Catherine Stratton, MPH

Excited to share this work which extends the Template for Intervention Description and Replication (TIDieR) to include pediatric-specific considerations: lnkd.in/gzFq_P52

Wonderful leadership by @martinoffringa.bsky.social!

#ClinicalTrials #ReportingGuideline #Pediatrics #ChildHealth

Introductory online course – Knowledge Synthesis for Knowledge Users. Learn from KS experts! January to April, 2026 Scan the QR code to find out more, or visit (link to course page). Delivered by the Knowledge Translation Program. Image of QR code – green on white. Logos for University of Toronto, Knowledge Translation Program, St. Michael’s Hospital, Unity Health Toronto Image of a person in a green shirt, holding a blue lightbulb in each hand.

Do you want to learn more about #KnowledgeSynthesis from the experts? By the end of our online course, "Intro to KS for Knowledge Users", you'll have a protocol ready for registration.

Apply & find out more here: bit.ly/42AoohE

@cathsmstratton.bsky.social @andreatricco.bsky.social

SPOR Evidence Alliance July 2025 newsletter.

Check out our July 2025 e-newsletter for the latest SPOR Evidence Alliance updates, including patient-led research spotlights, publications, and engagement opportunities!

📩 Read it here: mailchi.mp/smh/spor-evi...

#PatientOrientedResearch #PatientEngagement #KnowledgeMobilization

We're thrilled to share that KTP grad student @cathsmstratton.bsky.social & scientists Drs @andreatricco.bsky.social and Jennifer Watt were awarded funding for their projects thru the Canadian Institutes of Health Research Spring Project grant competition!

Congratulations to all of the grantees! 🎉

Promotional graphic for the SPOR Evidence Alliance May 2025 newsletter.

Check out our May 2025 e-newsletter for the latest SPOR Evidence Alliance updates, including patient-led research spotlights, publications, and engagement opportunities!

📩 Read it here: mailchi.mp/smh/spor-evi...

#PatientOrientedResearch #PatientEngagement #KnowledgeMobilization

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PhDs for Public Impact fellows focus on engaging the public through their scholarly work. See the full group of 2025-2026 fellows at the link below.

Congratulations again to Catherine, and all of the new cohort!

www.cgpd.utoronto.ca/public-schol...

@sporalliance.bsky.social

Thank you, @andreatricco.bsky.social!!

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Congratulations to KT Program grad student @cathsmstratton.bsky.social on being awarded a Connaught PhDs for Public Impact Fellowship from the Centre for Graduate Professional Development at the School of Graduate Studies, @uoft.bsky.social!

@andreatricco.bsky.social

Join RareKids-CAN in acknowledging World Moyamoya Day - a day dedicated to raising awareness and knowledge about moyamoya, a rare and progressive condition affecting the arteries in the brain.

Open Science: What do patients or people with lived experience think? My name is Laurie Proulx and I have lived with a chronic condition for most of my life. For the last 15 years, I have been active as a patient partner in research. On March 21, 2025, I am presenting t...

I am presenting at an Open Science event on March 21st & would like to get the patient community involved & influencing how I present the patient perspective. If you have 5 minutes, please consider completing this survey to share your feedback: docs.google.com/forms/d/e/1F... Many thanks!

Barriers and facilitators to designing, maintaining, and... : JBI Evidence Synthesis ases and rare disease patient registries. Introduction: Rare disease patient registries are vital to improving the understanding of the natural histories and predictors of outcomes of rare diseases...

Resharing on Bluesky now that it’s officially out! Our protocol for a scoping review examining barriers & facilitators involved in #RareDisease registry development.
journals.lww.com/jbisrir/abst...
@andreatricco.bsky.social @maureenchats.bsky.social @sporalliance.bsky.social @ktprogram.bsky.social

It’s #RareDiseaseDay! With ~1 in 12 affected, RDs represent a significant burden for patients, families, & systems. The RD diagnostic odyssey is a call for improved awareness. The fact that still, only 5% of RDs have a therapy is a sobering reminder of the work we have to do. #RareDiseaseIsNotRare

The @moyamoyafoundation.bsky.social is gathering input from #moyamoya patients on what they’d like to hear about at upcoming educational events. Please follow this link: docs.google.com/forms/d/1wxF....
Responses are de-identified and are not part of a research project.

