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MS-UK

@ms-uk.bsky.social

MS-UK is the national charity supporting anyone affected by multiple sclerosis (MS). We offer a number of services that support people affected by MS to live healthier, happier lives. For more information, visit www.ms-uk.org. Reposts not endorsements

196 Followers  |  98 Following  |  67 Posts  |  Joined: 15.11.2024  |  1.83

Latest posts by ms-uk.bsky.social on Bluesky

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How the MS Register helps everyone with MS Our MS Register introduction session will explain how it works, and share how this valuable resource is helping shape the future of MS.

Earlier this month Rod from the Register joined MS-UK @ms-uk.bsky.social for an online information session. You can read more about the event, or sign up to watch the recording, by following the link below.

Thank you MS-UK for inviting us along!
www.ms-uk.org/ms-register-...

19.11.2025 15:31 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’œ Winter can bring new challenges when you live with MS. If you could share one winter wellbeing tip with someone newly diagnosed, what would you tell them?

Comment below to share yours!

#MSUK #MultipleSclerosis #MSCommunity #WinterWellbeing

25.11.2025 14:43 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Ultraviolet light therapy may help reduce inflammation in MS

โœจ New study explores UV phototherapy for MS

Researchers have found that narrowband UVB therapy may help reduce inflammation and improve fatigue for some people living with MS.

Click the link below to read the full update. ๐Ÿ’œ
ms-uk.org/news/ultravi...

#MS #Phototherapy #MSResearch #MSStudy

25.11.2025 14:34 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Fundraiser of The Month โ€“ November

Meet Britt, our Fundraiser of the Month! ๐Ÿ’œ

Since 2023, Britt has raised an amazing ยฃ3,373 through her monthly craft and tabletop events.

Read Brittโ€™s full story below! ๐Ÿ˜Š

ms-uk.org/blog/fundrai...

#MSUK #MSCommunity #FundraiserOfTheMonth #TeamPurple #MSSupport

21.11.2025 15:54 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’œ Reach for the sky!

Lisa McAdams from Staffordshire is taking her fundraising to new heights as she prepares for an indoor flight challenge at iFLY Manchester! โœˆ๏ธ

Read Lisaโ€™s inspiring story and find out how you can support her challenge below ๐Ÿ‘‡
ms-uk.org/blog/reach-f...

#MSUK #MSCommunity #MS

13.11.2025 10:06 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’œ As the days grow colder, we know how MS symptoms can sometimes feel harder to manage. Thatโ€™s why weโ€™ve created our Winter Wellbeing Hub, which explores mental health, fatigue, diet, supplements, and more.

Click the link below โ„๏ธ
ms-uk.org/winter-wellb...

#MultipleSclerosis #MSUK #WinterWellbeing

13.11.2025 10:02 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Epstein-Barr virus antibodies donโ€™t predict MS disease progression

๐Ÿงฌ MS News โ€“ Epstein-Barr virus antibodies donโ€™t predict MS progression

Click here to find out more - ms-uk.org/news/epstein...

#MSUK #MSNews #MultipleSclerosis #MSResearch #EpsteinBarrVirus #MSCommunity

13.11.2025 09:59 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Join us on Monday 27 October at 3pm, for Dr Gretchen's session on 'making the most of mobility aids'. ๐Ÿ’œ

We will look at when to start using an aid, how to choose the right option, simple adjustments for comfort and safety, and how to use it well.

Register here - ms-uk.org/mobility-aid...

#MS

24.10.2025 10:34 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
#TeamPurple zipped over Twickenham Stadium and raised over ยฃ4,000 for MS-UK!

#TeamPurple zipped over Twickenham Stadium and raised over ยฃ4,000 for MS-UK!

#TeamPurple zipped over Twickenham Stadium and raised over ยฃ4,000 for MS-UK!

Thank you to every brave flyer for taking on this incredible challenge. Your support helps people affected by MS to live healthier, happier lives. ๐Ÿ’œ

Email shannon@ms-uk.org or call 01206 226500 to do your own challenge!

24.10.2025 10:33 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Have scientists found the reason women are more likely to develop MS?

