Credible norms demand social analysis
Should sociology remain descriptive, or is engaging with normative questions essential to understanding social life? Sara Faris shares her reflections as part of our latest blog series.
04.06.2025 10:01 β π 0 π 2 π¬ 0 π 0
YouTube video by Loughborough University
Noonan Syndrome: Matilda's Story
m.youtube.com/watch?v=w8ZW...
29.11.2024 09:38 β π 1 π 0 π¬ 0 π 0
YouTube video by Loughborough University
Noonan Syndrome: Mark's Story
m.youtube.com/watch?v=bvKQ...
29.11.2024 09:38 β π 1 π 0 π¬ 1 π 0
YouTube video by Loughborough University
Noonan Syndrome: Andrea's Story
m.youtube.com/watch?v=vpfP...
29.11.2024 09:38 β π 0 π 0 π¬ 1 π 0
YouTube video by Loughborough University
Noonan Syndrome: "The most common rare disease you've never heard of"
The Living with Noonan Syndrome project is coming to a close soon. Check out some of our outputs here: m.youtube.com/watch?v=jA1h...
29.11.2024 09:38 β π 4 π 0 π¬ 2 π 0
Epidemiology PhD(c) @UofT; @CIHR_IRSC CGS-D & @fdnPETF Scholar; MPH @Yale; VP & Research Chair @moyamoyafoundation #KnowledgeTranslation #KnowledgeSynthesis #RareDisease #PainScience #Disability
Associate Professor of Sociology at Appalachian State University. Research and teaching interests include aging, medical sociology, and mental health.
24 π¦Ή spoken word poet π¦Ή sociologist π¦Ή teacher (pendingβ¦) π¦Ή decolonial crip theory and epistemic justice β‘ NONE OF US ARE FREE UNTIL ALL OF US ARE FREE
Aspiring academic interested in intersectional identities (race, gender, sexuality and class) and systemic inequalities faced by young people
Critical histories of science and medicine, science studies, postcolonial endeavours. New book on modern excrementalities: Spectacles of Waste (Polity). Writing mostly on disease ecologies and planetary health now. Living on Wangal country.
Rare Disease advocate in CT. Raising Awareness and advocating for Rare Diseases patients and caregivers.
Now live: https://rarectadvocate.com - Archive and Reference Links
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
Advancing the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases across Europe.
π¬ Evidence-based guidelines | π Cross-border collaboration | π Education
π Visit us: www.vascern.eu
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/
Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe.
π erdera.org
Co-funded by European Union's #HorizonEU Research & Innovation programme. Views expressed are of authors only.
An online hub supporting patient driven research ideas to be realised & flourish. Open to all.
Join the #RareDisease #Research revolution at www.rd-rn.org
* connections * resources *mentoring
NIHR funded, co-created by CamRARE, PLRH & patient experts
Account for the BLACKSWAN Foundation and RE(ACT) Community #RAREvolution, stand up for research on #rarediseases
blackswanfoundation.ch
http://www.react-congress.org π¦
RDI is the global alliance for persons living with a rare disease, across all countries and all rare conditions.
Researching everyday lives using creative qualitative methods. Based at @UoMSociology.bluesky.social
Horizon scanning, futures and foresight at @nuffieldbioethics.bsky.social
Reader | Cardiff University
Sociologist (Disability | Health and Illness | Reproduction | Stigma)
Co-Editor in Chief of 'Sociology of Health and Illness'
He | Him | His
Historian of Biology and Medicine. Science is culture, and long live the humanities. Director of @manchstm.bsky.social. Lapsed biochemist. Migrant. RheinlΓ€nder in π©πͺ. Northerner in π¬π§. Gen X. Cyclist. Owned by dog. Often online. Here privately. He/him.
Researcher and Sociologist
THIS Institute, University of Cambridge
https://www.thisinstitute.cam.ac.uk/about/people/dr-robert-pralat/
Professor in sociology, engaged in questions of technologies of life and death, ethics of technologies, ethnographic methods and feminist epistemologies...
Health services researcher, SAPPHIRE, University of Leicester | Currently researching in acute emergency care | Interested in optimising patient & parent experience, patient safety, maternal & infant healthcare, qualitative research methods, PPIE
