Yes absolutely! This was discussed during the session.
01.11.2025 03:10 — 👍 1 🔁 0 💬 0 📌 0@drminidey.bsky.social
Clinical Research Fellow and Registrar in Rheumatology & Internal Medicine at King’s College London. Interested in social determinants of health, comorbidities and inflammatory arthritis.
Yes absolutely! This was discussed during the session.
01.11.2025 03:10 — 👍 1 🔁 0 💬 0 📌 0🔗 Link to watch the session on-demand: lnkd.in/dPAhAyFK
01.11.2025 02:48 — 👍 0 🔁 0 💬 0 📌 0🟣 Communication, trust & collaboration across the MDT are necessary.
Unless we tackle barriers to SDM, we can't facilitate good outcomes.
Huge thanks to #ACR & chairs for the invitation to speak, to mentors and collaborators, & all patients who provided input and inspiration for this presentation.
🔑 Key messages
🟣 Health literacy underpins SDM: without understanding, there is no true partnership.
🟣 Social context matters: decisions are not made isolated from patients’ daily realities.
🟣 Equity & empathy must guide SDM: tackling bias and barriers ensures everyone can participate meaningfully.
Implicit bias was another key focus- how unrecognised assumptions about age, race, gender, or socioeconomic background, to name a few factors, can influence clinician–patient dialogue and, ultimately, care. Acknowledging and addressing bias is essential if shared decision making is to be equitable.
01.11.2025 02:48 — 👍 2 🔁 0 💬 1 📌 0Health literacy is a critical determinant of outcomes and patients’ ability to participate in SDM. Health literacy is not a single skill but a spectrum, influenced by education, social support and opportunity. Recognising this variation allows us to tailor care and communication effectively.
01.11.2025 02:48 — 👍 1 🔁 0 💬 1 📌 0Patients may face barriers such as limited health literacy, competing demands, or cultural & language differences. Clinicians may struggle with time pressures, communication challenges or unconscious bias. At the system level inequities in access and fragmented care can further undermine engagement.
01.11.2025 02:48 — 👍 1 🔁 0 💬 2 📌 0Chaired by Dr Jillian Rose-Smith & Eileen Davidson, and featuring Dr. Jennifer Barton, Dr. Karine Toupin April, and myself, the discussion explored how SDM can be strengthened across the multidisciplinary team.
A recurring theme was SDM depends as much on context as on conversation.
At #ACR25, the session “Enhancing Shared Decision Making in Rheumatic Disease Management” brought together clinicians, researchers & patients to reflect on what it means to share decisions in rheumatology, not as an abstract concept, but as lived practice shaped by communication, trust & equity.
01.11.2025 02:48 — 👍 5 🔁 2 💬 1 📌 0Yes!! Unfortunately I had conflicts during your sessions, but I have the health literacy one to watch on demand. 😀
28.10.2025 23:49 — 👍 1 🔁 0 💬 0 📌 0This was the highlight of my day!!
27.10.2025 20:30 — 👍 2 🔁 0 💬 1 📌 0👉 5 clusters based on health literacy Q scores:
-highest health lit: older, fewer female, more comorbidities
-lowest health lit: younger, more anxiety & depression
🤔 Implications: older, more comorbidities were people with more healthcare engagement and pt education?
#ACR25
Abs 0190 @drminidey.bsky.social
📊 Data source: UK NEIAA
👨👨👦 Survey in 2024, n=995 respondents
💻 Cluster analysis to study relationship of health literacy & comorbidities
#ACR25
I get excited for this talk every year- looking forward to hearing Dr Tamika Webb-Detiege’s pearls of wisdom on #WorkLifeBalance to remind us that, as much as we love it, life is more than just about work.
A great start to #ACR25!
@rheumnow.bsky.social
Yes indeed- a totally surreal but brilliant experience. A great honour! Huge thanks to @kristenyoung.bsky.social for her question, always lovely to hear a familiar voice ☺️ See you all later this week!
19.10.2025 20:57 — 👍 2 🔁 0 💬 0 📌 0#ACR25
From the UK @drminidey.bsky.social has focused on comorbidities & SDOH for people with rheumatic disease, and now focusing quite a bit on health literacy
acrabstracts.org/abstract/hea...
Thank you for sharing our work, much appreciated! #ACR25
19.10.2025 15:32 — 👍 1 🔁 0 💬 1 📌 0Thank you for amplifying our work! 🙏🏼 #ACR25
08.10.2025 09:45 — 👍 0 🔁 0 💬 0 📌 0#ACR25 countdown
More from @drminidey.bsky.social & colleagues; health literacy clustering analysis
acrabstracts.org/abstract/hea...
#ACR25 countdown
@drminidey.bsky.social 's work employing a cluster analysis
acrabstracts.org/abstract/hea...
Last week, I had the privilege of being invited to speak at the AGORA Annual Conference, bringing together patient organisations from across Southern Europe.
Read more about my experience and reflections here 👇🏼
#Multimorbidity
#RMDs
www.linkedin.com/posts/mrinal...
Improving health literacy is likely to contribute to better disease control, mental health & patient experience.
Watch this space for further work in this area!
Huge thanks to all co-authors.
🔗 www.sciencedirect.com/science/arti...
@healthliteracyuk.bsky.social
#HealthLiteracy is not just an “add-on”. It shapes every aspect of care and is a core social determinant of health in rheum.
There is a need for:
✅ Standardised ways to measure HL
✅ Interventions co-designed with patients
✅ Policy recognising HL as key to reducing inequities
Low health literacy was consistently linked to worse outcomes:
⬆️ Disease activity
⬆️ Disability
⬆️ Anxiety & depression
⬆️ Healthcare use
⬇️ Medication adherence
⬇️ Use of telehealth & digital tools
I'm very happy to share the first full paper from my PhD, published in #ARD!
Association of #HealthLiteracy with disease outcomes in #InflammatoryArthritis: a systematic review
🔗 www.sciencedirect.com/science/arti...
@kingscollegelondon.bsky.social
@kingslsm.bsky.social
So, what did we find?
In Munich 🇩🇪 today with the @eular.org #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress!
12.07.2025 13:03 — 👍 1 🔁 1 💬 0 📌 0🦋 Thank you to @drminidey.bsky.social from RheumNow for this great interview on #LupusGPT & #EasyLupus!
Don’t miss our Chair, Jeanette Andersen, and Zoe Karakikla-Mitsakou (General Secretary) as they reveal the story behind these innovative AI tools!
www.youtube.com/watch?featur...
🤩 So excited about this interview!
💻 #LupusGPT was winning awards at #EULAR2025
🎙️ Delighted to meet with Zoe & Jeanette from #LupusEurope to find out about this exciting development in patient information & use of #AI in #rheumatology
@rheumnow.bsky.social
youtu.be/Iq4w7pwF0f8?...
Thank you #EULAR #PARE for the invitation to chair this important session. I learnt a lot and we really could have kept the discussions going for a long time!
#EULAR2025
@eular.org
Day 3 of #EULAR2025!
😴 We’ll discuss all things related to sleep & fatigue in this fascinating #PARE session
📍 C3
🕰️ 15:45-17:00
🗓️ Today!
👋🏼 See you there!