I somehow managed to miss the puppies! 😩
Thank you @rcphysicians.bsky.social for featuring our work on health literacy
My summary on the GLP-1 data presented at #ACR25
Yes absolutely! This was discussed during the session.
🔗 Link to watch the session on-demand: lnkd.in/dPAhAyFK
🟣 Communication, trust & collaboration across the MDT are necessary.
Unless we tackle barriers to SDM, we can't facilitate good outcomes.
Huge thanks to #ACR & chairs for the invitation to speak, to mentors and collaborators, & all patients who provided input and inspiration for this presentation.
🔑 Key messages
🟣 Health literacy underpins SDM: without understanding, there is no true partnership.
🟣 Social context matters: decisions are not made isolated from patients’ daily realities.
🟣 Equity & empathy must guide SDM: tackling bias and barriers ensures everyone can participate meaningfully.
Implicit bias was another key focus- how unrecognised assumptions about age, race, gender, or socioeconomic background, to name a few factors, can influence clinician–patient dialogue and, ultimately, care. Acknowledging and addressing bias is essential if shared decision making is to be equitable.
Health literacy is a critical determinant of outcomes and patients’ ability to participate in SDM. Health literacy is not a single skill but a spectrum, influenced by education, social support and opportunity. Recognising this variation allows us to tailor care and communication effectively.
Patients may face barriers such as limited health literacy, competing demands, or cultural & language differences. Clinicians may struggle with time pressures, communication challenges or unconscious bias. At the system level inequities in access and fragmented care can further undermine engagement.
Chaired by Dr Jillian Rose-Smith & Eileen Davidson, and featuring Dr. Jennifer Barton, Dr. Karine Toupin April, and myself, the discussion explored how SDM can be strengthened across the multidisciplinary team.
A recurring theme was SDM depends as much on context as on conversation.
At #ACR25, the session “Enhancing Shared Decision Making in Rheumatic Disease Management” brought together clinicians, researchers & patients to reflect on what it means to share decisions in rheumatology, not as an abstract concept, but as lived practice shaped by communication, trust & equity.
Yes!! Unfortunately I had conflicts during your sessions, but I have the health literacy one to watch on demand. 😀
This was the highlight of my day!!
👉 5 clusters based on health literacy Q scores:
-highest health lit: older, fewer female, more comorbidities
-lowest health lit: younger, more anxiety & depression
🤔 Implications: older, more comorbidities were people with more healthcare engagement and pt education?
#ACR25
Abs 0190 @drminidey.bsky.social
📊 Data source: UK NEIAA
👨👨👦 Survey in 2024, n=995 respondents
💻 Cluster analysis to study relationship of health literacy & comorbidities
#ACR25
I get excited for this talk every year- looking forward to hearing Dr Tamika Webb-Detiege’s pearls of wisdom on #WorkLifeBalance to remind us that, as much as we love it, life is more than just about work.
A great start to #ACR25!
@rheumnow.bsky.social
Yes indeed- a totally surreal but brilliant experience. A great honour! Huge thanks to @kristenyoung.bsky.social for her question, always lovely to hear a familiar voice ☺️ See you all later this week!
#ACR25
From the UK @drminidey.bsky.social has focused on comorbidities & SDOH for people with rheumatic disease, and now focusing quite a bit on health literacy
acrabstracts.org/abstract/hea...
Thank you for sharing our work, much appreciated! #ACR25
Thank you for amplifying our work! 🙏🏼 #ACR25
#ACR25 countdown
More from @drminidey.bsky.social & colleagues; health literacy clustering analysis
acrabstracts.org/abstract/hea...
#ACR25 countdown
@drminidey.bsky.social 's work employing a cluster analysis
acrabstracts.org/abstract/hea...
Last week, I had the privilege of being invited to speak at the AGORA Annual Conference, bringing together patient organisations from across Southern Europe.
Read more about my experience and reflections here 👇🏼
#Multimorbidity
#RMDs
www.linkedin.com/posts/mrinal...
Improving health literacy is likely to contribute to better disease control, mental health & patient experience.
Watch this space for further work in this area!
Huge thanks to all co-authors.
🔗 www.sciencedirect.com/science/arti...
@healthliteracyuk.bsky.social
#HealthLiteracy is not just an “add-on”. It shapes every aspect of care and is a core social determinant of health in rheum.
There is a need for:
✅ Standardised ways to measure HL
✅ Interventions co-designed with patients
✅ Policy recognising HL as key to reducing inequities
Low health literacy was consistently linked to worse outcomes:
⬆️ Disease activity
⬆️ Disability
⬆️ Anxiety & depression
⬆️ Healthcare use
⬇️ Medication adherence
⬇️ Use of telehealth & digital tools
I'm very happy to share the first full paper from my PhD, published in #ARD!
Association of #HealthLiteracy with disease outcomes in #InflammatoryArthritis: a systematic review
🔗 www.sciencedirect.com/science/arti...
@kingscollegelondon.bsky.social
@kingslsm.bsky.social
So, what did we find?
In Munich 🇩🇪 today with the @eular.org #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress!
🦋 Thank you to @drminidey.bsky.social from RheumNow for this great interview on #LupusGPT & #EasyLupus!
Don’t miss our Chair, Jeanette Andersen, and Zoe Karakikla-Mitsakou (General Secretary) as they reveal the story behind these innovative AI tools!
www.youtube.com/watch?featur...
