Carole Bruce

#pwME reminder that Savannah needs our help.

Please email the CEO of the hospital she is in, ben.travis@nhs.net, with just the title “Restore pain relief to Savannah NOW”

Also please keep donating to and sharing her fundraiser.

This is so important. Savannah is on her own in the most terrible circumstances. So far the consultants (not specialists in #ME as there are non) are determinedly ignoring advice from Drs who do understand what treatment she should have. Spread the word. It’s literally a life and death situation.

@francesryan.bsky.social @goodlawproject.org
Are you aware of the below? NHS is slowly starving a severe #ME/CFS patient to death. Ofc it's a woman.

Very similar to how Maeve Boothby died 5 years ago, and despite a prevention of future deaths report, nothing has changed.

Can you help in any way?

Ex GB News editorial director John McAndrew now the BBC Director of News Programmes
Robbie Gibb was an editorial advisor for GB News prior to its launch in 2021 & is now on the BBC board & a member of the BBC's editorial guidelines and standard committee
So Farage is their guy!
#BBC #Reform

Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation.

The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?

Thank you so much Tessa

I was on the fence for too long. Gaza was the last straw for me and I’m now happily ensconced in the Green Party. Such a relief to watch Labour from more of a distance.

Palestine Action activists cleared of aggravated burglary at Israeli defence firm site None of the six activists were convicted of any offence over break-in at Elbit Systems factory near Bristol in 2024

Still reckon they're terrorists, Mr Starmer?
www.theguardian.com/uk-news/2026...

Mandelson’s Fifth Column The British government’s business department exists to undermine democracy.

1. In 2009 I wrote this. I argued that Peter Mandelson's department “functions as a fifth column within government, working for corporations to undermine democracy and the public interest.”
This thread explains what I saw, and reaches a startling conclusion.🧵
www.monbiot.com/2009/05/04/m...

The thing is, you didn't have to be Nostradamus to see it. You just had to be independent of the ultra-rich. Unfortunately, the great majority of the media is in the plutocrats' pockets. So the people pointing it out are shunned. In 2009 I tried and tried to get the BBC to pick this up. But ...⛔🤐

If this is what's going on now, just imagine the levels of corruption we'd descend into if the Farage cult got anywhere near Number 10.

Reform UK Ltd. are basically a front for foreign and offshore wealth and oligarchy.

Britain would become nothing more than an ATM.

It's rare to see how lobbyists operate. But the Epstein-Mandelson correspondence shows us what happens all the time: plutocrats and government ministers conspiring against the public interest. This is why all lobbying should be in the public domain, but despite Labour and Con promises, it's not. 🧵

A Green victory in the Gorton and Denton by-election would feel like divine justice.

Oh, and
4. Despite the demand for proportional representation from Labour members, Starmer won't change
our ridiculous First Past the Post system. So he's in no position to blame anyone for "splitting the vote".
share.google/buxD1tZ5BfKk...

ICE Begins Buying ‘Mega’ Warehouse Detention Centers Across US Plans for such centers and jails in nearly two dozen communities have sparked protests over suitability, proximity to homes and schools.

BIG news from @bloomberg.com, which confirms that ICE has gone ahead and *purchased* multiple commercial warehouses with the aim of converting them into mass detention camps.

This is likely to be the big detention story of 2026 — literal warehousing of people.
www.bloomberg.com/news/feature...

YouTube video by Bruce Springsteen Bruce Springsteen - Streets Of Minneapolis (Official Audio)

I wrote this song on Saturday, recorded it yesterday and released it to you today in response to the state terror being visited on the city of Minneapolis. It’s dedicated to the people of Minneapolis, our innocent immigrant neighbors and in memory of Alex Pretti and Renee Good.

Stay free

An educational graphic from Long Covid Advocacy titled "LATEST RESEARCH: LONG COVID - DISRUPTED BRAIN CONNECTIVITY." The image features a blue, translucent digital silhouette of a human head overlaid with glowing neural network lines and a complex frequency waveform. Below the image, text states: "People with ME and Long Covid show disrupted brain connectivity during cognitive fatigue, unlike healthy controls who increase network coordination. Altered subcortical and hippocampal connections correlate with cognitive symptoms, motivation and illness duration." The source is cited as Inderyas et al, 2026, Trans Med.

