phaware®

I’m Aware That I’m Rare: Jennifer Keeley, DPN and Mary Whittenhall, MSN (550) the phaware® interview

Nurse Practitioners, Jennifer Keeley and Mary Whittenhall, discuss the management of cough in patients receiving inhaled therapies for PH and ILD. @phaware.bsky.social podcast ep 550 @gossamerbio.bsky.social #phild #cough #pah @teamphhope.bsky.social #GossamerBioPartner medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Ashlee Gambino (549) the phaware® interview

FIGHTER TO SURVIVOR: ASHLEE GAMBINO’S BATTLE BEYOND THE RING. Ashlee "The Mobwife" Gambino turned her fighter's mindset into a lifeline, navigating the unimaginable loss of her daughter and a battle for her life. @phaware.bsky.social podcast ep 549 @teamphhope.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Sophia Esteves (548) the phaware® interview

Scars and Survival: Rebuilding Life After a Devastating Diagnosis. After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live -- and it wasn’t just for herself. @phaware podcast ep 548 medium.com/p/im-aware-t...

phaware global association® presents a RooandKanga production: Aware I’m Rare. A BREATHTAKING SHORT FILM ABOUT PULMONARY HYPERTENSION.
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social

I’m Aware That I’m Rare: Richard Channick, MD (547) the phaware® interview

The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything. Dr. Richard Channick discusses the cutting-edge interventions in the treatment of pulmonary embolism. @phaware.bsky.social podcast ep 547 #CTEPH @uclahealth.org @accpchest.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jenny Yang, MD (546) the phaware® interview

Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. Learn why ruling out #CTEPH should be step one for any PH diagnosis. @phaware.bsky.social podcast 546 @ucsdhealth.bsky.social #phawareMD medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Victor Test, MD, FCCP (545) the phaware® interview

Despite better tools and more awareness, people with pulmonary hypertension are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today @phaware.bsky.social podcast ep 545 #phawareMD @accpchest.bsky.social @redraiderpulmcc medium.com/p/im-aware-t...

I’m Aware That I’m Rare: LaRae Hacker (544) the phaware® interview

How TBX4Life Is Fueling a Global Collaboration. LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. @phaware.bsky.social podcast ep 544 @TBX4_Life phaware.medium.com/im-aware-tha...

I’m Aware That I’m Rare: Anthony Carrasco (543) the phaware® interview

How He Survived Meth Addiction, Lung Failure, and Found Purpose. Anthony Carrasco was a meth addict by 15, and nearly dead by 35. But a double lung transplant and a deep surrender to recovery transformed everything. @phaware.bsky.social podcast ep 543 @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Brandon Jakubowski, MD (542) the phaware® interview

Treating Meth-Associated PAH Without Judgment. Dr. Brandon Jakubowski takes us into the under-recognized world of stimulant-induced pulmonary arterial hypertension. @phaware.bsky.social podcast ep 542 #Methamphetamine @JNJInnovMed #phawareMD @UTSWMedCenter medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Nicholas Kolaitis, MD (541) the phaware® interview

The Face of Addiction Isn’t Who You Think It Is. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds. @phaware.bsky.social podcast ep 541 #phawareMD @JNJInnovMed @UCSFHospitals @LungTxptMD medium.com/@phaware/im-...

I’m Aware That I’m Rare: Peter Leary, MD (540) the phaware® interview

How Stigma Blocks Meth-PAH Treatment and How to Stop It. Dr. Peter Leary explains how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. @phaware.bsky.social podcast ep 540 #Meth @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Vinicio de Jesus Perez, MD (539) the phaware® interview

Dr. Vinicio de Jesus Perez discusses The Hidden Epidemic: Meth and PH and the need for compassionate, stigma-free screening. @phaware.bsky.social podcast ep 539 @PHatStanford @Viniciodjperez #MA-PAH #Methamphetamine @JNJInnovMed phaware.medium.com/im-aware-tha...

Episode 538 - John Kingrey, MD Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconceptions, highlights urgent research, and stresses ...

Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, challenging misconceptions and the need for compassion in treating both PAH and addiction. @phaware.bsky.social podcast ep 538 #phawareMD @teamphhope.bsky.social @JNJInnovMed oembed.libsyn.com/embed?item_i...

