!

www.hyperemesis.ie/get-involved...

Share a link to our website with friends and family, or on your social media. If you'd like to share your HG story with us, please DM or email support@hyperemesis.ie

2 - if you're a patient or know someone who is, share this link.

www.hyperemesis.ie/get-help/

1 - if you're a healthcare professional: Share the latest on HG treatment guidelines with a colleague! You'll find the latest RCOG guidelines (2024) as well as the current HSE ones (2018, but being updated) on our website.

Today 15th May is International HG Awareness Day. This year's theme is HG Progress.

Here are 3 simple actions you can take today:

www.hyperemesis.ie/healthcare-p...

#hyperemesisgravidarum

And we'd love to know - what does HG progress mean to you? What progress have you seen or would like to see?

*Cariban is doxylamine/pyridoxine, first-line medication for HG in 🇮🇪. Available on medical card and Drugs Payment Scheme since Aug 2024 with any prescription and no additional approvals.

Later this month, 15th May, is HG Awareness Day and this year's theme is HGProgess.

For us, the biggest progress since last year is Cariban* being available to everyone thanks to our HG2Costly campaign.

#hyperemesisgravidarum
#HGProgress

Hyperemesis Gravidarum: when pregnancy becomes a nightmare Hyperemesis gravidarum (HG) is the medical name for severe sickness and vomiting during pregnancy, making it seem like a months-long battle for survival

Pregnancy can be a time of joy & anticipation, but can also feel like a relentless battle for women w/ hyperemesis gravidarum, with its persistent nausea & vomiting.

Zeinab El Dirani writes about this underfunded & deprioritised condition.

@hyperemesisie.bsky.social

www.rte.ie/brainstorm/2...

Long weekend coming up, great time to get your application in 😉👇

#volunteer #hyperemesisgravidarum

And more details on our page www.hyperemesis.ie/healthcare-p...

Investigating the perinatal mental health impacts of hyperemesis gravidarum in Ireland: developing strategies to improve mental health within antenatal and postnatal care settings | The SPHeRE Program...

There is a PhD available in @rcsipophealth.bsky.social on mental health and #hyperemesisgravidarum www.sphereprogramme.ie/investigatin...

This is a good summary of research progress into #hyperemesisgravidarum.
Irish researchers are working on dietetic and mental health implications of HG.

It’s Charlotte Brontë’s anniversary. It’s quite likely she died from Hyperemesis Gravidarum pubmed.ncbi.nlm.nih.gov/30777294/ @martinadevlinbooks.bsky.social’s Charlotte is a fantastic read, &, if you can, please support the charity that does phenomenal work in this area: @hyperemesisie.bsky.social

We are looking for more volunteers including board members! As an all-volunteer charity, we can do literally nothing without the right people - could it be you? More details on the roles and how to apply are here www.hyperemesis.ie/get-involved...

We are looking for more volunteers including board members! As an all-volunteer charity, we can do literally nothing without the right people - could it be you? More details on the roles and how to apply are here www.hyperemesis.ie/get-involved...

March e-news is going out tomorrow... latest on HG research in 🇮🇪, volunteering with us, and others so sign up here if you haven't already 👇
www.hyperemesis.ie/get-involved...

Sinéad has long dark hair and wears a maroon print dress. She holds a microphone. Sinéad is one of four women seated on a platform.

The amazing Sinéad speaking about how she survived life-threatening hyperemesis and how it has affected her, her babies, and her partner long-term.

@karenmsikar.bsky.social on perinatal stress and anxiety: multifactorial but focus on the health of the baby shouldn't mean absence of the woman.

"Women want to be asked, they want a chance to talk, they want us to listen to them" - Prof Deirdre Daly on participants in the MAMMI study. Hear hear 🙌🙌🙌

Closeup of Methods section listing complications of pregnancy as reported by the mother 9m pp. "Persistent vomiting" is listed as the top complication reported at 17.4%

Passed some time checking out the posters... interested to see "persistent vomiting" in 17% of women in the Growing Up In Ireland study...!

Photo of lanyard for the event Advancing Women's Health Research in Ireland

At @rcsi.bsky.social @rcsipophealth.bsky.social today! Supporting the amazing Sinéad who will be speaking on her experience of life-threatening #hyperemesisgravidarum on the patient panel. Please do say hi 👋

Mama has hyperemesis gravidarum (but only for a while) by Ashli McCall illustrated by Anna-Maria Crum

How to be an HG Hero: Helping Children Understand Hyperemesis Gravidarum by Caitlin Dean illustrations by Paul Colledge

Hyperemesis Gravidarum- The Definitive Guide by Caitlin Dean and Amanda Shortman

High Risk: a doctor's notes on pregnancy, birth, and the unexpected by Chavi Eve Karkowsky MD

Our #WorldBookDay2025 recommendations 👇 Which have you read or others you would add? For kids, patients, carers, or healthcare providers.

Tonight on ITV 👇

Kudos to our friends PSS in the UK for all their advocacy. No-one should be dying of HG.

(Content note: suicide, medical trauma, baby loss)

www.itv.com/news/2025-03...

@hyperemesisie.bsky.social doing great work to support people with HG, raise awareness, and help to ensure optimal treatment throughout the health system. Unfortunately, maternal deaths still occur (rarely) from HG.

Things you can do if this affects you/your patients:
- try a few different pharmacies
- discuss adding other medications (or increasing the dosage of them)
- ask the pharmacy if they can order any other brands of doxylamine/pyridoxine.

Screencap from IPU website showing Cariban resupply date of 7th Feb 2025

Hearing that some HG patients are having difficulties getting Cariban. This is the latest on shortages from @irishpharmacyunion.bsky.social 👇