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@dobe1.bsky.social

Patient advocate after throat cancer in 1995: From Ayr to Blogger, Facilitator, Speaker with an OBE and a Professorship (Hon) for University of Galway

29 Followers  |  27 Following  |  30 Posts  |  Joined: 12.11.2024  |  2.4724

Latest posts by dobe1.bsky.social on Bluesky

Watch the moment diplomats walk out as Israeli PM speaks at UN - Sky News

26.09.2025 15:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

What the science really says about autism โ€“ and why Trump is so wrong - The i Paper

23.09.2025 10:57 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Disillusioned Trump Fans Respond to Him on Epstein Truth Social was on fire responding to Trump's Epstein post.

Trump has received over 45,000 angry replies from MAGA to his Truth Social post on Epstein. Here are some of the replies that received the most likes. open.substack.com/pub/meidasto...

14.07.2025 12:58 โ€” ๐Ÿ‘ 3280    ๐Ÿ” 926    ๐Ÿ’ฌ 377    ๐Ÿ“Œ 78

Empowering-Patients- through-Clinical-Trials- 3.13.25_clean.pdf aspe.hhs.gov/sites/defaul...

14.07.2025 17:35 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Hope fromย FutureTrials25 Last month, in July, I had the absolute pleasure of attending the FutureTrials25ย eventย hosted by theย Centre for Clinical Trials at the University of Galway. It was a day filled with medical discoveโ€ฆ

Some thoughts about my recent visit to @universityofgalway.bsky.social involveddotblog.wordpress.com/2025/07/14/h...

14.07.2025 18:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Patientโ€™s Voice 2025: 3rd International Conference About the Conference

Registration is now open for Where's the Patient Voice 2025!

Patientโ€™s Voice 2025: 3rd International Conference | UBC Health health.ubc.ca/events/patie...

08.07.2025 16:05 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Iโ€™m still curious how he knows so much about whatโ€™s in the files.

08.07.2025 17:30 โ€” ๐Ÿ‘ 13173    ๐Ÿ” 2265    ๐Ÿ’ฌ 1262    ๐Ÿ“Œ 218
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Worldโ€™s premier cancer institute faces crippling cuts and chaos | CNN The Trump administrationโ€™s broadsides against scientific research have caused unprecedented upheaval at the National Cancer Institute, the storied federal government research hub that has spearheaded ...

www.cnn.com/2025/07/08/h...

08.07.2025 21:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Tragedy strikes Texas and some experts blame Trump cuts for the devastation Local offices of the National Weather Service reportedly had critical staff vacancies.

The tragedy is particularly chilling in light of a May open letter issued by five former NWS directors, who wrote that agency staff โ€œwill have an impossible task to continue its current level of servicesโ€ in light of the Trump cuts.

07.07.2025 22:06 โ€” ๐Ÿ‘ 861    ๐Ÿ” 343    ๐Ÿ’ฌ 43    ๐Ÿ“Œ 20
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โ€˜The vehicle suddenly accelerated with our baby in itโ€™: the terrifying truth about why Teslaโ€™s cars keep crashing Elon Musk is obsessive about the design of his supercars, right down to the disappearing door handles. But a series of shocking incidents โ€“ from drivers trapped in burning vehicles to dramatic stops o...

www.theguardian.com/technology/2...

05.07.2025 06:54 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

If everyone who follows us on Bluesky got another person to follow us on Bluesky then we'd have even more followers on Bluesky.

Who do you know on Bluesky that doesn't follow us on Bluesky?

24.06.2025 11:47 โ€” ๐Ÿ‘ 67    ๐Ÿ” 20    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 8
A photograph of a flock of sheep pouring through a gap in a stone wall to a new field. The old field is labelled Twitter and the new field is labelled Bluesky.

A photograph of a flock of sheep pouring through a gap in a stone wall to a new field. The old field is labelled Twitter and the new field is labelled Bluesky.

