Karen van Gorp

Hello Bluesky is fun. And not the other place!

YouTube video by Head and Neck Cancer Forum Cancer Voices South Australia #WorldCancerDay #UnitedByUnique

@Cancer Voices SA #WorldCancerDay
#PatientAdvocate youtu.be/1hCl-_MIyss

@juliepringle.bsky.social hello you!

Brilliant! I will add equity of access to treatment and supportive care. Support in the community (return to work etc). The American scenario of insurance is terrifying. We fight to continue our medicare and HTA process in Australia.

Is this an American group or intended to be world wide?

Thanks @cancervoices-sa.bsky.social for sharing. Really proud of this presentation and the consumer/patient involvement at this conference was brilliant! #ACTA2024

@shona22.bsky.social @juliemccrossin.bsky.social

I dont really like icecream but i love cheese.
Most proud of my presentation at #ACTA2024 this week Australian #HTAReview #ClinicalTrials Early #Comsumer imvolvement. EarlyConsumer

Great thread and starter pack. Would you please add me melanoma stage IV 2013 clinical trial pembro super responder, choroidal melanoma 2021 brachytherapy - fingers crossed. Chair Cancer Voices SA Deputy Chair Melanoma Patients Aust

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Neràk a new cushion cover that only fits one shape of cushion soon to be discontinued.

Do not obey in advance.
PASS IT ON.

#Melanoma is Australia's cancer, embarrassing but true. Well done @mikecarlton01.bsky.social for keeping up your skin checks, early detection is key.

Oh and @gilliosa.bsky.social

Please add @melanomaau.bsky.social

Oh I realise now it was that cat owner who pointed out the date! Oh this migration is messy!

Lol, thanks. Hope she didn't give the poor cat the ointment

Please don't, if it can be cut out or off that would be the best option for animals and humans.

Hi I am a stage IV melanoma survivor. I managed to get on a clinical trial for keytruda in 2013. I have had a complete response.

You might like to look at some Facebook support groups, especially in Australia. So sorry to hear it has spread, such a rare occurrence.

I had worked so hard on my twitter account. I rarely saw ads but I didn't miss any news from the areas I am interested in (melanoma, cancer, gut microbiome, some HTA). I would like to reclaim linked in for my day job!

@jay.bsky.team also apologises for the lack of drafts, but we have love. I will have to draft n paste

Brilliant if it increases their choices to access clinical trials!

I wish you luck. I am stage 4 melanoma and I was a super responder to pembro. Few side effects but i know many who have had pituitary and adrenal glands effected.