Oh no. Hope it gets sorted for you soon! π³
08.05.2025 16:52 β π 0 π 0 π¬ 1 π 0
A brilliant first day at #BuiltToLastConference hosted by a great team from @tog4shortlives.bsky.social hearing from colleagues, networking, and presenting some initial findings from the Kentown programme evaluation led by our Edge Hill university team. Wishing everyone a great second day π₯³
08.05.2025 14:40 β π 4 π 0 π¬ 0 π 0
We are so lucky that @emilytammam.bsky.social is one of our parent PPI members. I was never fortunate enough to meet Neve but am very grateful to Emily for her generous sharing of her writing and painting. Please read. #pedpc
30.04.2025 18:29 β π 7 π 2 π¬ 0 π 0
Published today after 2years of work behind the scenes by us at WHN/DELPHI Executive team : Our Global Expert DELPHI Consensus document on Long Covid. 179 Experts from 28 countries around the Globe Participated. Please share. Happy Easter!
link.springer.com/article/10.1...
21.04.2025 00:18 β π 156 π 73 π¬ 8 π 9
We are the UK charity for children and young people who are expected to have short lives.
The DCP is a coalition of organisations campaigning to improve support for disabled children, young people & families. https://disabledchildrenspartnership.org.uk/
Chief Executive, CCLG: The Children & Young People's Cancer Association @cclguk.bsky.social . π³οΈβπ. Interests: CYP cancer, cancer science, collaborative working, health policy, travel, food. Disney Adult. He/him.
Weβre on the side of over two million children and young people with special educational needs and disabilities, and their families.
Thames Valley & Wessex ODN lead care coordinator. Neonatal occupational therapist. Passionate about all things neonatal. All views my own.
The digital platform supporting education in paediatric palliative care across the South of England. New learning (such as independent or blended learning modules) can be created and hosted through the platform, as well as signposting to existing resources
CEO, Ty Hafan Children's Hospice. When a child's life will be short, no family should have to live it on their own.
Increasing understanding of grief, death & loss through collaborative research, education, advocacy & public engagement.
Visit our website: https://griefcentre.bristol.ac.uk
Clinical Reader, Cicely Saunders Institute|Consultant Palliative Medicine, Kingβs Health Partners|House of Commons Health & Social Care Committee palliative care expert panel|Trustee, Hospice UK
Passionate about equality, equity and ILD.
Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
Professor of Cancer Virology, University of Leeds.
Co-Chair, Independent SAGE
Creating a team of a million people who are willing to fight for the NHS and its staff at this challenging time. Here to highlight key issues and boost morale.
National Institute for Health and Care Research - we fund, enable and deliver world-leading health and social care research that improves people's health and wellbeing, and promotes economic growth.
Impact, Innovation, Investment, Inclusion
Find us at https://www.hyms.ac.uk/research/research-centres-and-groups/wolfson
Global Oncology Consultant
PhD cancer control and research, oncology nurse practitioner, educator, advocate for people with cancer and the nurses who care for them @ISNCC
Palliative Care Clinician & Assistant Clinical Professor. Supporting individuals & families of all ages facing serious illness, uncertainty & grief π¨π¦
https://cedoughertyconsulting.org/
We promote research into all aspects of palliative care and to facilitate its dissemination. This is a clear vision for Palliative Care Research Society activity which is increasingly important within the palliative care research context.
Senior Research Fellow at University of Leeds.
Academic Unit of Palliative Care.
Co-chair of Palliative Care Research Society.
Interested in improving symptom management, transition from children's hospice care.