UK-CAB

An image of placards in the background with yellow coloured blocks highlighting the text Protest save the date, show support for getting life saving HIV treatment available from NHS England. Date is wednesday 18th February at 4.30 at NHS England Wellington House. 133-155 Waterloo Road. SE1 8U

DELAY=DEATH
#ACTUP Protest to Release Lenacapavir Now!
@england.nhs.uk

‘Without access to unique life-saving treatment, a small number of people living with HIV may die unnecessarily’

@nat.org.uk @bhiva.bsky.social @actuplondon.bsky.social @ukcab.bsky.social @appghiv.bsky.social

YouTube video by Harun Tulunay Neurodiversity & HIV: Your Experience Can Change Treatment | Ask Us Europe

Have you completed the Ask Us Europe survey?

For the first time, it asks about neurodiversity-and we need more autistic/ADHD voices to understand how HIV treatment is being discussed across Europe.

If you’re autistic and/or have ADHD and living with HIV, please take part.

bit.ly/4m5ktRm

The HIV Action Plan has promise — but real progress needs action and accountability.

Prisons, women, trans people + marginalised groups must not be left behind.

You can read our public statement regarding to new HIV Action Plan below.

Recent claims linking autism to Tylenol or vaccines are not supported by science.

We stand firmly against misinformation that fuels stigma, fear, and distrust in healthcare. Our community values evidence-based information, respect for lived experience, and the right to safe, informed care.

We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices.

Visit the page & complete the survey below

Colourful i-Base graphic. The main text reads: Support trans rights. Respond to the EHRC consultation by end of Monday. At the top is i-Base’s website address: I hyphen base dot info. At the bottom it says, subscribe by email. A smaller, tilted square graphic on the right, reads: HTB news. 2025. HIV treatment, prevention, access, and more. The colours used in the image are two shades of light blue, magenta, dark purple, light pink, lilac, teal, dark blue, light green, orange, mustard, red, and white.

UK HIV care for #transgender and non-binary people: comment on #EHRC guidelines by 30th June.

i-base.info/htb/51331

This is a really important opportunity to tell the EHRC why their guidance is unworkable.

Find guidance from @transactualuk.bsky.social‬ and others via our link to help you respond.

🚨 Gilead’s lenacapavir could be a game-changer for #HIV — but at $28K/year, it’s priced out of reach for most.

Generics could cost <$50.

We’re calling on Gilead to make it affordable for all, not just the privileged few.

Please find UK-CAB public response below.

📢 #NHSEngland has updated the TAF prescribing policy – mainly to clarify eligibility & introduce a simple approval form (Blueteq).

✅ No changes to patient access.
📄 Clinicians just need to submit a tick-box form.

More updates on ART prescription coming soon – we will keep you posted.
#HIV

Colourful i-Base graphic. The main text reads: Gilead stops access to lenacapavir. Company blames delay to agree price on NHS England. At the top is a URL: I hyphen base dot info. At the bottom it says, subscribe by email. A smaller, tilted square graphic on the right, reads: HTB news. 2025. HIV treatment, prevention, access, and more. The colours used in the image are two shades of dark green, light green, sage green, red teal, dark blue, orange, mustard, and white.

UK #lenacapavir Early Access Programme closed to new referrals as @england.nhs.uk and #Gilead fail to agree a price after more than two years:

i-base.info/htb/50940

NHS England took responsibility for approving access to this life-saving drug – this delay and result is unacceptable.

#HIVsky #MDR

@bhiva.bsky.social @drlaurajwaters.bsky.social @tristanjbarber.bsky.social @bashhuk.bsky.social @nicopolicek.bsky.social @positivelyuk.bsky.social @nat.org.uk @tht.org.uk @georgehousetrust.bsky.social @waverleycare.bsky.social @metrocharity.bsky.social @positiveeast.bsky.social

🚨 The Lenacapavir Early Access Programme has closed to new patients. This life-saving #HIV treatment is now out of reach for those who need it most.

We urge NHS England & Gilead to act now. Access to Lenacapavir must be restored. Urgently.

Community organisations: speak up. Silence costs lives.

Photo of a riso print, on a colourful i-Base graphic. The title of the print reads: The Denver Principles, which is fluro pink on white. 1983 is written in big, blue bubble lettering, vertically and intersecting with the title. The subheading, in blue text, reads: Statement from the Advisory Committee of the People with AIDS, 1983. The rest of the text is too small to read but can be found via the linked article. I dash base dot info is in white on a pink background in the top left corner. Orange text on dark blue in the bottom left corner, reads: print available to buy! The background of the image is coloured blocks of mustard, grey-blue, a medium cool blue, and a grey-purple. A line of bright pink circles is in the left corner of the graphic, with pale blue ones mirroring these in the top right corner. There are various coloured dots in the image.

Photo of Simon Collins, co-founder of HIV i-Base, on a colourful i-Base graphic. He is smiling and holding up an A3 riso print, titled, The Denver Principles. The print is described in the previous image. Simon is a white man in his 60s. I dash base dot info is in white on a pink background in the top left corner. Orange text on dark blue in the bottom left corner, reads: print available to buy! The background of the image is coloured blocks of mustard, grey-blue, a medium cool blue, and a grey-purple. A line of bright pink circles is in the left corner of the graphic, with pale blue ones mirroring these in the top right corner. There are various coloured dots in the image.

Thanks to @janeshep.bsky.social for producing this beautiful riso print to raise funds for HIV i-Base:

i-base.info/htb/51064

It celebrates #TheDenverPrinciples, an essential #HIVactivist document that all people living with #HIV should know about.

Purchase at the link to support us.

#HIVsky

Our next UK-CAB members meeting will be on 20th of June 2025.

You can visit UK-CAB forum for the details and registration form.

We will announce the programme on the forum once it is ready.

Looking forward to seeing many of our members in June!

Public Statement from UK-CAB on GSK/ViiV Diversity Policy Concerns

UK-CAB deeply concerned about GSK/ViiV diversity policy implications globally, despite UK/EU assurances.

Erosion anywhere sets a dangerous precedent. Our community is alarmed by US policy shifts & PEPFAR threats.

Please read our statement below.

#HIV #Diversity #GlobalHealth #UKCAB

@bhiva.bsky.social @bashhuk.bsky.social @nationalaidstrust.bsky.social @positivelyuk.bsky.social @tristanjbarber.bsky.social @drlaurajwaters.bsky.social @londonftci.bsky.social

UK-CAb Response to the new ABPI Conference Guidance

New @abpi.bsky.social guidance risks excluding #HIV advocates from conferences — suggesting we’re too “impressionable” to hear about treatments.

We reject this.

People with HIV are informed, critical partners in progress.

You can read our response below.

#NothingAboutUsWithoutUs #HIVAdvocacy

The UK Community Advisory Board (UK-CAB) is now on BlueSky!

Follow and share with your networks.

#HIV #HIVAdvocacy #Advocate #HIVtreatment