All towns should have poutine! (I wish we could get cheese curds in Australia)
10.01.2026 22:17 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0@wingspan.bsky.social
Addicted to matcha latte ๐ต and reforming health systems โ๐ป All things #LivedExperienceLeadership | Vice-Chair @ischp.bsky.social | Associate Professor #ourANU School of Medicine and Psychology
All towns should have poutine! (I wish we could get cheese curds in Australia)
10.01.2026 22:17 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Feel free to check out this paper about #Aphantasia, @notcorry.sciguys.co.uk & @lukecutforth.bsky.social -- it uses a SciGuys transcript as part of the data. Hope you enjoy how meta that is -- SciGuys being used to produce scientific knowledge -- and thanks for giving us a lot to think about!
06.01.2026 01:59 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I can't help but think how boring the world would be if our minds all 'saw' things the same way. In turn I see #aphantasia as just part of a kaleidoscope of ways that we can imagine. Personally, having phantasia sounds like it would be terribly chaotic (but I'm glad some of you enjoy it!) (4/4)
06.01.2026 01:47 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0I see a growing number of people talking about finding out they have #aphantasia as feeling like they are less-than or 'robbed' of a "richer" imagination; internalising these disordered/deficient/dehumanised tropes. (3/4)
06.01.2026 01:47 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0The International #MadStudies journal (imsj.org) was such a great outlet for this publication because of the long history of how science has colonised human psychology. Where #Aphantasia is concerned, biomedical and psychological research is now even colonising our imaginations. (2/4)
06.01.2026 01:47 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0Check out my recent publication (co-authored with my mum!) which explores how #aphantasia is often widely understood as a deficiency, a disorder, or dehumanising. Such understandings were common in social media posts, but also in scientific literature in the field. (1/4)
doi.org/10.58544/ims...
I always say ๆๅพๆฅ because I didn't know there was an English word for it. We need a word for ๆๆๅพๆฅ though... not sure if overovermorrow or overmorrowmorrow would work best...
31.12.2025 12:43 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Pretty happy finishing up the working year by being recognised in a group email as a relentless voice for lived experience leadership. Honestly feeling like I can log-off for 2025 satisfied now.
23.12.2025 23:40 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Hi @notcorry.sciguys.co.uk ๐ I just had a paper published that includes extracts of the SciGuys episode transcript on aphantasia as data. I couldn't find a SciGuys contact but would love to send you a copy! Will be sharing the details on here too in due course.
15.12.2025 10:51 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0The Eurovision vote didn't go the way I expected. Its kind of both incomprehensible but also semi-unsurprising. Honestly just devastating to know 2026 is going to be yet another year we can't enjoy celebrating music together.
04.12.2025 20:49 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Feeling a little worn out (but perhaps not surprised) that the glass ceiling in lived experience leadership we described almost a decade ago (across a range of orgs) is still going strong (as described here in service orgs)...
Doi.org/10.1080/01612840.2017.1280106
Great work...and also very sad that these glass ceilings are still so present. We looked at the glass ceiling in lived experience roles nearly a decade now and found they were present across a range of roles (i.e., not just in service roles like these but in academic, policy, and other orgs too)
04.12.2025 20:37 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I'd seen the reporting around Keira Knightley's awful response but wow the video makes it... even worse??? It's so dismissive and callous and that horrible little laugh??? like what the hell?? And the smarmy, "I'm very sorry" in the least apologetic tone I've ever heard in my life. Jfc.
16.10.2025 21:53 โ ๐ 672 ๐ 188 ๐ฌ 19 ๐ 0I just read a paper I wanted to cite in a grant application, only to get to the reference list and see that it cites what must be an AI hallucinated paper "written" by me. ๐
14.10.2025 22:14 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0I haven't managed to catch up with Days 1 and 2 of #PXP25 just yet...but it sounds like I'll need to go through some interesting conversations. This quote from Michelle particularly reminds me of some of our earlier work on pushing back on institutional barriers: doi.org/10.1111/inm....
12.09.2025 00:11 โ ๐ 3 ๐ 1 ๐ฌ 1 ๐ 0The NHMRC is seeking feedback on its Draft Statement regarding Consumer and Community Involvement. In this article, I discuss how the Statement falls short in incorporating recent research and addressing current best practice for effective consumer participation: open.substack.com/pub/livedexp...
17.08.2025 22:40 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0In the meantime, if you haven't yet, you can read the draft statement here: www.nhmrc.gov.au/about-us/pub...
But fair warning -- it devalues lived experiential expertise, and I couldn't help but wonder how we're still moving backwards in 2025.
I spent my Sunday morning writing about how the NHMRC & CHF draft Statement on Consumer and Community Involvement in Health and Medical Research draws on outdated ideas that limit consumer involvement. I'll be posting it to the Lived Experience Leadership Substack tomorrow.
17.08.2025 02:14 โ ๐ 8 ๐ 1 ๐ฌ 2 ๐ 0ไฝใใใ็ งใ็ผใใใผใฌใผๅณใใพ~~~ใ
25.07.2025 09:14 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Check out the #pechakucha I presented at ISCHP2025 about the exponential increase in patient involvement (and how we're not really as participatory as we'd like to believe) livedexperienceleadership.substack.com/p/the-expone...
25.07.2025 06:39 โ ๐ 5 ๐ 2 ๐ฌ 0 ๐ 0Nothing says US centric social media as when everyone assume pride month is in june. When thats just the case in the US. Sweden has pride month july/august and some countries have it in december.
EVERY MONTH is pride month somewhere in the world.
Bridget Brennan asking the important questions of the treasurer about Labor's commitments to Indigenous communities...to a somewhat lacklustre answer. Australians showed they don't buy into the exclusion sold by conservatives. Let's hope Labor lean in to the mandate they have been handed #AusVotes
03.05.2025 12:32 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Hey Albo, how about fixing the universities now, eh? #auspol #ausvotes #binnight
03.05.2025 12:19 โ ๐ 9 ๐ 3 ๐ฌ 0 ๐ 0Slices of matcha cheesecake in front of Antony Green and his big screen
In honour of the great work of Antony GREEN @antonygreenelec.bsky.social I made a matcha cheesecake to enjoy while sitting back watching #AusVotes outcomes.
03.05.2025 09:30 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Have a listen to this latest ISCHP podcast! I had great chat with Wendy Stainton-Rogers about where critical health psychology has been and where it might go next...
01.05.2025 11:08 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Jane is in Victoria and Chinese Victorians may consider making a public complaint to the Victorian Equal Opportunity and Human Rights Commission.
30.04.2025 00:44 โ ๐ 5 ๐ 4 ๐ฌ 0 ๐ 0Yes - a great Finnish brand. They have some Fazer cafes around the city too.
27.04.2025 09:03 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0I love Fazer chocolates and they always make a nice gift if you don't scoff them all yourself first. Your accommodation will likely have a sauna but also check what saunas are close by and go enjoy! Fave helsinki restaurant: Farang! Although not Finnish...still very tasty!
27.04.2025 09:01 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0I loved having this chat with Gareth Treharne about all things ISCHP. Have a listen to get into the ISCHP spirit ahead of #ISCHP2025 in Galway in 3 months time!!
07.04.2025 04:32 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0