We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together.
The guide focuses on 24 medications, but includes a few other interventions for breadth /1
March is Long COVID Awareness Month. Please offer support to your stricken friends. @thesicktimes.org @guitarmoog.bsky.social @exceedhergrasp1.bsky.social @chromatowski.bsky.social @emilyrj.bsky.social @thecovidinfoguy.bsky.social @davetuller1.bsky.social @mileswgriffis.bsky.social
PART 1 - What is Long Covid?
Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains what Long Covid is.
#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport
NIH Director Jay Bhattacharya says patients with ME/CFS, long COVID, vaccine injury and chronic Lyme are often gaslit and told their symptoms are psychological, making them feel crazy. He’s told NIH staff he wants to invest in finding real answers for these conditions.
No one with such bizarre anti-science notions should be in a position of power at HHS. He’s going to cause a lot of death and illness. Impeach him now before it is too late.
Cannot make this shit up.
"During an appearance on Theo Von’s podcast yesterday, Kennedy described why he was determined to keep going to in-person addiction meetings during the pandemic:“I’m not scared of a germ. You know, I used to snort cocaine off of toilet seats.”
Our beloved Sec HHS. OMG.
Today would be a great day to register to vote!
Thank you for your efforts. Advocacy groups and people with ME/CFS should be asking all medical schools to provide similar information. Schools that do not have an updated curriculum or no curriculum at all could be picketed on ME/CFS awareness day. Medical schools hate bad publicity.
I recently spoke with two doctors who graduated from the University of Washington School of Medicine. One recognized the name ME/CFS but knew nothing about it. The other doctor had never heard of it. Do you think the U.of W is failing its doctors by not teaching about ME/CFS?
I hope you get some bit of relief soon. ME/CFS is an awful disease.
These are really scary and unprecedented times. Protesters should consider wearing masks.
Sweden readies one of its largest military aid packages for Ukraine with air defenses, Saab radars and drones
Sweden is preparing one of its largest security assistance packages for Ukraine, including air defense systems and Saab-made radars, along with investments in Ukraine’...
Still doubting our spiral into fascism? Still don't believe in big brother/ICE etc.
Take a look at this:
techcrunch.com/2025/10/16/a...
Nice hat! Hope you will be able to do more soon.
Read this at least twice and better, 5 times. This is not alarmist, melodramatic, conspiracy thinking---this is our reality. Highlights are mine.
Share this with your family and friends and social media before it is too late.
anchorlightpublications.substack.com/p/my-final-p...
@thepotspostman
Trump is the most corrupt, money hungry, mafioso, skilled at threats and extortion, that has ever set foot in DC. Read this article and realize the magnitude of conflict. No wonder the rich get richer. Sickening.
www.nytimes.com/interactive/...
Every primary care doctor should see this!
Great to see this sympathetic overview article in the LA Times
www.latimes.com/doctors-scie...
It's long so many if not most patients probably won't agree with every sentence but overall gets across a lot sympathetically.
Note: it doesn't focus on any particular news
#MEcfs #CFS #PwME
After 33 years of ME/CFS with no improvement, I have responded to Rapamycin. I have fewer flu-like symptoms, and it is easier to get up in the morning without a struggle. It’s not a cure for me but it’s a little easier to do things around the house. It took 4 months before I noticed an improvement.
Malpractice!! ME/CFS has clearly been established as a physical disease. I wish we could bring lawsuits for this kind of behavior.
12/12/2025- Pirate of the Caribbean www.timesfreepress.com/news/2025/de...
@kristinwrites.bsky.social @exceedhergrasp1.bsky.social @binitakane.bsky.social @kaufmanmd.bsky.social @chromatowski.bsky.social
The mistreatment of ME/CFS patients isn’t a minor oversight — it’s one of modern medicine’s greatest failures. Millions harmed. Decades wasted.
The next step has begun. Ratchet up the fear, attack those that disagree, arrest, detain.
This is Adolf, Vladimir, Xi....this is what we have become. And it is only just starting. Give it three months and you will not recognize this country. It was never going to stop with "immigrants".
Beautiful @thesicktimes.org essay on how to be a friend to your friends who are affected by Long Covid—and why you should.
Def worth a few minutes of your time.
#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM.
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
Please share with people with #LongCOVID in your life. It would be incredible to hit 1000 in the next week! (They are already over 700 since this post!)
Not an ME/CFS researcher? Perfect. That's exactly who we need.
The ME/CFS Fellowship 2026 seeks fresh perspectives from a wide range of life science researchers including biochemists, cell biologists, geneticists, neuroscientists, physiologists., etc.
#MECFS #LongCOVID #AcademicSky 🧪
