Long Covid SOS

YouTube video by Canadian Covid Society Justin's Long Covid Story - Canadian Covid Society

Justin has #LongCOVID. Like many of us (not bedbound by Long COVID, which many sadly are), outwardly he looks fine. But Justin very much isn't fine, And he's been sick for 6 years now -

youtu.be/p8HPBmtHzEg?...

Dark, distressed graphic styled like a cracked road or hazard sign in teal, black and white. A large warning symbol is on the left. Large, bold, black weathered lettering reads “SPREAD AWARENESS NOT COVID.” Underneath is Long Covid SOS logo. The background is textured with fracture lines and a gritty, apocalyptic feel, conveying urgency and a strong public health message about Long Covid awareness. Text at the bottom reads Long Covid Awareness.

Do we really want to continue down this path of disease spreading unchecked?
Millions of us are left to navigate life-altering illness without research, recognition or rights.

This isn’t a dystopian film
This is year 6 of Covid

#Covid infections are still causing #LongCovid
#LongCovidAwareness

🙏 @longcovidsos.bsky.social

Graphic with a dark textured background and teal text reading: “LONG COVID. You can look ‘fine’ and still be very unwell. Fund Long Covid research. Long Covid Awareness Month.” The Long Covid SOS logo appears at the bottom.

You can look “fine” and still be very unwell

We are still waiting for answers
Still waiting for treatment
Still waiting to be believed

Fund Long Covid research.
We can’t wait any longer.

#longcovidawarenessmonth #fundlongcovidresearch #wecantwait #LongCovid

Teal text on a charcoal textured background reads “March is Long Covid Awareness Month. Year 6. We can’t wait any longer.” Small lifering icons replace the letter O’s. The Long Covid SOS logo appears in the bottom left corner in white with a red lifering in SOS.

March is Long Covid Awareness Month.

Millions still live with life-altering symptoms & remain without consistent care.
Research funding does not reflect the scale of the crisis

We are calling for sustained investment into research & policy change

#longcovidawarenessmonth #wecantwait #longcovidsos

Promotional graphic on a black background advertising 30% off everything for Long Covid Awareness Day. Large grey “30% off” text appears at the top, with teal handwritten-style text reading “Be visible not invisible.” Product images on the right include a Long Covid SOS badge, a white mug with a Long Covid Awareness ribbon and orange lifering design, and a folded T-shirt featuring a bold “F*ck Long Covid” design. Text reads: “Long Covid Awareness Day is our moment to be seen. Grab your merch, spark conversations. Support the cause. Start conversations. Be visible and help us in the fight for research, recognition and rights.” The hashtag #LongCovidAwareness appears at the bottom.

30% OFF

BE SEEN

#LongCovidAwarenessDay is coming

28/02-01/03 get 30% off all LongCovidSOS merch & help fund our work at the same time

Wear your support
Start conversations
Push for proper recognition & care

This is #LongCovid visibility. Together.

longcovidsos.myspreadshop.co.uk

We’re proud to support WHO Europe on this vital project tackling myths and misinformation about Long Covid

#LongCovid #LongCovidAwareness
#HealthInformation

www.who.int/europe/event/myth-busters--debunking-long-covid-myths-and-misconceptions

Our hearts are with all of you fighting for justice, on Valentines Day and beyond. We can’t do this alone, and we won’t leave anyone behind.

MakesMeSick.org
@meactnet.bsky.social

A

It’s so hard, isn’t it? Thank goodness for the wonderful #LongCovid community who understand what others don’t. The very best people in the very worst situation ❤️‍🩹

Why covid-19 is “a vascular disease masquerading as a respiratory one” Covid-19 is not just a respiratory infection. Cardiovascular symptoms are seen in both acute and long covid. Katharine Lang reports on what we’ve learnt since the onset of the pandemic Cardiovascular...

A virus that causes vascular damage is not mild and children need protection. We all do. @ashleydaltonmp.bsky.social

www.bmj.com/content/392/...

CANADIAN LONG COVID COMMUNITY

Please join us by participating and sharing your story as patient and/or caregiver. All hearts will be displayed at our in-person events on March 15. Help us share far and wide! We all deserve to be seen.
#LongCovid #LongCovidHeartbeats #LongCovidAwarenessDay

Get your #LongCovidAwarenessDay gear with a discount & show the world how much #LongCovid hurts - those of us living with it, and the people who love us.

Black background with a white T-shirt in the middle with a red broken heart with the words “Long Covid can break your heart” printed across it. Below left on a white tote bag has the Long Covid SOS logo in awareness day colours and Long Covid Awareness day badges are on the right. The word “SALE” is displayed in white text at the top of the image, any “Long Covid Awareness Day” appears along the bottom.

Wear your broken heart on your chest. Or your hat, your bag or even your water bottle!

20% off everything 15-19th Feb
30% off everything 22-23rd Feb
20% off everything 25-27th Feb

longcovidsos.myspreadshop.co.uk/all

#longcovidcanbreakyourheart
#longcovidawarenessday
#longcovidsos

An illustration of a pink anatomical human heart centred on a torn paper background with vintage newspaper print. Overlaid text reads: “Long Covid breaks your heart in more ways than you realise.” The Long Covid SOS logo appears at the bottom.

This Valentine’s Day, let’s talk about the hearts Long Covid affects.