News - Have scientists found the reason women are more likely to develop MS? ๐Ÿ‘€

Researchers have identified a gene that may help explain why women are more likely than men to develop neurological conditions such as MS and Alzheimerโ€™s disease.

#MS #MSResearch #MSStudy

ms-uk.org/news/have-sc...

24.10.2025 10:30 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
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Five ways smoking can impact multiple sclerosis Read our blog about the impact of smoking on multiple sclerosis, you'll be surprised to know what a change it can make.

Five ways smoking can impact MS ๐Ÿšฌ

This month is Stoptober, and quitting for 28 days can make you five times more likely to quit for good. Our new blog explains how smoking can affect MS, from risk and progression to treatment response.

#MS #MultipleSclerosis #Stoptober

ms-uk.org/blog/5-ways-...

24.10.2025 10:29 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Can you help with an MS rehabilitation side-effects study?

AERO-MS is a new study at the University of Plymouth looking at how side effects are collected and shared in MS rehabilitation trials.

Laura is inviting adults with MS to take part. Click the link below to get involved! ๐Ÿ’œ๐Ÿ‘‡

#MSUK #MultipleSclerosis #Research

ms-uk.org/blog/can-you...

21.10.2025 11:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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An interesting new study on pregnancy and MS

New study explores how pregnancy affects MS ๐Ÿคฐ๐Ÿงฌ

Researchers at Queen Mary University of London are investigating why many women with MS experience fewer relapses during pregnancy.

๐Ÿ’œ Read more and find out how to get involved here - ms-uk.org/blog/an-inte...

08.08.2025 10:11 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’œ Have questions about MS treatments? Weโ€™re here to support you.

The MS-UK Helpline can help you understand your options, talk through how they work, and signpost you to trusted information.

๐Ÿ“ž Call 0800 783 0518
๐Ÿ“ง Email info@ms-uk.org
๐Ÿ’ฌ WhatsApp 07824 708897

01.08.2025 09:20 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Choices Pregnancy survey

Have you been pregnant since being diagnosed with MS? ๐Ÿคฐ

We're updating our Pregnancy and MS Choices booklet and would love your input.

If you're happy to share your experience, please take a moment to fill out our short survey. ๐Ÿ’œ

๐Ÿ‘‰ ms-uk.org/choices-preg...

#MultipleSclerosis #MSCommunity

01.08.2025 09:19 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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New Booking - Skyline Events Skyline Events

Last chance to ride for MS-UK! ๐Ÿšดโ€โ™€๏ธ

Take on the iconic London to Brighton Cycle this September and help support people affected by multiple sclerosis ๐Ÿ’œ

๐Ÿ“… Event date - Sunday 14 September 2025
โณ Deadline to sign up - Friday 08 August

booking.skylineevents.co.uk/book/v2k46kp...

01.08.2025 09:18 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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MS-UK educates DWP professionals about MS

We recently trained 360 Department for Work and Pensions professionals to help them better understand multiple sclerosis (MS) and to equip them with the tools to support members of the MS community.

Get in touch at elearning@ms-uk.org or call 01206 226500

ms-uk.org/news/ms-uk-e...

01.08.2025 09:17 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Managing stress when you have MS The study found that people who experienced these events were 17-30% more likely to develop MS, with the strongest association seen in the five years before symptoms began. Interestingly, women appeared to be more affected by stress-related MS risk than men.

Living with MS can come with extra pressures, and stress can make things feel even harder. ๐Ÿ’œ

In our latest blog, we explore how stress may affect MS symptoms, why itโ€™s important to spot the early signs, and some practical ways to feel more in control.

ms-uk.org/blog/managin...

01.08.2025 09:15 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Breakthrough early warning biomarker for MS relapse found

MS News - Breakthrough early warning biomarker for MS relapse found

A new study has confirmed that serum neurofilament light chain (sNfL), a blood-based biomarker, can predict relapses in multiple sclerosis (MS) up to a year before symptoms appear.

ms-uk.org/news/breakth...