🧪New research from Marshall-Gradisnik and team in Australia that shows altered brain connectivity in Long Covid and ME patients. Subjects were scanned using Tesla-7 MRI whilst doing mental tasks.

Forensic dive into the workings of the Labour Party. It’s not pretty!

An informational graphic titled "SHARED AUTONOMIC & NEUROVASCULAR DYSFUNCTION" under the categories "LATEST RESEARCH" and "ME/LONG COVID." The center features a photo of two researchers in a laboratory wearing white coats, hairnets, and blue gloves, carefully examining a blue liquid in a test tube. Below the image, text reads: "This study shows that Long COVID and ME/CFS share a common autonomic and neurovascular profile, including reduced cerebral blood flow, autonomic dysfunction, and small fiber neuropathy, supporting a shared underlying pathophysiology rather than distinct diseases." The bottom right attributes the source to "Novak et al, 2026, Plos One," and the bottom center features the "LONG COVID ADVOCACY" logo.

1/ A new study from Brigham and Women’s Faulkner Hospital, led by prominent researchers Peter Novak, David Systrom, and colleagues, compared 143 Long Covid, 170 ME/CFS, 73 healthy controls, and 290 hEDS patients to map shared autonomic and neurovascular dysfunction. 🧵

The UK government didn't want you to see this report on ecosystem collapse. I'm not surprised | George Monbiot It took an FOI request to bring this national security assessment to light. For ‘doomsayers’ like us, it is the ultimate vindication, says Guardian columnist George Monbiot

Please spread this far and wide, as stories don't get much bigger than this. When the government blocks even the intelligence services from telling us we're heading for environmental catastrophe, you know we have a problem. A very big problem.
Thank you.
www.theguardian.com/commentisfre...

A graphic with a brown background at the top featuring white text that reads "Wessely, Mendenhall and the Reproduction of Medical Power," followed by the URL "LONGCOVIDADVOCACY.SUBSTACK.COM" and the name "Long Covid Advocacy" in italics. Below the text is a classical, Pre-Raphaelite style painting depicting several figures in ornate, golden, and white robes with halos, surrounding a central figure in a vibrant red cloak who is kneeling in a ceremonial or religious setting.

👇New Article

There has been discussion about Simon Wessely’s interference in an article of Emily Mendenhall’s which impacted her book Invisible Illness

Here we put this issue on the record and Mendenhall’s response to community concerns about her book

#longcovid #pwME

🗞️🖇️ tinyurl.com/54mc7rks

Thank you for following this up. In the interests of the patient community it would be great if @emendenhall.bsky.social would publish all 17 pages of Wessely’s critique.

Does anyone know what is happening with #justice4ME ? I remember donating as did many other #pwME but haven’t heard since. It might be useful in the case of Savannah. #ME

Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical ‘scandal’ The co-lead of the world’s largest ever genetic study into ME calls for a radical change in how society deals with the disease.

A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️
theconversation.com/ignored-blam...

Nigel Farage’s trip to Davos hosted and paid for by family trust of billionaire Trust says Reform UK leader was invited to WEF event by London-based venture capitalist as an honorary adviser

Farage has been touring Davos all week pledging to “fight the globalists” - all funded by a $10 billion trust run on behalf of an Iranian billionaire.

www.theguardian.com/politics/202...

TW: Medical neglect, severe #ME/CFS

An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.

Oh no! I’m so sorry. It’s terrible that we are all still at the mercy of people who just fall back on, ‘it’s all in your head’ and don’t try to find different tests, be more inquisitive.xx

1. This short thread is about the issue that dominates almost every aspect of politics, and causes or exacerbates most of our problems: the extreme wealth of a small number of people. Here’s the amazing thing: almost the entire political class aligns with the ultra-rich against the rest. 🧵1/10

Listening to Amol Rajan talking to Tom Holland on his Radical podcast - and quite surprised to hear this history of Christianity as a history of ideas - completely separate from economics and politics.

@tessamunt.bsky.social I wonder if you can help in this situation or point @thecanaryuk.bsky.social towards someone who could step in and move this situation forward possibly through mediation.