I’m Aware That I’m Rare: Kari Gillmeyer, MD, MSC (537) the phaware® interview

Dr. Kari Gillmeyer discussed PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care. @phaware.bsky.social podcast ep 537 VABostonHC @The_BMC @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Eric Borstein (536) the phaware® interview

When Eric Borstein collapsed in 2020, doctors gave him just months to live. Now, he’s leading a movement, walking 200 miles down the California coast to prove hope has no limits. @phaware.bsky.social podcast ep 536 @teamphhope.bsky.social @DJLisaFoxx medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Akshay Muralidhar, MD (535) the phaware® interview

Akshay Muralidhar, MD discusses the importance of having specialized centers for pulmonary hypertension, underserved communities, meth use and PH, and the need for outreach programs for patients battling PH. @phaware.bsky.social podcast ep 535 #phawareMD @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Raj, Parikh, MD (534) the phaware® interview

Dr. Raj Parikh discusses building on foundational pathways with treatment options for PAH patients, the value of clinical trials, and the importance of a good doctor/patient relationship. @phaware.bsky.social podcast ep 534 #phawareMD @HartfordHealthC @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Robert Frantz, MD (533) the phaware® interview

Dr. Robert Frantz breaks down the key metrics behind risk stratification: functional class, six-min walk distance, brain natriuretic peptide levels and how they shape treatment plans. @phaware.bsky.social podcast ep 533 @mayoclinic.org @teamphhope.bsky.social @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jean M. Elwing, MD (532) the phaware® interview

ICU & You: What Happens When Pulmonary Hypertension Turns Critical? Dr. Jean Elwing breaks down what patients and families can expect when someone with PH ends up in the ICU. @phaware.bsky.social podcast ep 532 #phawareMD @uc_health @ElwingJean @accpchest.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: John Granton, MD (531) the phaware® interview

Dr. John Granton discusses the evolution of lung preservation methods, the challenges of chronic rejection, and the hope for longer-lasting transplants. @phaware.bsky.social podcast ep 531 @UHN @teamphhope.bsky.social #phawareMD #PHILD #transplant @phacanada #PAH medium.com/p/im-aware-t...

I’m Aware That I’m Rare: First 5 Minutes Care Team (530) the phaware® interview

Drs. Victor Test, Deborah Levine and Rodolfo Estrada discuss CHEST’s First 5 Minutes® program, which builds patient trust in the first 5 minutes of a visit. @phaware podcast ep 530 #phawareMD @accpchest.bsky.social @uthealthsa.bsky.social @PHatStanford @redraiderpulmcc medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Tijana Milinic, MD & Lia Barros, DPN (529) the phaware® interview

University of Washington's Dr. Tijana Milinic and Lia Barros, DNP take a deep dive into the world of pulmonary arterial hypertension (PAH) clinical trials and discuss why diversity and inclusion matter. @phaware.bsky.social podcast ep 529 @uwepidemiology.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Lana Melendres-Groves, MD (528) the phaware® interview

Lana Melendres-Groves dives into racial and ethnic disparities in PAH treatment. She explores how systemic barriers impact care and what steps can be taken to ensure equity and inclusivity in PAH management.
@phaware.bsky.social podcast ep 528
@unmhsc.bsky.social phaware.medium.com/im-aware-tha...

I’m Aware That I’m Rare: Roham Zamanian, MD, FCCP (527) the phaware® interview

Roham Zamanian, MD discusses the concept of disease modification in the treatment of pulmonary hypertension and the potential for treatments to impact the underlying disease process. @phaware.bsky.social podcast ep 516 #phawareMD @PHatStanford @docroham @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Hall Skaara (526) the phaware® interview

When you introduce patients into committees and trials, you drive designs forward. You enable what patients regard as important to be at the forefront of all the work you do. PH patient, Hall Skaara @phaware.bsky.social podcast 526 @europePHA @Hall_Skaara @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Lisa Mielniczuk, MD (525) the phaware® interview

Cardiologist Dr. Lisa Mielniczuk on one of the most common — yet misunderstood — forms of pulmonary hypertension: the kind caused by left heart disease. @phaware.bsky.social podcast ep 525 #phawareMD @MayoClinic @PHACanada @teamphhope.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jason Weatherald, MD (524) the phaware® interview

Dr. Jason Weatherald explains how your everyday clinic visits can help shape the future of pulmonary hypertension treatment. @phaware.bsky.social podcast ep 524 @phacanada #phawareMD @teamphhope @albertaphdoc.bsky.social @ualberta.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Rodolfo A Estrada, MD (523) the phaware® interview

Dr. Rodolfo Estrada discusses the technology and clinical development behind YUTREPIA™ (treprostinil) inhalation powder and why it might be a good option for some PAH and PH-ILD patients. @phaware.bsky.social re podcast ep 523 @Liquidia_Corp @uthealthsa.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Marc Simon, MD (522) the phaware® interview

Dr. Marc Simon discusses diagnosing pulmonary hypertension. His insights help clinicians refine their diagnostic approaches for better patient outcomes. @phaware.bsky.social podcast 522 #phawareMD #PHILD @Liquidia_Corp @ucsfcardiology.bsky.social @MarcSimonMD @CalThoracic medium.com/p/im-aware-t...