Making the US Olympic Team does not require you to be a cheerleader for the Trump administration.

Empowering Patient Organizations and Patient Involvement in Guidelines and International Societies Meetings: The Example of Incontinence Urinary incontinence represents one of the most prevalent yet under-recognized chronic health conditions worldwide and also a challenging public healt…

Empowering Patient Organizations and Patient Involvement in Guidelines and International Societies Meetings: The Example of Incontinence - ScienceDirect www.sciencedirect.com/science/arti...

Assessing patient engagement approaches in the development of patient reported outcome measures - Journal of Patient-Reported Outcomes Journal of Patient-Reported Outcomes - Guidelines for the development and validation of patient-reported outcome measures recommend incorporating patient input to ensure relevance and...

Assessing patient engagement approaches in the development of patient reported outcome measures | Journal of Patient-Reported Outcomes | Springer Nature Link link.springer.com/article/10.1...

Evaluation and lessons learned regarding Public Involvement: a panel advising on an Alzheimer’s disease and related dementia cohort study - Research Involvement and Engagement Research Involvement and Engagement - Public involvement (PI) in research is increasingly requested, yet systematic evaluation is limited. This study evaluates whether a panel advising an...

Evaluation and lessons learned regarding Public Involvement: a panel advising on an Alzheimer’s disease and related dementia cohort study | Research Involvement and Engagement | Springer Nature Link link.springer.com/article/10.1...

My first remarks since being arrested last night.

Movie review from Guardian on Melania.

The value of patient experience in multiple sclerosis research The number of therapies approved to treat multiple sclerosis has grown substantially over the past 20 years, yet many people living with the disease continue to have symptoms that are not adequately c...

The value of patient experience in multiple sclerosis research - The Lancet Neurology www.thelancet.com/journals/lan...

I won’t stop reporting the truth. The First Amendment is the bedrock of our democracy, and I’ll continue to fight to protect it 🤝🏾🇺🇸

God bless these people.

JANE FONDA: “I know Don Lemon. My husband created CNN. And I will fight for their right to speak… they arrested the wrong Don. This is how autocrats act. We can’t fall for it.”

The NIH has lost its scientific integrity. So we left “We can no longer lend our credibility to an organization that has lost its integrity,” write four scientists and administrators who recently resigned from the NIH.

“We can no longer lend our credibility to an organization that has lost its integrity… each of us independently reached the decision to resign in protest of the actions of an administration that treats science not as a process for building knowledge, but as a means to advance its political agenda.”

“The democratic will of the Venezuelan people” is not even remotely a consideration of the Trump Admin. It is completely irrelevant to Trump.

Paul Nurse in conversation with Edith Heard Standing up for science, the art of leadership and cups of tea with the Prime Minister - Paul Nurse reflects on his years as CEO of the Francis Crick Institute with new director Edith Heard.

“We need to take on the defence of science for the world.”

In a wide-ranging and frank conversation, Paul Nurse reflects on his years leading the Francis Crick Institute with our new director, Edith Heard.

www.crick.ac.uk/news/2025-12...

A book about Dolly Parton on a blue book trolley. It's Dolly on a trolley.

You've heard of Elf on the Shelf but how about

Be part of life-changing research Find out how you can take part in health and care research through Be Part of Research #BePartofResearch

@swallowsgroup #HNCCONF2025
Check out Be Part of Research to find out how to take part and get involved bepartofresearch.nihr.ac.uk

Watch the moment diplomats walk out as Israeli PM speaks at UN - Sky News

What the science really says about autism – and why Trump is so wrong - The i Paper

Disillusioned Trump Fans Respond to Him on Epstein Truth Social was on fire responding to Trump's Epstein post.

Trump has received over 45,000 angry replies from MAGA to his Truth Social post on Epstein. Here are some of the replies that received the most likes. open.substack.com/pub/meidasto...

Empowering-Patients- through-Clinical-Trials- 3.13.25_clean.pdf aspe.hhs.gov/sites/defaul...

Hope from FutureTrials25 Last month, in July, I had the absolute pleasure of attending the FutureTrials25 event hosted by the Centre for Clinical Trials at the University of Galway. It was a day filled with medical discove…

Some thoughts about my recent visit to @universityofgalway.bsky.social involveddotblog.wordpress.com/2025/07/14/h...

Registration is now open for Where's the Patient Voice 2025!

Patient’s Voice 2025: 3rd International Conference | UBC Health health.ubc.ca/events/patie...

I’m still curious how he knows so much about what’s in the files.

World’s premier cancer institute faces crippling cuts and chaos | CNN The Trump administration’s broadsides against scientific research have caused unprecedented upheaval at the National Cancer Institute, the storied federal government research hub that has spearheaded ...

www.cnn.com/2025/07/08/h...

Tragedy strikes Texas and some experts blame Trump cuts for the devastation Local offices of the National Weather Service reportedly had critical staff vacancies.

The tragedy is particularly chilling in light of a May open letter issued by five former NWS directors, who wrote that agency staff “will have an impossible task to continue its current level of services” in light of the Trump cuts.

‘The vehicle suddenly accelerated with our baby in it’: the terrifying truth about why Tesla’s cars keep crashing Elon Musk is obsessive about the design of his supercars, right down to the disappearing door handles. But a series of shocking incidents – from drivers trapped in burning vehicles to dramatic stops o...

www.theguardian.com/technology/2...

If everyone who follows us on Bluesky got another person to follow us on Bluesky then we'd have even more followers on Bluesky.

Who do you know on Bluesky that doesn't follow us on Bluesky?

A photograph of a flock of sheep pouring through a gap in a stone wall to a new field. The old field is labelled Twitter and the new field is labelled Bluesky.

We now have more than 18000 followers on Bluesky. Thanks to everyone who has followed us here. It's a great place to be. ❤️

That's also more followers than we have on Facebook or Instagram. 👏

Trump canceled the briefing to Congress on the Iran bombings at the last minute and provided no explanation, but the leaked report saying the operation was not as successful as he claimed is definitely fake news because the two things can’t possibly be connected.

A Delphi survey to identify a core set of items for sharing the results of randomised trials with patients and the public | NIHR Oxford Biomedical Research Centre

Reporting trial results to those who take part in health research! What core elements should be included in these reports? oxfordbrc.nihr.ac.uk/pair/a-delph...