We now have more than 18000 followers on Bluesky. Thanks to everyone who has followed us here. It's a great place to be. โค๏ธ

That's also more followers than we have on Facebook or Instagram. ๐Ÿ‘

24.06.2025 10:40 โ€” ๐Ÿ‘ 509    ๐Ÿ” 43    ๐Ÿ’ฌ 9    ๐Ÿ“Œ 2

Trump canceled the briefing to Congress on the Iran bombings at the last minute and provided no explanation, but the leaked report saying the operation was not as successful as he claimed is definitely fake news because the two things canโ€™t possibly be connected.

25.06.2025 02:18 โ€” ๐Ÿ‘ 2845    ๐Ÿ” 462    ๐Ÿ’ฌ 78    ๐Ÿ“Œ 11
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A Delphi survey to identify a core set of items for sharing the results of randomised trials with patients and the public | NIHR Oxford Biomedical Research Centre

Reporting trial results to those who take part in health research! What core elements should be included in these reports? oxfordbrc.nihr.ac.uk/pair/a-delph...

27.05.2025 20:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Scientists reel as turmoil roils National Science Foundation The National Science Foundation, a major government funder of basic science research, is being shaken up with over 1,000 grants already terminated and the White House looking to halve its budget

The National Science Foundation, a major government funder of basic science research, is being shaken up with over 1,000 grants already terminated and the White House looking to halve its budget.

02.05.2025 18:54 โ€” ๐Ÿ‘ 3236    ๐Ÿ” 1364    ๐Ÿ’ฌ 198    ๐Ÿ“Œ 133
Advocacy โ€“ Patient Led Research Collaborative

PLRC joined other research organizations to provide statements for yesterdayโ€™s Senate Appropriations hearing, Biomedical Research: Keeping Americaโ€™s Edge in Innovation.

Our statement is under US Congress section here: patientresearchcovid19.com/advocacy/ 1/

01.05.2025 22:17 โ€” ๐Ÿ‘ 10    ๐Ÿ” 5    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 2
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โ€œScience uncovered the truth of why my children died, and set me freeโ€ After twenty years in jail, convicted of killing her four children, Kathleen Folbigg is sharing her experience of being falsely accused alongside the team of scientists and lawyers who used advances i...

Watch โ€˜Falsely Accused: Justice by Genomicsโ€™ held at the Crick this week, with experts in science, medicine and the law discussing the case of Kathleen Folbigg and the role of genomic investigation in unexplained child deaths.

Catch up on all the expert talks:
www.crick.ac.uk/news/2025-04...

02.05.2025 15:41 โ€” ๐Ÿ‘ 10    ๐Ÿ” 6    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1
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If you're a military veteran at risk of foreclosure, NPR wants to hear from you The VA has abruptly ended the only low-interest, affordable loan modification option for thousands of vets who are behind on their mortgages. We want to hear your story.

The VA has abruptly ended the only low-interest, affordable loan modification option for thousands of vets who are behind on their mortgages.

If you're a vet at risk of foreclosure, we want to hear your story.

02.05.2025 18:30 โ€” ๐Ÿ‘ 19247    ๐Ÿ” 8834    ๐Ÿ’ฌ 879    ๐Ÿ“Œ 665
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How do we best work together in Governance of health research? Vocal Director Bella and public partner Derek share a new initiative and reflections on public involvement in governance of health research

What does Patient, Public Involvement look like in Research Governance? What is it like to involve the public in such strategic roles? How might we better involve research with communities?
Help us find some answers wearevocal.org/wlrs/listen-... @letsgetvocal @NIHRinvolvement

06.04.2025 09:28 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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When our partners grow and prosper, Europe grows too.

This is how a partnership should be.

This is our vision.

And this the Global Gateway method.

My remarks at the press conference โ†’ europa.eu/!796TQK

04.04.2025 13:28 โ€” ๐Ÿ‘ 4819    ๐Ÿ” 794    ๐Ÿ’ฌ 119    ๐Ÿ“Œ 24
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As more patients/members of the public get involved with health research boards and governance - what does it mean? wearevocal.org/wlrs/listen-... [wearevocal.org]

04.04.2025 09:10 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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I posted the video over 2 years ago. People thought he was bluffing I guess.

