RDI is the global alliance for persons living with a rare disease, across all countries and all rare conditions.
Suono in una band, scrivo libri e recito in una compagnia amatoriale.
E poi presento un festival musicale (Happy Voices, a Segrate).
Intanto lavoro anche, nel mondo dei trasporti marittimi.
Scrivo post sarcastici.
DO-NOT-SEND-PRIVATE-MESSAGE-TO-ME.
Bioinformatics Scientist / Next Generation Sequencing, Single Cell and Spatial Biology, Next Generation Proteomics, Liquid Biopsy, SynBio, AI/ML in biotech // http://albertvilella.substack.com
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
Patiëntenfederatie Nederland zet zich namens ruim 200 patiëntenorganisaties in voor alle mensen die zorg nodig hebben, nu of in de toekomst. En geeft patiënten een stem: in de politiek, bij zorgaanbieders, zorgverzekeraars en in het nieuws.
Het Radboudumc is een universitair medisch centrum voor patiëntenzorg, onderzoek en onderwijs, gevestigd in Nijmegen.
North American Vascular Biology Organization - an international society for scientists studying the blood vessel, its form, function and development
www.navbo.org
Follow us on our main account NAVBO@bsky.social
News and information from the European Commission. Social media and data protection policy: http://europa.eu/!MnfFmT
Advancing the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases across Europe.
🔬 Evidence-based guidelines | 🌍 Cross-border collaboration | 📚 Education
📌 Visit us: www.vascern.eu
CMTC-OVM is a worldwide non-profit community that aims to improve the quality of life of people suffering from rare vascular abnormalities (blood vessel abnormalities), such as CMTC and KTS, their families, and stimulate scientific research.
Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe.
🔗 erdera.org
Co-funded by European Union's #HorizonEU Research & Innovation programme. Views expressed are of authors only.
Carine van der Vleuten, MD, PhD
Associate Professor 🎓 Vascular Anomalies
Dermatoloog@Radboudumc 🩵 Amalia 🧡
Infantiel hemangioom 🍓
Klippel Trenaunay PROS 🧬 Hevas VASCERN-VASCA 🇪🇺 ISSVA ⚖️ by🚴🏻♀️
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