phaware®

I’m Aware That I’m Rare: Matina Prapa, MD, PhD and Olivier Danhaive, MD (559) the phaware® interview

How a Global Team Is Rewriting the TBX4 Playbook: Drs. Matina Prapa and Olivier Danhaive on how @TBX4_Life is connecting rare disease experts worldwide to drive newborn screening, genetic testing & real-time change for patients. 🌍 @phaware.bsky.social podcast ep 559 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Anton Morkin (558) the phaware® interview

One Dad’s Mission to Cure His Son’s Genetic Disease: Anton Morkin shares his fight, hope, and vision for the future of PH and rare disease care. It's an inspiring story of advocacy and resilience. 🎧 @phaware.bsky.social podcast ep 558 @TBX4_Life medium.com/p/im-aware-t...

I'm Aware That I'm Rare: the phaware® podcast: Episode 557 - Gaurav Choudhary, MD How an AI Stethoscope Could Transform Global Healthcare What if diagnosing PH didn’t require an echo or heart catheterization—but just a AI powered stethoscope? Dr. Gaurav Choudhary talks real-w...

Portable. Affordable. AI-powered. Dr. Gaurav Choudhary discusses how next-gen stethoscopes could revolutionize PH screening in under-resourced regions and how it could transform global healthcare @phaware.bsky.social podcast ep 557 @brownmedicine.bsky.social phawarepodcast.libsyn.com/site/episode...

I’m Aware That I’m Rare: Lenise Whitley (556) the phaware® interview

After years of being dismissed, Lenise Whitley shares her raw journey to a pulmonary hypertension diagnosis: loss, faith, advocacy, and finding community when no one listened. 🎧 @phaware.bsky.social podcast ep 556 @teamphhope.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Nicole Fitzgerald (555) the phaware® interview

Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a big move -- until breathlessness and fatigue nearly took her life. Hear how she faced pulmonary hypertension head-on and redefined her purpose. @phaware.bsky.social podcast ep 555 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jean Elwing, MD (554) the phaware® interview

Telehealth is reshaping pulmonary hypertension care—but its future is uncertain. Dr. Jean Elwing on access, equity, and what’s at stake as funding sunsets. @phaware.bsky.social podcast ep 554 @uc_health @ElwingJean @accpchest.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jasmine Wells (553) the phaware® interview

You Can Grieve and Still Fight: Love, Loss, and Living with PAH. PAH patient, Jasmine Wells discusses navigating relationships, infections, and fear of transplant, to leading support groups and fighting misinformation. @phaware.bsky.social podcast ep 553 #phaware medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Kevin Allen (552) the phaware® interview

Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don’t understand. Today, he’s pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. @phaware.bsky.social podcast ep 552 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Russell Hirsch, MD (551) the phaware® interview

Dr. Russel Hirsch on the core pillars of the PPHNet and why the next chapter in pediatric pulmonary hypertension care must be written with families through a PHriends family-led committee. @phaware.bsky.social podcast ep 551 #phawareMD #PPHNet @PPHNet @CincyChildrens medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jennifer Keeley, DPN and Mary Whittenhall, MSN (550) the phaware® interview

Nurse Practitioners, Jennifer Keeley and Mary Whittenhall, discuss the management of cough in patients receiving inhaled therapies for PH and ILD. @phaware.bsky.social podcast ep 550 @gossamerbio.bsky.social #phild #cough #pah @teamphhope.bsky.social #GossamerBioPartner medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Ashlee Gambino (549) the phaware® interview

FIGHTER TO SURVIVOR: ASHLEE GAMBINO’S BATTLE BEYOND THE RING. Ashlee "The Mobwife" Gambino turned her fighter's mindset into a lifeline, navigating the unimaginable loss of her daughter and a battle for her life. @phaware.bsky.social podcast ep 549 @teamphhope.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Sophia Esteves (548) the phaware® interview

Scars and Survival: Rebuilding Life After a Devastating Diagnosis. After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live -- and it wasn’t just for herself. @phaware podcast ep 548 medium.com/p/im-aware-t...

phaware global association® presents a RooandKanga production: Aware I’m Rare. A BREATHTAKING SHORT FILM ABOUT PULMONARY HYPERTENSION.
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social

I’m Aware That I’m Rare: Richard Channick, MD (547) the phaware® interview

The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything. Dr. Richard Channick discusses the cutting-edge interventions in the treatment of pulmonary embolism. @phaware.bsky.social podcast ep 547 #CTEPH @uclahealth.org @accpchest.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jenny Yang, MD (546) the phaware® interview

Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. Learn why ruling out #CTEPH should be step one for any PH diagnosis. @phaware.bsky.social podcast 546 @ucsdhealth.bsky.social #phawareMD medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Victor Test, MD, FCCP (545) the phaware® interview

Despite better tools and more awareness, people with pulmonary hypertension are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today @phaware.bsky.social podcast ep 545 #phawareMD @accpchest.bsky.social @redraiderpulmcc medium.com/p/im-aware-t...

