🗓️ En cette fin de Journée internationale de sensibilisation au #CovidLong
Nous souhaitons d’abord remercier toutes les personnes qui ont participé aujourd’hui.
Together, we can amplify the call for answers, care, and research for #LongCovid.
Longcovidsos.org/researchfunding
#longcovid #longcovidawarenessday #everyheartbeatcounts
Have you already written to your MP?
Share your story or a screenshot of your message and tag us to inspire others to take action.
When people see others speaking up, it helps them find the confidence to do the same.
Together, our voices are louder.
🧵
You can find our leaflets on our website:
longcovidsos.org/gp-leaflet
longcovidsos.org/patient-leaflet
Millions of people are still waiting for answers, treatments and a path to recovery. Progress depends on sustained research.
Fund Long Covid research for the answers.
Longcovidsos.org/research
#longcovidawareness #fundlongcovidresearch
#everyheartbeatcounts
Thank you so much to Rebecca for taking the time to record this video. Her message helps people living with Long Covid feel heard and seen, while raising awareness of the lasting impact a Covid infection can have.
On #LongCovidAwarenessDay 2026, we hear from the healthcare professionals supporting #pwLC every day
Rebecca Livingston is a respiratory physiotherapist working with people living with #LongCovid. In her work, she sees first-hand the realities of our condition & the impact it has on people’s lives.
Covid is vascular.
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
Definitely worth trying your GP again and asking for a second opinion- our understanding (from a few years back) is that pwLC don’t always make antibodies so that test may not help. A LC diagnosis usually comes from symptomology after an infection rather than any specific test. We’re not medics tho!
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
2/
That’s great! We’re big fans of @longcovidphysio.bsky.social and their amazing work and resources for #pwLC too 💪👏
Trying to rest and pace over here! How are you doing?
Absolutely. Most of our volunteers were infected in 2020 and we are so grateful to the ME community for using precious energy to offer advice and support from the earliest opportunity. 🩵
🧵
Thank you for all your efforts. We have no doubt that what you have done has made a difference and continues to do so 👏🩵
We hope that working with and alongside pwME (who have helped us so much) and using the concrete evidence surfaced by the Inquiry, we can turn the tide 🤞💪
1/ On Thursday, we will publish the Inquiry's third report: ‘The impact of the Covid-19 pandemic on the healthcare systems of the United Kingdom’ (Module 3).
You can find our leaflets on our website:
www.longcovidsos.org/gp-leaflet
www.longcovidsos.org/patient-leaf...
Millions are still waiting for answers, treatments and a path to recovery. Progress depends on sustained research.
Fund Long Covid research for the answers.
Longcovidsos.org/researchfunding
#longcovidawareness #fundlongcovidresearch
#everyheartbeatcounts
We’re grateful to Dr Heightman for sharing her insight and experience. Her video helps people living with Long Covid feel acknowledged and understood, while showing the wider public the real impact a Covid infection can have on daily life.
On #LongCovidAwarenessDay 2026, we hear directly from the people trying to help.
Dr Melissa Heightman is a respiratory consultant and researcher working with people living with #LongCovid. In clinic, she sees first-hand the impact the condition has on patients’ lives.
It's #LongCovidAwarenessDay & co-incidentally my 4th anniversary of #LivingWithLongCovid.
Good news: every month I get that little bit better. I am the Queen of pacing!
Bad news: there is no cure, no treatment, just patience.
Sending love & spoons to all my fellow #ME/CFS #LC friends today.
Thank you so much. We know it can feel fruitless when MP’s don’t respond but the more we keep talking about it, the more awareness we’ll raise that things need to change and we can’t be ignored anymore.
Right now is a critical time with the next #CovidInquiry report coming this Thursday 19th too…
Your voice matters.
Take one minute to write to your MP and demand urgent #LongCovid research funding.
Every message counts.
longcovidsos.org/researchfunding
Fund Long Covid Research - we need answers.
#longcovidawarenessday #fundlongcovidresearch #everyheartbeatcounts
Phew! We’ve seen your order come in, that’s great. Persistence rewarded 🎉
Sure, where is the problem occurring? We are finding the site a little slow right now but just had a look and the shop seems to be functioning ok for us?
bsky.app/profile/long...
A moving short film from Long COVID Physio. So grateful to all the people who give their time for free to help the millions of us living with Long Covid.
Before infection, our members chose how to use each heartbeat.
Now #LongCovid limits what each beat can be used for.
Turn your phone landscape for the best viewing experience.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
✉️ We’ve made it easy: use our template to write to your MP and ask them to support Long Covid research. Every message counts.
💪 Together, our voices can help ensure policymakers take this seriously.
Fund Long Covid Research - we need answers.
#fundlongcovidresearch #everyheartbeatcounts
