Allison B. McCoy, PhD, ACHIP, FACMI, FAMIA

Long-Term Survival and Patient-Reported Outcomes After Staged Reconstructive Surgery for Hypoplastic Left Heart Syndrome Survival for hypoplastic left heart syndrome (HLHS) and variants has improved over the past 4 decades; however, survival remains low compared with oth…

Research from @ChildrensPhila followed 2k+ patients with #HLHS for 35 yrs. Adult survivors are thriving-85% report good to excellent health and QOL scores higher than the general population. They’re going to school, working, and living full lives! www.sciencedirect.com/science/arti...

Join us at 2:30 today at #XGM2025 in Odyssey for ClinAC114! We’re sharing how #ChatGPT helps make sense of override comments to improve #CDS effectiveness.

I love to see other institutions using #Clickbusters to improve CDS! #XGM2025

It's so nice of #Epic to celebrate my birthday again with #XGM2025! Who else is here?

ICYMI: Fellows of the American Medical Informatics Association (FAMIA): Looking Back and Looking Ahead
www.thieme-connect.de/products/ejo...

#MedSky @redwoofer.bsky.social @allisonbmccoy.phd @katefu24.bsky.social @sarahrossetti.bsky.social @amiainformatics.bsky.social

Detecting emergencies in patient portal messages using large language models and knowledge graph-based retrieval-augmented generation AbstractObjectives. This study aims to develop and evaluate an approach using large language models (LLMs) and a knowledge graph to triage patient messages

Docs get tons of #PatientPortal messages, some more urgent than others.
Can #LLMs with Retrieval-Augmented Generation be used to identify emergencies from these messages?
@allisonbmccoy.phd
academic.oup.com/jamia/advanc...

We've got plenty of flyers and swag left!

Come see me at the Resource and Research fair in Light Hall this morning from 9-11, and learn about all of the amazing clinical informatics resources VCLIC offers at VUMC!

Disappointed to see DBMI & VCLIC accounts, which supported research, events & collaboration, deactivated with no public explanation. I'm told it’s a “security” decision, but lack of transparency makes it hard to understand or support. I’ll keep sharing here-views my own, obviously. 🩺🖥️ #AcademicSky

"We're all toasted, let's put some butter on it."

Good morning San Juan! Ready for this year's @amiainformatics.bsky.social #ACMI retreat!

Read more about our approach to Clinical Informatics Education with @vclic.bsky.social at @vumcdbmi.bsky.social! @vumc-insights.bsky.social 🩺🖥️ #AcademicSky

Come see me this morning at the Dan Beauchamp Research Day Poster Session in Langford Hall, where I'm presenting work from colleagues through the Clinical Informatics Core on using PROMs to counsel patients on treatment options for diverticulitis!

While we don’t always know what the future holds for Charlie, but we’re so thankful for the surgeons, researchers, funding agencies, and donors who have made Charlie's amazing life possible!

Medicine is constantly changing thanks to new research - just a few decades ago, these surgeries weren’t available, and babies with hearts like Charlie’s had no hope for the future like we do today.

Many individuals with single ventricle disease have made it into adulthood without a need for additional interventions past their Fontan, while others have required more procedures, or even heart transplants.

Despite everything, Charlie is very typical (almost) 9 year old boy. He is in the 3rd grade with some amazing friends, he's active in ninja classes twice a week, and he aspires to be a professional video gamer.

Charlie currently takes aspirin, tadalafil, and lisinopril, iron, and Vitamin D every day, but in the past, he has taken up to 6 different medications, 3-4x/day.

Charlie has had 9 surgical procedures so far. He had his first surgery (BTT shunt), when he was 8 days old, the Glenn procedure when he was 6 months old, and the Fontan when he was 5 years old.

In his 1st year of life, Charlie spent 43 nights in the hospital. He has been admitted 6 times, visited the ED 3 times, and had >100 clinic/therapy visits.

Charlie's official diagnosis includes a double outlet right ventricle, d-transposition of the great arteries, hypoplastic left ventricle, mitral atresia, pulmonic and subpulmonic stenosis, and left superior vena cava. Essentially, he has half of a heart.

On September 29, 2015 we went in for what we expected to be a normal anatomy scan for Charlie; we found out early that he was a boy, and all our previous screenings had come back low risk. To our surprise, Charlie was diagnosed with complex congenital heart disease.

February is heart month, and we're raising CHD awareness! 🧵

#1in100 #CHD #CHDAwareness #CHDVoice #heartmonth #ConqueringCHD #DefyTheOddsCHD #teamCharlie

A little preview of my email inbox this morning

It's the best day of the year, the first day of @vumcdbmi.bsky.social @vclic.bsky.social Clinical Informatics!

📣 Calling AMIA Members! Help shape the 2025 Annual Symposium as part of the SPC. Bring your unique perspective to the team! Submit your self-nomination by Feb 3: amia.secure-platform.com/symposium/pa...
#AMIA2025 #JoinTheSPC #Informatics

I've been using WordPress but am on the hunt for something new. I'm trying out Owlstown based on a recommendation I got on here when I asked recently, but it's not perfect either.

YouTube video by Yaa Kumah Allison TODE Dance Sora Dec 2024

Thank you to my amazing colleagues who nominated and voted for me to win the DBMI Technology, Organizational Development, and Evaluation (TODE) Award this year! Don't miss this VERY REAL footage of me celebrating. 😂 youtu.be/KqYGPV5jhfo