03.04.2025 11:39 โ€” ๐Ÿ‘ 19302    ๐Ÿ” 5476    ๐Ÿ’ฌ 967    ๐Ÿ“Œ 324
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Welcome to Idiocracy.

03.04.2025 00:41 โ€” ๐Ÿ‘ 20037    ๐Ÿ” 5252    ๐Ÿ’ฌ 1213    ๐Ÿ“Œ 587
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The universal tariffs announced by the US are a major blow to businesses and consumers worldwide.

Europe is prepared to respond.

We'll always protect our interests and values.
We're also ready to engage.

And to go from confrontation to negotiation.

Full statement
โ†’ europa.eu/!mHxFMh

03.04.2025 04:13 โ€” ๐Ÿ‘ 3494    ๐Ÿ” 760    ๐Ÿ’ฌ 175    ๐Ÿ“Œ 70
ENGAGED; Co-Creating Ireland's Public Involvement in Open Research Roadmap. ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.  By making research more open, we believe that we can build wider communities of support for researchers, and we can make research more useful and usable. We believe that, where possible, research should be more accessible, more transparent, and a shared resource for the benefit of all who need it.

ENGAGED; Co-Creating Ireland's Public Involvement in Open Research Roadmap. ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges. By making research more open, we believe that we can build wider communities of support for researchers, and we can make research more useful and usable. We believe that, where possible, research should be more accessible, more transparent, and a shared resource for the benefit of all who need it.

ENGAGED; Co-Creating Ireland's Public Involvement in Open Research Roadmap.
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges

#OpenResearch #PublicEngagement

27.03.2025 15:44 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
We are running five Collective Intelligence Workshops between May and October 2025 to explore how research can better connect with peopleโ€”informing policy, supporting families, and empowering advocacy.



These workshops are central to ENGAGED, a national initiative to shape a roadmap for open and inclusive research that reflects Irelandโ€™s needs. While weโ€™re learning from international models, the focus is on co-creating solutions that work here.



Together, through the workshops, we will:

Explore how open research is working in Ireland

Identify barriers to public involvement

Shape practical, inclusive solutions



Want to take part?



 You can register your interest at the link below :

 ๐Ÿ‘‰  https://forms.office.com/e/bBpqWVNEfe



#OpenResearch #PublicEngagement #CitizenScience #SciComm

We are running five Collective Intelligence Workshops between May and October 2025 to explore how research can better connect with peopleโ€”informing policy, supporting families, and empowering advocacy. These workshops are central to ENGAGED, a national initiative to shape a roadmap for open and inclusive research that reflects Irelandโ€™s needs. While weโ€™re learning from international models, the focus is on co-creating solutions that work here. Together, through the workshops, we will: Explore how open research is working in Ireland Identify barriers to public involvement Shape practical, inclusive solutions Want to take part? You can register your interest at the link below : ๐Ÿ‘‰ https://forms.office.com/e/bBpqWVNEfe #OpenResearch #PublicEngagement #CitizenScience #SciComm

Weโ€™re hosting 5 workshops (Mayโ€“Oct 2025) to co-create Irelandโ€™s open research roadmap. Researchers, policymakers, NGOs & communities. Help shape real impact

Register your interest at the link below :

๐Ÿ‘‰ forms.office.com/e/bBpqWVNEfe

#OpenResearch #PublicEngagement #CitizenScience #SciComm

01.04.2025 11:15 โ€” ๐Ÿ‘ 5    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Dark Pence is back.

02.04.2025 23:48 โ€” ๐Ÿ‘ 42706    ๐Ÿ” 9945    ๐Ÿ’ฌ 1682    ๐Ÿ“Œ 531
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Interested in Trials Methodology Research with Patient, Public Involvement. Join us on a 'roadtrip' eventbrite.ie/e/roadmap-fo...

03.04.2025 08:16 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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