27.06.2025 10:47 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Life is for Living! Meet Will

๐Ÿ’œ 'One of my favourite quotes is, โ€œJust because I could do it yesterday doesnโ€™t mean I can do it today, but just because I canโ€™t do it today doesnโ€™t mean I canโ€™t do it tomorrow.โ€' - Will

#LifeIsForLiving #MSUKSupport #MSCommunity #MSStories #MultipleSclerosis

ms-uk.org/blog/life-is...

27.06.2025 10:46 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Beating MS fatigue Fatigue and MS often go hand-in-hand. In fact, fatigue is one of the most common and challenging symptoms of multiple sclerosis (MS).

๐Ÿ’ค Beating MS fatigue

In our latest living well with MS blog, we take a closer look at MS fatigue, what causes it, and practical, evidence-based ways to ease its impact on daily life.

#LivingWellWithMS #MSfatigue #MultipleSclerosis #MS #MSUK

ms-uk.org/blog/beating...

27.06.2025 10:45 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Rabiah shares what helps her live fully with MS โ€“ from walking around London when she can, to learning new ways to manage symptoms and shift her mindset. ๐Ÿ’œ

Right now, sheโ€™s taking part in one of MS-UKโ€™s mindfulness courses.

Comment below one thing you are looking forward to this week! ๐Ÿ’œ

#MS

03.06.2025 11:00 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ—“๏ธ Coming up in June - MS-UK's online activities

This month includes
๐Ÿง˜ Qigong, chair yoga, and guided meditation with Tracy Harris
๐Ÿ’ช Weekly accessible exercise sessions with Alan Pearson
๐Ÿง  Masterclasses on balance
And lots more!

www.ms-uk.org/ms-uk-online...

03.06.2025 10:52 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

News - New study identifies key factors linked to faster MS progression ๐Ÿ‘‡

A recent analysis of data from over 42,000 people with multiple sclerosis (MS) has highlighted several factors that may significantly increase the risk of disease progression.

www.ms-uk.org/news/new-stu...

03.06.2025 10:50 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Join MS-UK, the Royal College of Nursing Neuroscience Forum and the Neurology Academy for a free webinar designed to help you feel more confident and equipped to support people living with multiple sclerosis (MS).

๐Ÿ—“ 22 May 2025
๐Ÿ•“ 4pm - 5.15pm (BST)
๐Ÿ“ Online via Zoom

ms-uk.org/blog/calling...

13.05.2025 09:33 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Thyroid hormone linked to MS development

๐Ÿงช A new study has found a potential link between thyroid hormone levels and the risk of developing MS.

The study suggests that elevated levels of the thyroid hormone free thyroxine (FT4) are linked to an increased the risk of developing multiple sclerosis (MS).

ms-uk.org/news/thyroid...

09.05.2025 09:05 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Life is for living! Meet Rebecca

๐Ÿ’œ 'Life is indeed worth living, and though I have MS, I am still Becca โ€“ just Becca who happens to have MS.'

New mum Rebecca shares how MS-UKโ€™s support helped her feel informed, empowered, and hopeful about her future.

๐Ÿ‘‰ Click the link below to read her story.
ms-uk.org/blog/life-is...

09.05.2025 09:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Study finds specific gut bacteria linked to MS

News - Study finds specific gut bacteria linked to MS ๐Ÿฆ 
New research suggests that certain gut bacteria may raise the risk of developing multiple sclerosis (MS), opening up potential new paths for treatment.

ms-uk.org/news/study-f...

09.05.2025 09:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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New biomarker to predict MS progression discovered

News - New biomarker to predict MS progression discovered

A new study has identified a specific type of brain lesion, known as a broad rim lesion (BRL), as a potential marker for rapid progression in multiple sclerosis (MS).

ms-uk.org/news/new-bio...

09.05.2025 09:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’œ Life is for living โ€“ and no one knows that better than the MS community.

MS-UK supports people living with MS every day so they can choose how they want to live with MS.

๐Ÿ‘‰ What does life is for living mean to you? Tell us in the comments or tag us using #LifeIsForLiving

09.05.2025 09:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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