Most #RareDisease #registries require a confirmed Dx for inclusion. This is important for accurate calc of risks & outcomes, but accuracy is also threatened when people who remain undiagnosed are missed. This can perpetuate inequities: “If someone’s not counted, they don’t count.”

The #RareDisease #DiagnosticOdyssey is a glaring example of health inequity. A Canadian Organization of Rare Disorders survey found pts saw 5.9 clinicians & received 3.2 misdiagnoses over 3.7 years before receiving an accurate Dx. RD awareness is crucial. #RareDiseaseIsNotRare #RareDiseaseTruth

It’s #RareDiseaseMonth! While there is no official definition, #RareDisease (RD) generally refers to conditions affecting <1 in 2k people. There are an estimated 10k RDs. Despite each RD being uncommon, 1 in 12 Canadians is affected by RD. #RareDiseaseIsNotRare #RareDiseaseTruth

A big step forward! While the roll out of the National Strategy for Drugs for #RareDiseases has been slow with a series of agreements with provinces, this investment mitigates existing disparities. We must continue advocating for the inclusion of other drugs & sustainable support

Member spotlight graphic for Amanda Doherty-Kirby, Patient and Public Partner.

Member spotlight! Amanda Doherty-Kirby is a valued patient partner of the SPOR Evidence Alliance, and has contributed to many knowledge synthesis projects.

Check out her spotlight in our December 2024 newsletter: shorturl.at/LG45U

We are grateful for her partnership!

Sharing a new protocol publication regarding #MetaAnalysis in the context of #LivingSystematicReviews, led by my fellow lab member:
journals.lww.com/jbisrir/fullte…. Well done, Menelaos!
@andreatricco.bsky.social

What a year! Here’s to continued success in 2025!

a black background with the words happy new year written in white Alt: a black background with the words happy new year written in white

#HappyNewYear, everyone!
May each day bring comfort, fresh opportunities, and moments of happiness. Here’s to embracing new challenges and celebrating every win as we step into 2025. #NYE #NYE2025 #HappyNewYear2025

Table set for Christmas dinner with red and gold Christmas crackers

Wishing everyone a wonderful holiday season that is restorative and fulfilling #MerryChristmas #HappyHolidays

“Moyamoya Research Opportunity” Image: Help move forAI powered moyamoya research (infographic with a brain held in a blue hand) Study: Understanding large language model (LLM) performance on questions about moyamoya Principal investigator: Dr. Alfred See, Boaton Children’s Hospital

Description: Little is known about LLM performance in scenarios resembling its anticipated everyday clinical usage. Our aim is to better understand the reliability and limitations of generative AI in guiding patients and patient families through neurological disorders. Your insights are vital to advancing how artificial intelligence plays a role in people’s understanding of moyamoya. Together, we can explore and refine the role of AI in providing accurate and safe data on neurosurgical conditions. Eligibility: Anyone who shows an interest in moyamoya or visits the Moyamoya Foundation website and elects to take the survey. Survey link: https://redcap.tch.harvard.edu/redcap_edc/surveys/?s=MPTE4AX39LJKFW8W

If you are interested in #moyamoya and #LargeLanguageModels, please consider completing this study survey from Boston Children’s Hospital. Eligible for patients, caregivers, advocates, clinicians, and researchers! #RareDisease #Neurosurgery #Neurology

Link: redcap.tch.harvard.edu/redcap_edc/s...

@moyamoyafoundation.bsky.social is now on Bluesky!! Follow for educational information and updates on foundation events and initiatives! #Moyamoya #RareDisease #Neurology #Neurosurgery

The Wicked Movie might be my Eras Tour 🩷💚🩷💚🩷💚🩷 #TheatreKid

Thank you!!

Hello Bluesky crowd! I’m new here and would love to connect with people interested in #Epidemiology #RareDisease #PatientAdvocacy#PatientEngagement #GradSchool #Disability #ChronicIllness #HealthResearch. I’m an Epidemiology PhD student and patient advocate in Toronto. Looking forward to connecting!

Got the #DisabledInSTEM Starter Pack up and running!

Can't wait to see the list grow and meet new connections! 💜

go.bsky.app/SwJ4rFX

Please do!! I’ll be looking out for it!