Advancing rare disease research and patient advocacy
In the United States, a disease must affect fewer than 200,000 people to be considered rare, but there are more than 8,000 known rare diseases. That le...
The latest episode of the Notre Dame Stories podcast explores how Notre Dame researchers are advancing rare disease research and patient advocacy, driving groundbreaking discoveries to bring hope to patients and families: go.nd.edu/55012d
27.02.2025 19:01 β π 18 π 3 π¬ 0 π 0
Photo of the main library at the University of Notre Dame. Itβs a light brown building set against a blue sky, with a reflection pond in front. Above the pond are balloons of green, gold, and white. The front of the building shows the Word of Life Mural. It shows Jesus with his arms raised. Most people call it βTouchdown Jesus.β
I hate being that guy who posts the cryptic social update, but this is occupying vast mental real estate.
We are entering a season of profound self-evaluation at @notredame.bsky.social, friends. I havenβt been this excited about the future of brand expression at this universityβ¦ever.
30.01.2025 00:37 β π 0 π 0 π¬ 0 π 0
Looking to make a statement in your first editorial content meeting after the holiday break? Do what I did:
Greet everyone, welcome them to this first session of the new year, and then, as you get up to close the conference room doorβ¦
Trip over a cord and fall flat on your face. π€¦πΌββοΈ
07.01.2025 14:53 β π 1 π 0 π¬ 0 π 0
The state of Indiana is the center of the American sports world tonight. I love it. #CFP
21.12.2024 01:08 β π 0 π 0 π¬ 0 π 0
The stuff they let us call workβ¦
05.12.2024 01:53 β π 2 π 0 π¬ 0 π 0
Hi. Iβm Andy. Iβm a grown man who still wonβt sip his bourbon in front of his mom when she comes over to my house for #Thanksgiving.
28.11.2024 21:59 β π 1 π 0 π¬ 0 π 0
a man carrying a backpack is walking through a living room
Alt: a man sets down a backpack and lies face down on a living room floor
Goodness. If I didnβt know better, Iβd say my body is already reacting to the tryptophan.
25.11.2024 17:59 β π 0 π 0 π¬ 0 π 0
Having my @trailblazers.bsky.social on here is justβ¦well it just makes me very happy.
21.11.2024 02:33 β π 3 π 0 π¬ 0 π 0
At a high level this all makes mathematical sense. Still an interesting read, and a reminder that it's often less about the *can* of getting a college degree, more about the *should*.
18.11.2024 18:28 β π 1 π 0 π¬ 0 π 0
Hereβs some of what I do at work. Weβre expanding this Emmy-winning TV campaign for owned and paid media. The team is training a lot of new musclesβ¦itβs been a rewarding project, and weβre just getting started. #HigherEdMarketing
16.11.2024 13:07 β π 0 π 0 π¬ 0 π 0
the sun shines brightly through the clouds in the blue sky
ALT: the sun shines brightly through the clouds in the blue sky
Hello, friends! Has my search for a Twitter replacement finally come to an end??
16.11.2024 12:39 β π 4 π 0 π¬ 0 π 0
Cheesehead chasing the dreamβ¦
The Checklist Guru | Principal, iMarketingMix LLC | leadership coach, higher ed consultant, author, teacher, speaker, special needs mom | #ravensflock #billsmafia #wahoowa
Great News Driver for GreatNews.Life and our network of all positive local news networks including NWI.Life, Valpo.Life, Portage.Life, LaPorteCounty.Life, and Michiana.Life.
We cover Lake, Porter, La Porte, St. Joe, and Elkhart county in Northern Indiana.
#HigherEd Comms & Marketing | Storyteller | Expat Texan | Previous: TrinityU, LehighU π: UTSA, UIW
International Award-Winning π| Higher Ed Marketing and Comms Professional π | Conference Keynote, Chair & Host around the world π | Consultant π€ | Storyteller π | Irishman βοΈ | Based in KSA at KAUST πΈπ¦
We wrote a book about email. emailbook.co
Marketing Manager for Enrollify (@enrollify.bsky.social) | #HigherEdMarketing Nerd | Gamer | PokΓ©mon TCG Player | Fantasy Football Champ
Opinions are my own and donβt reflect those of my employer.
Father and husband, runner for fun, lawyer by trade
Sports: Oregon Ducks, Portland Trail Blazers, Houston Texans, and Texas Rangers
Views and opinions are my own
Romeoβs mamΓ‘. Author of Mailed It! Speaker. Ologist. π»πͺπΊπΈπ²π½π©πͺπ²π½πΏπ¦πΊπΈ and now proudly π¨π¦.
kibilds.co
Director of Enrollment Marketing and Communications @ UF π
Career Academic π. Dog mom and Coca-Cola Classic aficionado. Karaoke expert π€
Opinions are my own.
Building with AI to solve big, bold problems. Champion of the underdog. Advocate for meaningful change. Connector of people, relationships, and ideas. Passionate skier and all things sports.
A Higher Ed Executive Leader
Projects that have impact
Consultant & Advisor
Executive Coach
Speaker
San Francisco #GirlDad
π scottcline.org
Writer, higher ed storyteller, lit mag founder (Hippocampus). Co-ed, Getting to the Truth: The Craft & Practice of Creative Nonfiction. In-progress YA memoir. Curious. Loves diners, road trips, ephemera, wordplay, crosswords & board games.
Executive Director of Marketing and Branding at William & Mary | @cuprap.bsky.social Board Member | #Dad | Opinions Are My Own | He/Him
https://sbaglini55.wixsite.com/shanebaglini
Marketing & Communications Specialist π©βπ» - Higher Ed Administrator π - Avid Reader π - Doctoral Student π€ - Mom of twoπ§π¦
Life moves fast, live slow.
Founder & CEO @ Kanahoma. Helping colleges and universities grow.