SHARE Collaborative

We’ve got over 1,500 participants in Ask Us Europe but need more so that we can produce country-level and demographic specific reports.
I have flyers in many languages and business cards.
If you, or anyone you know, is eligible and interested, come find me at #EACS2025.
@shareeastlondon.bsky.social

Me by ePoster station 1

#EACS2025
At 15.35 today there’s a poster presentation of the early findings from the Ask Us Europe study, looking at discussions between people with HIV and their healthcare providers related to optimising treatment.
@shareeastlondon.bsky.social
NB Not me presenting - just posing there.

Me, Angelina, Megan, Chloe and Chloe of SHARE Research Collaborative at EACS. We’re all smiling.

The Ask Us Europe team at #EACS2025 following Megan’s poster presentation.
If you’re on HIV treatment and live in Europe, please take part - it takes 10 minutes and the results should help improve treatments for us.
@shareeastlondon.bsky.social
@profchloeorkin.bsky.social
bit.ly/4oqzvCG

This is a SHARE collaborative project. We are conducting a national survey to improve PrEP access for communities facing the greatest barriers, including racially minoritised women & men, queer men of colour, trans/non-binary people, sex workers, and recent migrants.

🔗 tinyurl.com/4a2kh54n

We are still recruiting for our #beyondtheclinic survey. Deadline is Friday 19 September, so please get a response in for your sexual health service ASAP! 🚨
You can complete the survey here: bit.ly/40weNaX #studyparticipants
@bashhuk.bsky.social @bhiva.bsky.social @cosrh.org

🗣️SURVEY on HIV PrEP!

National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV_...

We are still recruiting for our #beyondtheclinic survey. Deadline is Friday 19 September, so please get a response in for your sexual health service ASAP! 🚨
You can complete the survey here: bit.ly/40weNaX #studyparticipants
@bashhuk.bsky.social @bhiva.bsky.social @cosrh.org

Positive Health broadcast on HIV & Black communities is on Mon 8 Sept. Co-host Denis Onyango & I are joined by HIV advocate & researcher Rebecca Mbewe & @drrageshri.bsky.social. Watch live 5-5.30pm on @phoenixhealthm.bsky.social YouTube youtube.com/@phoenixheal... @shareeastlondon.bsky.social

Are you HIV+?
Living in Europe?
Currently on HIV treatment?
Please fill in the Ask Us Europe survey that I’ve been working on with @shareeastlondon.bsky.social.
We aim to ensure people with HIV have access to the best treatment and care.
Survey at: bit.ly/4m5ktRm

We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices.

Visit the page & complete the survey below

Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants

Establishing shared definitions of virological failure and discontinuation for long-acting injectable cabotegravir and rilpivirine therapy (the CONSENSUS-LAI Study): an international survey and Delphi... Definitions of virological failure and treatment discontinuation for long-acting injectable (LAI) cabotegravir and rilpivirine antiretroviral therapy …

Long-acting CAB+RPV for HIV is here but what counts as virological failure or treatment discontinuation? Turns out, there's no consensus in real-world use. Our Lancet HIV study set out to fix that. What was found? 15 different failure definitions in practice.
www.sciencedirect.com/science/arti...

if you are in Europe (inc the UK!), living with HIV in a country where injectable ART is available, please fill in this short survey from *brilliant* @shareeastlondon.bsky.social, and circ through your networks!

#AskUs

shareresearch.org.uk/ask-us-study/

shareresearch.qualtrics.com/jfe/form/SV_...

This is a study I'm working on for
@shareeastlondon.bsky.social
- please share, and if you're a sexual health clinician - please fill it out! There's more info about the study here: shareresearch.org.uk/beyond-the-c... #beyondtheclinic

@bashhuk.bsky.social @bhiva.bsky.social @fsrh.org @drlaurajwaters.bsky.social @tristanjbarber.bsky.social @profchloeorkin.bsky.social

Are you:
✅working in a UK sexual health service that provides #PrEP,
AND
✅willing to take part in a 15 minute survey?
We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants

Our latest study to understand the perspective of people living with HIV in Europe is now live!

We created it together with an amazing steering group of community members from 17 countries.

Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏

Flyer for the Ask Us Europe study, including a QR code. I will add the link to the survey in a post that I will thread to this one.

Do you live with HIV?
Are you in Europe and currently on treatment?
Please take part in the Ask Us Europe survey, which aims to improve treatment and care for people with HIV.
I am proud to have worked on it with @shareeastlondon.bsky.social and a powerful group of people with HIV.
Please share. 🙏

@iasociety.bsky.social @bhiva.bsky.social @eacsociety.bsky.social

We developed the study together with 17 amazing community members reflecting experiences from 17 European countries.
The wonderful @angelinanamiba.bsky.social
co-chaired the co-design process and the brilliant
@matthewhodson.bsky.social
was our external scrutineer.

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Our latest study 'ASK US Europe' is live and open to recruitment for people living with HIV in Europe who are on ART!

Please share widely across your networks in Europe and the UK.

bit.ly/4m5ktRm

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We’re pleased to be collaborating with @thelovetankcic.bsky.social
on the Queer Health Survey, and they are currently recruiting!

📌 Role: Programme Coordinator
🕒 17.5 hours/week | 12-month contract
📅 Deadline: Midday, 9 July 2025
🔗 Full details: www.thelovetank.info/vacancies/qhs

Happy #Pride Month! 🏳️‍🌈🏳️‍⚧️ We're committed to making healthcare in East London more inclusive. And according to @england.nhs.uk LGBTQ+ people face disproportionately worse health outcomes. See how we're making healthcare more inclusive with the help of @shareeastlondon.bsky.social bit.ly/4dMDJ38

Thank you @susancolehaley.bsky.social for your barnstorming talk at the start of the #AIDSImpact conference and for shouting out @shareeastlondon.bsky.social and my book #Unheard!

YouTube video by QMULOfficial Queen Mary research partnerships in East London - Positive East

Hear @sarapaparini.bsky.social and Dr Renee West talk about the power of collaboration and community research in reducing inequitable health outcomes. @shareeastlondon.bsky.social have been fortunate to work with @positiveeast.bsky.social on many projects.

www.youtube.com/watch?v=ti0p...

Welcome to Phoenix Health Movement! We're dedicated to addressing health inequities affecting Black women & other marginalized communities. Out Co-Founders @susancolehaley.bsky.social & Dr Vanessa Apea from @shareeastlondon.bsky.social share more about us in our first video on Bluesky!

Behind the Paper: International Healthcare Workers’ Experiences and Perceptions of the 2022 Mpox Outbreak PLOS Global Public Health was a natural home for our study due to its commitment to open-access publishing and its focus on amplifying research from diverse and resource-limited settings. Given the gl...

Here is a blog by Vanessa Apea and I
describing the story behind most recent SHARE-net manuscript on the healthcare provider perspective during the 2022/23 #mpox outbreak.
The paper has been published in PLOS Global Public Health

eur01.safelinks.protection.outlook.com?url=https%3A...

International healthcare workers’ experiences and perceptions of the 2022 multi-country mpox outbreak In May 2022, the most widespread outbreak of sustained transmission of mpox outside of countries historically affected countries in Western and Central Africa occurred. We aimed to examine the persona...

In these unthinkably dark days for global public health I’m proud to share the results of this international survey which describes the challenging and distressing experiences of clinicians in 12 countries during the 2022/23 #mpox pandemic.

eur01.safelinks.protection.outlook.com?url=https%3A...

Cover of The Lancet's Feb 15, 2025 issue. Quote on cover reads "At the core of patients not being heard is the unequal power dynamic between doctor and patient. Each holds a different form of expertise...It is vital that we combine this expertise and collaborate."

When patients are not heard by their doctors there can be devastating consequences.

So why does this happen & what can be done to address it?

On the cover, Dr Rageshri Dhairyawan explores this question.

Read her full essay & more: tinyurl.com/5c7xwj2e ‪@drrageshri.bsky.social‬

🚨@sophiaforum.bsky.social are recruiting for a community researcher to work on a study in partnership with @shareeastlondon.bsky.social (where I work!) Check out the job ad on LinkedIn: www.linkedin.com/jobs/view/41...