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International Neuroendocrine Cancer Alliance (INCA)

@inca-netcancerday.bsky.social

Raising awareness of neuroendocrine cancers around the world. November 10 is NET Cancer Day. INCA is the global voice of NET patients. www.incalliance.org

62 Followers  |  82 Following  |  85 Posts  |  Joined: 16.04.2025  |  1.9903

Latest posts by inca-netcancerday.bsky.social on Bluesky

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πŸ“’INCA is delighted to launch 26 #NETInfo factsheets in a new language – Greek. The #NETInfo library is now in 12 languages: English, Arabic, Chinese, French, German, Greek, Hindi, Italian, Japanese, Portuguese, Russian and Spanish.
βœ…Download here: incalliance.org/net-info-pac...
#LetsTalkAboutNETs

11.08.2025 06:09 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Dr. Mauro Cives: β€œIn the future, we will be able to understand what the differences are between cells that are able to metastasize and the cells that are not able.”
πŸ“±Watch the video with Dr. Mauro Cives – now with captions in 5 languages: incalliance.org/dr-mauro-civ...
#LetsTalkAboutNETs

11.08.2025 06:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ‘Kudos to Victory NET Foundation, Switzerland, for supporting personalized NET patients care! VNF is partner to the Lausanne University Hospital’s Fondation CHUV in ensuring a dedicated nurse for personalized care of NET patients.
βœ…Find out more: incalliance.org/vnf-supports...
#LetsTalkAboutNETs

08.08.2025 07:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ‘Kudos to NeuroEndocrine Cancer Australia for raising NET awareness among nurses – NECA participated with posters at the Cancer Nurses Association of Australia & International Society of Nurses in Cancer Care 2025 Congress.
βœ…Find out more: incalliance.org/neca-at-the-...
#LetsTalkAboutNETs

08.08.2025 06:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“’Free CME Credit: Learn How to Diagnose and Manage Neuroendocrine Cancer in Primary Care.
β€’ Only 60 minutes - CME-accredited (1 credit)
β€’ Endorsed by ENETS & NANETS
β€’ Free, flexible online format
βœ…Start learning today: incalliance.org/think-nens/
#LetsTalkAboutNETs #ThinkNENs

07.08.2025 06:39 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#GEPNETs are among most common NETs but easily misdiagnosed with many gastric conditions.
πŸ“ŒKatja from the Netherlands spent 6 years with gastric symptoms. Finally, a scan revealed the tumors in the stomach and bowels.
πŸ“±Watch her story: incalliance.org/stories/katj...
#LetsTalkAboutNETs

06.08.2025 06:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#MedullaryThyroidCancer (MTC) is a rare form of cancer of the thyroid gland. 25% of cases of MTC occur as part of #MultipleEndocrineNeoplasia Type 2 (MEN2).
βœ…We help HCPs to detect MTC early – find #NETInfo in 11 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

06.08.2025 06:14 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“±Check out our collections of video presentations by prominent NEN researchers to be abreast of the latest in NEN clinical trials: incalliance.org/researcher-i...
πŸ“ŒAvailable in English with captions in French, German, Italian, Portuguese and Spanish.
#LetsTalkAboutNETs

05.08.2025 07:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“’New to radioligand therapy? Prepare with confidence with the new #NETInfo factsheet from INCA in your language: incalliance.org/net-info-pac...
πŸ“ŒThis medically-vetted factsheet on #RadioligandTherapy answers your questions and helps you get prepared.
#LetsTalkAboutNETs

04.08.2025 05:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ‘Kudos to the Taiwan Neuroendocrine Tumor Patient Care Association (TNETPCA) for continuing to develop different forms of cooperation with specialists from various hospitals and NET specialists across Taiwan.
βœ…Find out more about the latest event: incalliance.org/new-educatio...
#LetsTalkAboutNETs

25.07.2025 06:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Primary Care Physicians: Ready to recognize NENs?
πŸ“š Free online course
⏱ 60 mins = 1 CME credit
🌐 6 languages
Endorsed by ENETS & NANETS.
πŸ“ŒStart learning now: incalliance.org/think-nens/
#LetsTalkAboutNETs #ThinkNENs

24.07.2025 05:50 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Starting radioligand therapy can feel overwhelming.
πŸ‘‰INCA provides a medically-vetted factsheet on #RadioligandTherapy that answers your questions and helps you get prepared.
🌍Available in 15 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs

23.07.2025 06:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“±Watch the video with the latest on translational NEN research by Dr. Mauro Cives – now with captions in French, German, Italian, Portuguese and Spanish: incalliance.org/dr-mauro-civ...
#LetsTalkAboutNETs

22.07.2025 07:04 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Starting radioligand therapy can feel overwhelming for neuroendocrine cancer patients.
πŸ“’INCA launched a NEW #NETInfo factsheet on #RadioligandTherapy designed to support NEN patients.
βœ…Available in 15 languages to download from #NETInfo Pack: incalliance.org/net-info-pac...
#LetsTalkAboutNETs

