This decadent leopard print, lime green, black and white fabric is back! It has been out of print for many years but my fabric scout found this hidden gem for us!!!π I don't have a lot but it's enough to make some slippers or bibs. I would be honored to make something for your child. π
05.06.2025 19:30 β π 0 π 0 π¬ 0 π 0
Hi friends and family, do you have a small business or know someone that does? Might they want to help us with our main fundraising event for the International Foundation for CDKL5 Research-IFCR by becoming a sponsor? Their logo will be listed on the official fundraising page ....free advertising for their business! In addition, family sponsorships are also very needed and welcome. Thank you for considering!π
03.04.2025 17:29 β π 1 π 0 π¬ 0 π 0
Hi friends, this is Village Number 4, in my village series, just completed today. I try to bring awareness to CDKL5 Deficiency Disorder everyday through my artwork. Someone I love needs a cure π
Thank you for looking π and please reach out if there's something I may make for you or your child.
19.03.2025 15:55 β π 3 π 0 π¬ 0 π 0
This wall art quilt was made for a beautiful, courageous boy that needed five green sea stars to represent CDKL5. What may I make for you or your child? A portion of the proceeds supports CDKL5 Deficiency Disorder family advocacy. Someone I love needs a cure π
28.01.2025 01:21 β π 5 π 0 π¬ 1 π 0
Highlighting, with gratitude, a few recent orders. Thank you to those who have ordered past and present. Bringing awareness for CDKL5 Deficiency Disorder everyday. Someone I love needs a cure π
27.01.2025 19:30 β π 2 π 0 π¬ 0 π 0
Hi Mark, this drawing really speaks to me! I made it over to the sky. Rose Pike
27.01.2025 03:21 β π 1 π 0 π¬ 0 π 0
Bermudian marine scientist, artist, father of 3 great kids including one with CDKL5 deficiency disorder.
Proud of the human I have become, proud Mum, Proud Wife, Proud Social Worker and Proud Patient Advocate and charity chair - CDKL5 UK BSc in Social Work and MSc in Global Health Policy
Loulou Foundation, tackling CDKL5 Deficiency Disorder in collaboration with our amazing patient families.
Midlife Magic πͺ© Mile High Madness
Advocate βΏ #CDKL5 π§¬Neuro & #Genetic science stalker.
Lover of dogs, beer, pejuta sapa, bodily autonomy, music, mountains, Pilates & witty humans.
Podcasting amateur ππΌ
https://bsky.app/profile/cdkl5incolor.bsky.social
π§ 𧬠Neuroscientist. Looking for new medicines for #CDKL5, #SCN1A, #SHANK3, #DHPS and other neurological #RareDiseases with #epilepsy
Television Producer/Director
On the CDKL5 in Color podcast you'll hear lessons learned direct from parent caregivers of children living with #CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. www.CDKL5inColor.com
#CDKL5 𧬠| Former school social worker turned stay-at-home medical mama | ποΈProducer, content creator, & co-host of the CDKL5 in Color Podcast @cdkl5incolor.bsky.social
www.CDKL5inColor.com
Writer βπ» , Quilter π§΅ , Artist π¨ , Emmy-Nominated Television Producer πΊ , ΞΞ§ π΄βͺοΈ, Resistance πΊπΈ, Warrior π³οΈβπ
official Bluesky account (check usernameπ)
Bugs, feature requests, feedback: support@bsky.app