Watch the moment diplomats walk out as Israeli PM speaks at UN - Sky News
26.09.2025 15:02 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0@dobe1.bsky.social
Patient advocate after throat cancer in 1995: From Ayr to Blogger, Facilitator, Speaker with an OBE and a Professorship (Hon) for University of Galway
Watch the moment diplomats walk out as Israeli PM speaks at UN - Sky News
26.09.2025 15:02 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0What the science really says about autism โ and why Trump is so wrong - The i Paper
23.09.2025 10:57 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Trump has received over 45,000 angry replies from MAGA to his Truth Social post on Epstein. Here are some of the replies that received the most likes. open.substack.com/pub/meidasto...
14.07.2025 12:58 โ ๐ 3280 ๐ 926 ๐ฌ 377 ๐ 78Empowering-Patients- through-Clinical-Trials- 3.13.25_clean.pdf aspe.hhs.gov/sites/defaul...
14.07.2025 17:35 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0Some thoughts about my recent visit to @universityofgalway.bsky.social involveddotblog.wordpress.com/2025/07/14/h...
14.07.2025 18:03 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Registration is now open for Where's the Patient Voice 2025!
Patientโs Voice 2025: 3rd International Conference | UBC Health health.ubc.ca/events/patie...
Iโm still curious how he knows so much about whatโs in the files.
08.07.2025 17:30 โ ๐ 13173 ๐ 2265 ๐ฌ 1262 ๐ 218The tragedy is particularly chilling in light of a May open letter issued by five former NWS directors, who wrote that agency staff โwill have an impossible task to continue its current level of servicesโ in light of the Trump cuts.
07.07.2025 22:06 โ ๐ 861 ๐ 343 ๐ฌ 43 ๐ 20If everyone who follows us on Bluesky got another person to follow us on Bluesky then we'd have even more followers on Bluesky.
Who do you know on Bluesky that doesn't follow us on Bluesky?
A photograph of a flock of sheep pouring through a gap in a stone wall to a new field. The old field is labelled Twitter and the new field is labelled Bluesky.
We now have more than 18000 followers on Bluesky. Thanks to everyone who has followed us here. It's a great place to be. โค๏ธ
That's also more followers than we have on Facebook or Instagram. ๐
Trump canceled the briefing to Congress on the Iran bombings at the last minute and provided no explanation, but the leaked report saying the operation was not as successful as he claimed is definitely fake news because the two things canโt possibly be connected.
25.06.2025 02:18 โ ๐ 2845 ๐ 462 ๐ฌ 78 ๐ 11Reporting trial results to those who take part in health research! What core elements should be included in these reports? oxfordbrc.nihr.ac.uk/pair/a-delph...
27.05.2025 20:04 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0The National Science Foundation, a major government funder of basic science research, is being shaken up with over 1,000 grants already terminated and the White House looking to halve its budget.
02.05.2025 18:54 โ ๐ 3236 ๐ 1364 ๐ฌ 198 ๐ 133PLRC joined other research organizations to provide statements for yesterdayโs Senate Appropriations hearing, Biomedical Research: Keeping Americaโs Edge in Innovation.
Our statement is under US Congress section here: patientresearchcovid19.com/advocacy/ 1/
Watch โFalsely Accused: Justice by Genomicsโ held at the Crick this week, with experts in science, medicine and the law discussing the case of Kathleen Folbigg and the role of genomic investigation in unexplained child deaths.
Catch up on all the expert talks:
www.crick.ac.uk/news/2025-04...
The VA has abruptly ended the only low-interest, affordable loan modification option for thousands of vets who are behind on their mortgages.
If you're a vet at risk of foreclosure, we want to hear your story.
What does Patient, Public Involvement look like in Research Governance? What is it like to involve the public in such strategic roles? How might we better involve research with communities?
Help us find some answers wearevocal.org/wlrs/listen-... @letsgetvocal @NIHRinvolvement
When our partners grow and prosper, Europe grows too.
This is how a partnership should be.
This is our vision.
And this the Global Gateway method.
My remarks at the press conference โ europa.eu/!796TQK
As more patients/members of the public get involved with health research boards and governance - what does it mean? wearevocal.org/wlrs/listen-... [wearevocal.org]
04.04.2025 09:10 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I posted the video over 2 years ago. People thought he was bluffing I guess.
03.04.2025 11:39 โ ๐ 19302 ๐ 5476 ๐ฌ 967 ๐ 324Welcome to Idiocracy.
03.04.2025 00:41 โ ๐ 20037 ๐ 5252 ๐ฌ 1213 ๐ 587The universal tariffs announced by the US are a major blow to businesses and consumers worldwide.
Europe is prepared to respond.
We'll always protect our interests and values.
We're also ready to engage.
And to go from confrontation to negotiation.
Full statement
โ europa.eu/!mHxFMh
ENGAGED; Co-Creating Ireland's Public Involvement in Open Research Roadmap. ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges. By making research more open, we believe that we can build wider communities of support for researchers, and we can make research more useful and usable. We believe that, where possible, research should be more accessible, more transparent, and a shared resource for the benefit of all who need it.
ENGAGED; Co-Creating Ireland's Public Involvement in Open Research Roadmap.
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges
#OpenResearch #PublicEngagement
We are running five Collective Intelligence Workshops between May and October 2025 to explore how research can better connect with peopleโinforming policy, supporting families, and empowering advocacy. These workshops are central to ENGAGED, a national initiative to shape a roadmap for open and inclusive research that reflects Irelandโs needs. While weโre learning from international models, the focus is on co-creating solutions that work here. Together, through the workshops, we will: Explore how open research is working in Ireland Identify barriers to public involvement Shape practical, inclusive solutions Want to take part? You can register your interest at the link below : ๐ https://forms.office.com/e/bBpqWVNEfe #OpenResearch #PublicEngagement #CitizenScience #SciComm
Weโre hosting 5 workshops (MayโOct 2025) to co-create Irelandโs open research roadmap. Researchers, policymakers, NGOs & communities. Help shape real impact
Register your interest at the link below :
๐ forms.office.com/e/bBpqWVNEfe
#OpenResearch #PublicEngagement #CitizenScience #SciComm
Dark Pence is back.
02.04.2025 23:48 โ ๐ 42706 ๐ 9945 ๐ฌ 1682 ๐ 531Interested in Trials Methodology Research with Patient, Public Involvement. Join us on a 'roadtrip' eventbrite.ie/e/roadmap-fo...
03.04.2025 08:16 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0