Aki Rintala

This week we harmonized our study protocol across three research sites in our MS project EMAFAMS, study where we explore real-time fatigue and fatigability. Good consensus and soon ready for pilot phase👌 Thank you @anttilopp.bsky.social, Sara & Anders! #multiplesclerosis #fatigue #MS #EMA #ESM

13.09.2025 11:32 — 👍 0    🔁 0    💬 0    📌 1

4/ We aim to bring more personalized approaches to how fatigue is experienced and understood in daily life as well as synthesize real-time assessment of fatigue in MS.

Follow along for updates! 👋

10.05.2025 15:55 — 👍 0    🔁 0    💬 0    📌 0

3/ EMA-FAMS is conducted in collaboration with experts in neurorehabilitation, physiotherapy, and EMA/ESM based in Finland, Belgium, and the UK.

10.05.2025 15:55 — 👍 0    🔁 0    💬 1    📌 0

2/ The project is 3-folded: synthesizing current literature on methodological approaches, interviewing lived experiences of fatigue and intensive assessments of fatigue in real-life, and collecting real-time data in natural environment.

10.05.2025 15:54 — 👍 0    🔁 0    💬 1    📌 0

1/ Overall aim is to study concepts of real-time fatigue and activity-related fatigability and explore the real-life patterns and dynamics between fatigue and activity performance.

10.05.2025 15:54 — 👍 0    🔁 0    💬 1    📌 0

Is it meaningful to collect real-time fatigue and activity performance in multiple sclerosis?

That’s the focus of EMA-FAMS, our 4-year project exploring real-time fatigue and activity-related fatigability using EMA and wearables.
🧵👇
#multiplesclerosis #MS #fatigue #EMA #ESM

10.05.2025 15:34 — 👍 2    🔁 0    💬 1    📌 0