I’m Aware That I’m Rare: LaRae Hacker (544) the phaware® interview

How TBX4Life Is Fueling a Global Collaboration. LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. @phaware.bsky.social podcast ep 544 @TBX4_Life phaware.medium.com/im-aware-tha...

I’m Aware That I’m Rare: Anthony Carrasco (543) the phaware® interview

How He Survived Meth Addiction, Lung Failure, and Found Purpose. Anthony Carrasco was a meth addict by 15, and nearly dead by 35. But a double lung transplant and a deep surrender to recovery transformed everything. @phaware.bsky.social podcast ep 543 @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Brandon Jakubowski, MD (542) the phaware® interview

Treating Meth-Associated PAH Without Judgment. Dr. Brandon Jakubowski takes us into the under-recognized world of stimulant-induced pulmonary arterial hypertension. @phaware.bsky.social podcast ep 542 #Methamphetamine @JNJInnovMed #phawareMD @UTSWMedCenter medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Nicholas Kolaitis, MD (541) the phaware® interview

The Face of Addiction Isn’t Who You Think It Is. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds. @phaware.bsky.social podcast ep 541 #phawareMD @JNJInnovMed @UCSFHospitals @LungTxptMD medium.com/@phaware/im-...

I’m Aware That I’m Rare: Peter Leary, MD (540) the phaware® interview

How Stigma Blocks Meth-PAH Treatment and How to Stop It. Dr. Peter Leary explains how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. @phaware.bsky.social podcast ep 540 #Meth @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Vinicio de Jesus Perez, MD (539) the phaware® interview

Dr. Vinicio de Jesus Perez discusses The Hidden Epidemic: Meth and PH and the need for compassionate, stigma-free screening. @phaware.bsky.social podcast ep 539 @PHatStanford @Viniciodjperez #MA-PAH #Methamphetamine @JNJInnovMed phaware.medium.com/im-aware-tha...

Episode 538 - John Kingrey, MD Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconceptions, highlights urgent research, and stresses ...

Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, challenging misconceptions and the need for compassion in treating both PAH and addiction. @phaware.bsky.social podcast ep 538 #phawareMD @teamphhope.bsky.social @JNJInnovMed oembed.libsyn.com/embed?item_i...

I’m Aware That I’m Rare: Kari Gillmeyer, MD, MSC (537) the phaware® interview

Dr. Kari Gillmeyer discussed PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care. @phaware.bsky.social podcast ep 537 VABostonHC @The_BMC @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Eric Borstein (536) the phaware® interview

When Eric Borstein collapsed in 2020, doctors gave him just months to live. Now, he’s leading a movement, walking 200 miles down the California coast to prove hope has no limits. @phaware.bsky.social podcast ep 536 @teamphhope.bsky.social @DJLisaFoxx medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Akshay Muralidhar, MD (535) the phaware® interview

Akshay Muralidhar, MD discusses the importance of having specialized centers for pulmonary hypertension, underserved communities, meth use and PH, and the need for outreach programs for patients battling PH. @phaware.bsky.social podcast ep 535 #phawareMD @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Raj, Parikh, MD (534) the phaware® interview

Dr. Raj Parikh discusses building on foundational pathways with treatment options for PAH patients, the value of clinical trials, and the importance of a good doctor/patient relationship. @phaware.bsky.social podcast ep 534 #phawareMD @HartfordHealthC @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Robert Frantz, MD (533) the phaware® interview

Dr. Robert Frantz breaks down the key metrics behind risk stratification: functional class, six-min walk distance, brain natriuretic peptide levels and how they shape treatment plans. @phaware.bsky.social podcast ep 533 @mayoclinic.org @teamphhope.bsky.social @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jean M. Elwing, MD (532) the phaware® interview

ICU & You: What Happens When Pulmonary Hypertension Turns Critical? Dr. Jean Elwing breaks down what patients and families can expect when someone with PH ends up in the ICU. @phaware.bsky.social podcast ep 532 #phawareMD @uc_health @ElwingJean @accpchest.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: John Granton, MD (531) the phaware® interview

Dr. John Granton discusses the evolution of lung preservation methods, the challenges of chronic rejection, and the hope for longer-lasting transplants. @phaware.bsky.social podcast ep 531 @UHN @teamphhope.bsky.social #phawareMD #PHILD #transplant @phacanada #PAH medium.com/p/im-aware-t...