Cystic Fibrosis Ireland

𝐄𝐚𝐫𝐥𝐲 𝐁𝐢𝐫𝐝 𝐀𝐜𝐜𝐨𝐦𝐦𝐨𝐝𝐚𝐭𝐢𝐨𝐧 𝐃𝐢𝐬𝐜𝐨𝐮𝐧𝐭!!
The CFI Conference takes place on 𝗦𝗮𝘁𝘂𝗿𝗱𝗮𝘆 𝟳𝘁𝗵 𝗙𝗲𝗯𝗿𝘂𝗮𝗿𝘆 and is open for booking!
Book your accommodation before the 31st December to avail of the early bird discounted rate.
Visit www.cfireland.ie/support-reso... to start your reservation.

COS-CF | A universal core outcome set for cystic fibrosis We want to make sure COS-CF includes the outcomes that matter most. Are you:

📢 Have you say, complete the survey today! www.cos-cf.org

Are you a:
👉person with CF aged 16 and over
👉family member of people with CF (16+)
👉healthcare professional working in CF
👉researcher in CF

The COS -CF survey is now live and asks the CF community to rate how important they think different outcomes are to include in every study of CF.

If you are a women with CF on any stage of a fertility journey and would like to join the warm, welcoming and supportive group, please visit www.cfireland.ie/support-reso...

The Pregnancy Support and Advocacy Group are back tomorrow night (𝟭𝟴𝘁𝗵 𝗡𝗼𝘃) 𝗮𝘁 𝘁𝗵𝗲 𝗲𝗮𝗿𝗹𝗶𝗲𝗿 𝘁𝗶𝗺𝗲 𝗼𝗳 𝟳𝗽𝗺 and are delighted to welcome 𝗗𝗿 𝗦𝗵𝗮𝗿𝗼𝗻 𝗛𝗼𝘂𝗴𝗵𝘁𝗼𝗻, Senior Clinical Psychologist with the Adult CF team at UHL, to our call to discuss parenting with CF.

Have you seen The Cost of Breathing yet?
Created by Trevor O'Donoghue, this exhibition highlights some of the challenges and hopes of living with #cysticfibrosis.
The exhibition will be taking to the road in 2026, but you can view it on online by clicking here:
www.cfireland.ie/support-reso...

The CFI Conference is back on the 7th February 2026 at the Limerick Strand Hotel.

We are finalising the agenda and will be sharing details shortly. Book now to avail of discounted accommodation (early bird available until December 31st).

Visit www.cfireland.ie/support-reso... to book today!

What would you like to see in Spectrum in 2026!

We are currently planning content for the quarterly members magazine and want to know what YOU would like to read.

Let us know confidentially here: www.cfireland.ie/about-cf/lat...

*Cross infection guidelines will apply.

The CFI Community Conference is back on the 7th February and we can't wait to see you! With guest speakers, workshops, dinner and more, it is sure to be the highlight of your calendar! Reserve your spot and access the early bird accommodation discount www.cfireland.ie/about-cf/lat... today!

The next Parent Connect online support groups take place on
👉 11th November at 11am and
👉 12th November at 7.30pm.
This is a free support group for parents of children with CF to meet, chat and ask questions in a safe space. To register, visit buff.ly/tgq9e4O

Reminder! The Exercise Grant is now available on a year round basis.

If you are a person with CF and would like information on the support available to offset the cost of exercise, get in touch today: www.cfireland.ie/support-reso...

Now Halloween is over, the countdown is on to the big 'C'!
That's right.. the CFI Conference is coming up on February 7th!
Make your booking today to secure your place and get the accommodation discount, only available until the end of the year!
buff.ly/QAoisib

Have you taken a look at the online exhibition 'The Cost of Poverty' yet?

This powerful exhibition gives people a true insight into just some of the challenges of living with CF. You can visit the exhibition by visiting our website.

www.cfireland.ie/support-reso...

This month, our Parent Connect and PSAG groups are back!

Parent Connect supports parents of children with CF and the PSAG supports women with CF who are on any stage of a fertility journey.

Visit our website for info on how to join these groups.

www.cfireland.ie/support-reso...

