S.Jones

12/12/2025- Pirate of the Caribbean www.timesfreepress.com/news/2025/de...

Shows a woman with ME/CFS propped up in bed with her cat. There is a brown blob on her head labeled “stigma”. A jet plane is flying overhead, dropping brown blobs onto the woman’s head. The jet is labeled “Medical Profession”. In large letters, the cartoon says “Enough Already”.

@kristinwrites.bsky.social @exceedhergrasp1.bsky.social @binitakane.bsky.social @kaufmanmd.bsky.social @chromatowski.bsky.social
The mistreatment of ME/CFS patients isn’t a minor oversight — it’s one of modern medicine’s greatest failures. Millions harmed. Decades wasted.

The next step has begun. Ratchet up the fear, attack those that disagree, arrest, detain.
This is Adolf, Vladimir, Xi....this is what we have become. And it is only just starting. Give it three months and you will not recognize this country. It was never going to stop with "immigrants".

Beautiful @thesicktimes.org essay on how to be a friend to your friends who are affected by Long Covid—and why you should.

Def worth a few minutes of your time.

#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM.
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...

Please share with people with #LongCOVID in your life. It would be incredible to hit 1000 in the next week! (They are already over 700 since this post!)

Recruitment graphic for ME/CFS Fellowship Programme 2026 with headline 'ME/CFS Research Needs YOU' and text 'Now Open' against modern geometric design. WE&ME Foundation and WWTF branding.

Not an ME/CFS researcher? Perfect. That's exactly who we need.

The ME/CFS Fellowship 2026 seeks fresh perspectives from a wide range of life science researchers including biochemists, cell biologists, geneticists, neuroscientists, physiologists., etc.
#MECFS #LongCOVID #AcademicSky 🧪

Why I Can’t Just Meet You for Dinner The Reality of Post-Exertional Malaise

This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.

substack.com/home/post/p-...

YouTube video by unicorneliaw The Glitch

Really moving artistic visual of a POTS experience

Pete Buttigieg would be a good DNC spokesperson.

He would do a GREAT job of going around the country, being on TV all the time, and putting out Dem messaging on EVERY issue.

He would be an excellent counter-Leavitt. And we NEED one. He should be holding regular press conferences and putting

Once again, this is adorable and very informative 🧪

YouTube video by Broken Battery Westminster Hall Debate on Support for People with ME/CFS - November 2025

A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.

youtu.be/wZFEUnjWgOA?...

Shows a doctor speaking down to a female patient sitting on an exam table. The doctor is explaining that because she has ME/CFS, it is okay to gaslight her. The doctor admits that he didn’t study ME/CFS in medical school, and he doesn’t like to read medical research to keep up-to-date. He also says that because the patient is female, she is probably hysterical. The patient is rolling her eyes

@tomkindlon.bsky.social @bhanlon15.bsky.social @kaufmanmd.bsky.social @colleensteckel.bsky.social @1goodtern.bsky.social @davetuller1.bsky.social

Yup. Think Seimens, BMW, I.G. Farben, steel and coal company Krupp, BMW, and Daimler-Benz (Mercedes-Benz). In 2025 it's the tech bros and their trillions, choosing fascism over morality and democracy.
Will we have our Nuremberg? Will these thugs and corporate billionaires be held accountable?

Do you know that you can pollinate your plants and make beautiful seed pods that will last a long time? To pollinate a Christmas cactus, use a small brush or a cotton swab to collect pollen from one flower and gently dab it onto the stigma of another flower in the same pot or in a second pot.

Agreed. Helping women who make up the majority of ME/CFS patients would seem to fit her objectives perfectly. Our decades of suffering make a compelling case for philanthropy.

Happy Birthday, Wilhelminia!! ❤️🎂 Thank you for your decades of advocacy work. i have been sick for 33 years and really appreciate the work you have done to help us all move closer to recognition and a cure. It’s been a long, arduous struggle, but we will win in the end.

Highlights • Severe ME/CFS patients face deep social, medical, and structural exclusion. • Delegitimation of illness leads to isolation, distress, and denied support. • Gendered stigma shapes how women's pain is dismissed in health care. • Twitter (now X) offers access to the voices of an otherwise unreachable patient group. • This study urges reforms in care, disability access, and illness recognition.

🧵
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome

www.sciencedirect.com/science/arti...

"Severe ME/CFS patients face deep social, medical, and structural exclusion."

#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

1/

Is this depicting a known person or is it a generic doctor?

I’m really sorry. Best wishes to you.

Whitney Dafoe One Thing ☝️ Did you know that all the best ME/CFS researchers in the world - for example, every single researcher at Ron’s recent Working Group Meeting - every researcher there said they don’t care....

ME/CFS is awful—but our community is kind of amazing. Our researchers, clinicians & advocates work together like no other, wearing many hats & fighting fiercely to improve patients’ lives. 💙
www.facebook.com/whitneydafoe...

It’s awesome to see awareness of the seriousness of this disease growing.

Check out the paper here: 👇

journals.lww.com/tnpj/fulltex...

Shows the scream and a monster with a chainsaw standing over a woman in bed. The woman in bed has ME/CFS and looks sick and frightened. The first monster is labeled Simon Wessely, and the 2nd monster is labeled pseudoscience.

Happy Halloween to everyone stricken with this monstrous disease.
@tomkindlon.bsky.social @maddow.msnbc.com @erictopol.bsky.social @rivkabluesky.bsky.social @kaufmanmd.bsky.social @kaine.senate.gov @mrsbettybowers.bsky.social @seastarsal.bsky.social

Those are actually the hallmark features of ME/CFS.

Medicine has completely botched everything dealing with ME/CFS for decades, has refused thousands of opportunities to do better about it.

And yet again it has been botched so completely that the past doesn't even exist, erased from existence.

This is a great idea

Dr Oz: “I think we all agree that Covid has passed”.

No we do not agree!

Anyone who thinks Covid has passed has no business in charge of public health.

It’s still here. It’s still killing and disabling.

Get your booster if you can. Wear a mask (ideally an N95) and clean the air!

Very important humanitarian act. Feed people at food banks and soup kitchens, and set up voter registration tables in the same area.

If I were running the DNC, there would be Democratic Party sponsored food relief banks across the country right now that specifically welcomed anyone regardless of party affiliation.

Along with the food, there could be voter registration and links to runforsomething.net

So, if Trump throws a party in the new ballroom and charges $100,000 a head, at the end of the evening, he will make $100,000,000 minus the cost of the buffet. And, if he has parties twice a week, he will rake in ten billion, four hundred million dollars a year.

Or we could have our own fricking press secretary