Not just romantic hearts.
Human hearts.
Cardiovascular health.
Family life.
Mental wellbeing.
And so much more.

Long Covid can break your heart - in more ways than you realise

#longcovidsos #valentinesday #longcovidawareness

We will bust these common myths and these Myth-busting assets will be shared across our social media throughout March for #LongCovidAwarenessMonth
Please share as widely as possible, we need to get the correct messaging out there. #LongCovidRuinsLives

Myth 1: Being young and fit protects you from #LongCovid
Fact: WRONG ! all ages & fitness levels can be affected including kids & athletes - often after mild or asymptomatic infection. There’s no way to predict who will be affected or how serious that it may be
Many are still ill after 6 years!

Myth-busters- debunking long COVID myths and misconceptions Misconceptions about post COVID-19 condition, more commonly known as long COVID, continue to hinder diagnosis, prevention, care and rehabilitation. To debunk these myths and misconceptions, WHO/Europ...

www.who.int/europe/event...

Myth-busting #LongCovid with WHO Europe

We’re proud to support WHO Europe on this vital project tackling myths and misinformation about Long Covid, 6 years on from COVID-19 being declared a Public Health Emergency of International Concern.

With Long Covid Awareness Day on 15th March, we have two months to raise awareness, share lived experience, and call for understanding and better care.

It’s not just the heart. It’s the heartbreak.
Long Covid: Every heartbeat counts.

#longcovidawarenessday #longcovidheartbeats #longcovid

An image of a broken painting of a red heart on a dark grey textured wall. On the heart it says in handwritten text “Long Covid can break your heart” and the Long Covid SOS logo in black Underneath white type says “It’s not just the physical impact a Covid infection can have on cardiovascular health - it’s the added emotional toll for those of us living with Long Covid, our families, and the people who care for us. ITS NOT JUST THE HEART ITS THE HEARTBREAK #LongCovidAwarenessDay 15/03/26”

#LongCovid can break your heart; both physically and emotionally.

Not only through its impact on the cardiovascular system, but through the strain of living with an unpredictable, poorly understood illness, and the toll it takes on relationships, identity, and daily life.

Long Covid Support To learn more visit LongCovid.org

@longcovidsupport.bsky.social compiled a listing in approx Jan-March 2025 - it was at longcovidclinics dot co dot uk but that seems to be down, try www.longcovid.org/impact/news/...

Long Covid SOS Charity | Recognition Research Rehabilitation Long Covid SOS is the voice of the thousands of Long Covid sufferers in the UK. We are throwing a lifeline to all those who are living with the debilitating impact of Covid-19: Long Covid

Please visit our website to see what we do on www.longcovidsos.org

Dark green New Year image with gold fireworks and stars. Large gold text reads “2026” with “Best wishes for the New Year” above in teal. Below, white text says: “Wishing you a New Year filled with healing, compassion and realistic hope. Be kind to yourselves, we’re by your side.” Long Covid SOS logo appears at the bottom.

For everyone affected by #LongCovid

We see you
We believe you
We’re still here, & we’re still campaigning for change

What change means for us:
Recognition of Long Covid
Access to safe and appropriate care
Investment in research
Rights-based support that reflects real lives

See you in 2026!

Season’s greetings from Long Covid SOS 🤍

This year has tested us deeply, but we remain determined to honour Ondine’s legacy and continue our work for everyone living with #LongCovid.

Sending love and thanks to our friends and supporters. Please be kind to yourselves this Christmas. 🎄✨

"The ICB told councillors that "most patients" recover within four to nine months. But a recent review in The Lancet, external said 71% of people with the condition had symptoms for more than a year."

Well the ICB is lying then.

If you can help us please consider donating to our fundraiser and if not, please share widely. Everything helps ♥️
Thank you

localgiving.org/fundraising/...

Closure of Mid Essex long Covid service criticised by charities A charity says the condition is

Dr Lucy Moore, chairperson of the Long Covid SOS charity, said: "If the motivation behind the closure is an ideology that long Covid is a thing of the past or over in months, it sets a concerning precedent.

#LongCovid #Charity #BBC

www.bbc.co.uk/news/article...

Study Shows Long COVID Patients Face More Than Double the Healthcare Costs After Diagnosis - Womenhealthdomain.com People living with Long COVID are using health services far more frequently than before their diagnosis, driving annual healthcare costs to more than twice

"People living with Long COVID are using health services far more frequently than before their diagnosis, driving annual healthcare costs to more than twice their previous levels, according to a major new analysis published in the Journal of the Royal Society of Medicine."

Thousands of us are still fighting debilitating symptoms that have changed our lives forever.

Our volunteers at Long Covid SOS were forced to become campaigners while living with life-changing illness, just to get #LongCovid recognised

Can you help us today? Donate:
localgiving.org/fundraising/...

A teal graphic with white text that reads: “Living with Long Covid forced us to raise our voices to be heard. With your support, we can continue campaigning for the recognition and the rights that people with Long Covid deserve.” Behind the text is a faint circular Long Covid SOS lifering logo in red and green. The Long Covid SOS logo appears at the bottom with the tagline “campaigning for us all.”

"We can no longer do this alone. The crisis is hiding in plain sight and we need help to act." - Dr. Lucy Moore, Chair of Long Covid SOS

We need urgent support to continue the fight for research, better treatments & recognition for people with #LongCovid

tinyurl.com/DonateLCSOS