Exercise and Physical Activity | Cystic Fibrosis Exercise and physical fitness are of extreme importance for people with cystic fibrosis (PWCF). Not only is it a natural form of chest physiotherapy that increases lung c...

The CFI Exercise Grant is available for children with CF, with support from the Toy Show Appeal, to cover the cost of camps, clubs and equipment relating to sport.

Get in touch today!

www.cfireland.ie/support-reso...

🧛‍♂️ It's mid term time again!
❓ Do you have a child with CF?
✔️ Are they attending a sport camp for the week?

Our next evening Parent Connect online support group takes place November 12th at 7.30pm.

This group is safe space for parents of children with CF to connect, ask questions and chat with others.

You find out more or register to join by visiting our website. www.cfireland.ie/support-reso...

we are delighted to welcome Sharon Haughton, Psychologist in University Hospital Limerick to our group.

If you are a woman with CF on any stage of a fertility journey and are interested in joining us, please visit www.cfireland.ie/support-reso...

A massive thank you to Aly Walker who joined our last PSAG (Pregnancy, Support and Advocacy Group) last week. It was, as always, an insightful conversation - we learnt a lot!

The next PSAG takes place on 18th November 2025 @ 7pm and

Have you a CF experience to share?

Join our Ambassador call tonight at 7.30pm and find out how sharing your story can make a difference.

📍 Zoom
⏰ 7.30pm
📅 21st October

Register here to join: www.cfireland.ie/get-involved...

Thank you to everyone who joined the online launch of The Cost of Breathing photographic exhibition yesterday. If you missed it, the virtual gallery is now open for viewing here : www.cfireland.ie/support-reso...

Delighted to be taking part in the UN International Day for the Eradication of Poverty today #17October.

Join us this lunchtime 1pm for the launch of The Cost of Breathing, a powerful photographic exhibition by Trevor O'Donoghue.

Visit www.cfireland.ie/about-cf/lat... to join.

The Cost of Breathing - A photography exhibition to mark the UN International Day for the Eradication of Poverty | Cystic Fibrosis To mark International Day for the Eradication of Poverty, Cystic Fibrosis Ireland in collaboration with Focus on Happiness and Trevor O'Donoghue Photography...

Taking place today...

📍 Zoom
⏰ 1pm
🔗 buff.ly/dSsac3L

An in-person viewing of the exhibition is also available between 2pm and 4pm on Friday the 17th October at CF House and the full exhibit will tour Ireland in 2026.

'The Cost of Breathing' is a series of symbolic self-portraits which confront the emotional reality of poverty & Cystic Fibrosis. To mark the UN International Day for the Eradication of Poverty, we invite you to join us and Trevor O'Donoghue Photography to launch this exhibition.

Cross Infection Guidelines | Cystic Fibrosis Cross Infection Guidelines Aim and Objectives of the Guidelines The aim of these guidelines is to reduce the probability of PWCF acquiring new bacterial infections with...

Cross Infection Guidelines will apply. To read these, please visit: buff.ly/1Zotjd0

Preparation for the CFI Community Conference is in full swing & we would love you to join!
📆7th February 2025
📍The Strand Hotel Limerick
❓Workshops, dinner, dancing, awards & more!
Don't miss your chance to get early bird rates on accommodation - registration open!
www.cfireland.ie/support-reso...

We are planning editorial content for 2026 and who better to ask what to include but our members and readers! If you get Spectrum straight to your inbox, hopefully you've had a flick through. But you can still check it out on our website and let us know what you think here: buff.ly/cbggn4o

The Cost of Breathing - A photography exhibition to mark the UN International Day for the Eradication of Poverty | Cystic Fibrosis To mark International Day for the Eradication of Poverty, Cystic Fibrosis Ireland in collaboration with Focus on Happiness and Trevor O'Donoghue Photog...

Visit www.cfireland.ie/about-cf/lat... to find out more.

We are planning editorial content for 2026 and who better to ask what to include but our members and readers! If you get Spectrum straight to your inbox, hopefully you've had a flick through. But you can still check it out on our website and let us know what you think here: buff.ly/cbggn4o