21.07.2025 06:07 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸ‘Great opportunity for nurses: NECA teams up with Neuroendocrine Cancer UK β€ͺ@neuroendo-can-uk.bsky.social and Neuroendocrine Cancer New Zealand in organizing a free NET Nurse Webinar on September 17th, 2025.
βœ…Find out more and register: incalliance.org/australia-uk...
#LetsTalkAboutNETs

18.07.2025 12:09 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ‘Great example of strong regional cooperation! INCA member organizations from Sweden (CarpaNet), Denmark (Netpa) and Norway (NET-kreftforeningen CarciNor) explored ways to strengthen cooperation between Nordic countries.
βœ…Find out more: incalliance.org/nordic-meeti... #LetsTalkAboutNETs

18.07.2025 12:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“ŒDr. Grace Kong: β€œPerforming clinical trials is very important because we need to provide the evidence to enable support and reimbursements for NET imaging and treatment for patients.”
πŸ“±Watch the video on nuclear medicine NEN trials: incalliance.org/dr-grace-kon...
#LetsTalkAboutNETs

15.07.2025 06:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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In most people there are two normal functioning #MEN2B genes (RET or RET proto-oncogene). In MEN2B patients, one of this pair has a change.
The most common gene change is called β€˜M918T’.
βœ…Learn about #MEN2B with #NETInfo in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs

14.07.2025 07:35 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Congratulations to NET-kreftforeningen CarciNor for supporting a translational project via CarciNor Research Fund to tailor diagnostics and treatment and investigating covariation of genotype, phenotype and outcome in small bowel NETs.
βœ…Read more: incalliance.org/carcinor-res...
#LetsTalkAboutNETs

11.07.2025 06:17 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ‘Kudos to Net Italy ETS for collaborating with Itanet for the publication of the article on enhancing patient-centric care with AI – in the prestigious Springer Nature journal.
βœ…Read more in English and Italian: incalliance.org/enhancing-pa...
#LetsTalkAboutNETs

11.07.2025 06:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Think you will never encounter NENs in your general practice? If you #ThinkNENs, you will spot them.
βœ…Enroll in the #ThinkNENs e-learning – designed for you with free CME credit, available in 6 languages: incalliance.org/think-nens/
#LetsTalkAboutNETs

10.07.2025 06:35 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ‘Thank you to Mark McDonnell (Chair of NET Patient Network, Ireland, and INCA Past President) who represented INCA at the inaugural European Cancer Mission Fair and voiced the NET patient perspective in the discussion.
βœ…Read more: incalliance.org/european-can...
#LetsTalkAboutNETs

09.07.2025 06:34 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Every patient story is unique.
πŸ“ŒJasmyn from USA: β€œMost of my doctors had never treated a tumor like this in their careers, over 100 years of collective experience with no knowledge of #paraganglioma.”
βœ…Watch her story: incalliance.org/stories/jasm...
#LetsTalkAboutNETs

08.07.2025 11:26 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Participating in a clinical trial can give NEN patients early access to the latest treatment options.
βœ…Browse the active NEN trials: incalliance.org/find-a-trial/
#LetsTalkAboutNETs #NENClinicalTrials

07.07.2025 05:38 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸ‘Thanks to Pheo Para Alliance for providing a recap of the Patient Education Day 2025 at the SNMMI Annual meeting in June.
βœ…Find out more and watch the sessions recordings in YouTube in your language: incalliance.org/snmmi-patien... #LetsTalkAboutNETs

04.07.2025 06:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“’Join @netcancerfound.bsky.social on July 10th, 2025, 12 pm Pacific, for the new webinar β€œLiving With NET – The Patient Perspective” - an open and honest conversation with four individuals living with neuroendocrine cancer.
βœ…Register now: incalliance.org/july-webinar...
#LetsTalkAboutNETs

04.07.2025 06:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“ŒThe #ThinkNENs Global Education Program for Primary Care Physicians equips you with everything you need to recognize, diagnose, and support NEN patients in general practice.
βœ…Get your free CME credit today: incalliance.org/think-nens/
#LetsTalkAboutNETs

03.07.2025 06:37 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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A dentist or doctor may suspect #MultipleEndocrineNeoplasia Type 2B (MEN2B) when they see lumps in the mouth (gums and/or tongue) or the lumpy lips which are a typical facial feature.
πŸ“ŒGet to know MEN2B in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs

02.07.2025 06:47 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ“ŒDr. Mauro Cives: β€œSingle-cell and single-nuclei sequencing technologies will help researchers in gaining a better understanding of the biology of neuroendocrine neoplasms”. βœ…Watch the video with the latest on translational NEN research: incalliance.org/dr-mauro-civ...
#LetsTalkAboutNETs

01.07.2025 06:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Do you know how easy it is to quickly find a NEN clinical trial that fits your condition and is close to your location?
βœ…Try here: incalliance.org/find-a-trial/
#LetsTalkAboutNETs #NENClinicalTrials
@ancoraai.bsky.social

30.06.2025 06:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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