International Journal of MS Care

"The goal of this study was to compare the effectiveness of a remotely delivered #intervention with 2 arms (ie, website & #telecoaching vs website only) aimed at reducing depression, anxiety, stress & distress in informal #caregivers of individuals with #MultipleSclerosis."
doi.org/10.7224/1537...

"Our international, multidisciplinary team’s efforts to develop this understanding across our 8 countries found that efforts to support the #WellBeing of people with progressive #MultipleSclerosis vary widely."
doi.org/10.7224/1537...

"[W]e provide foundational knowledge that will help [HCPs] understand modern algorithmic techniques & their implementation for classification & clustering tasks....[AI] & machine learning are defined & distinguished, as are metrics by which they are assessed & delineated." doi.org/10.7224/1537...

#NeuroArtFriday #embroidery #anatomy

"...previous research has implicated arm-hand disability & impaired vision as barriers to patient portal use, these findings suggest relationship between [ #MultipleSclerosis] disease burden & #MyChart utilization is also function of underlying medical complexity..." doi.org/10.7224/1537...

"The Consortium of Multiple Sclerosis Centers ( #CMSC) recognizes that #disparities affect the lives of many people with #MultipleSclerosis (MS) and acknowledges the need to address this as an organization."
doi.org/10.7224/1537...

Study describes "service provision in #MultipleSclerosis using standard classification to allow comparisons across jurisdictions &over time. Standardized assessments...would allow local &national care systems to be compared with each other &against recommended models of care" doi.org/10.7224/1537...

"The objective of this scoping review is to identify freely available resources to assist people with #MultipleSclerosis in preparing for #NaturalDisaster & to develop recommendation regarding necessary content for valuable disaster preparedness #resources for" PwMS." doi.org/10.7224/1537...

Our July/August cover features Mara Ruvalcaba's "Hidden Roots" from the MSAA's art showcase 2025. mymsaa.org/artshowcase2...
#NeuroArtFriday

"Although there have been advances in the scientific understanding of the impacts of #pregnancy on #MultipleSclerosis disease course, patient understanding has not kept pace."
doi.org/10.7224/1537...

"This series draws attention to [tumefactive #demyelination] as an uncommon cause of cerebral #lesions in #older patients. We highlight the importance of MRI and ancillary tests to diagnose TD and avoid invasive investigations."

doi.org/10.7224/1537...

"Collaborative efforts in the region are pivotal to enhance standards of care and research to address these challenges, as well as the inclusion of patients from diverse ethnicities and races in randomized controlled trials." doi.org/10.7224/1537...

Virtual Dance Program for Multiple Sclerosis: Feasibility, Quality of Life, and Motor Imagery Outcomes

"This study seeks to lay groundwork for #virtual [ #MultipleSclerosis] #dance programs.... We [also] investigated whether there are measurable differences in #MotorImagery ability before and after the dance intervention..."
doi.org/10.7224/1537...

"[T]his study aims to evaluate prevalence of #apathy in people in early phase of relapsing-remitting #MultipleSclerosis (RRMS). The association between apathy & clinical characteristics, cognitive functions, neuropsychiatric symptoms & quality of life will also be assessed." doi.org/10.7224/1537...

"Managing #MultipleSclerosis is complex, highlighting the need for structured therapeutic patient #education ( #TPE) to improve quality of life ( #QOL)& help patients better manage daily challenges. This study aimed to evaluate the effect of a structured TPE program..."
www.ijmsc.org/view/therape...

#NeuroArtFriday #CircleOfWillis #BoardGame

"Although studies regarding #MultipleSclerosis (MS) and #OlfactoryDysfunction (OD) have been previously described & summarized, there is not a sole #review of longitudinal studies.... This review examines the existing literature investigating MS & its effect on #olfaction."

doi.org/10.7224/1537...

"...distinct pattern of impairment was found for #ambulation and...[arm function]. Independent assessment of multiple aspects of disability may be helpful in treatment decision-making & could support development of rehab strategies that specifically target #UEF..."
doi.org/10.7224/1537...

"[P]arents of #adults with [ #MultipleSclerosis] strove to limit the impact of MS on [them] by undertaking practical caring activities & providing emotional support. The developed theoretical model illustrates how... #parents experienced competing demands..."
doi.org/10.7224/1537...

"As [medical #cannabis] use increases with state access programs, clinical research describing optimal MC doses, #THC to #CBD ratios, and administration routes to relieve symptoms in [people with #MultipleSclerosis] is lacking." doi.org/10.7224/1537...

Francois Bethoux on a personal favorite after 10 years as editor in chief of IJMSC. Read more about his path in medicine, AI in clinical care & publishing, and more in his Q&A.

www.neurologylive.com/view/francoi...

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#MultipleSclerosis #research #CMSC #MSAA

Study "evaluates #fatigue experience...in people with #MultipleSclerosis to investigate whether there is a relationship between fatigue, #interoceptive awareness & #emotional susceptibility...."
www.ijmsc.org/view/investi...

"The period following AHSCT was described as ‘journey back’ from state of illness & alienation, characterized by disability & uncertainty, to state of health, stability & healing. ....[A] participant...captured...this strikingly: ‘I became Jennifer again.’"
#NeuroArtFriday doi.org/10.1371/jour...

"[C]ommunity #mobility changed as [ #MultipleSclerosis] progressed, with significant differences in avoidance behavior...among 3 #ambulation groups....individuals in earlier stages of ambulation disability avoided crossing busy street &...different ambient conditions." www.ijmsc.org/view/an-expl...

"Health care providers are well-positioned to help their patients with [ #MultipleSclerosis] identify their needs in the event of a #disaster and take appropriate steps to improve their #emergency preparedness."
www.ijmsc.org/view/climate...

" #Outdoor adventure programs could be...behavioral intervention to improve #mood & #MS-related symptoms using radically different structure.... More research is necessary to understand whether [OAP] would increase access to & engagement in behavioral interventions..." www.ijmsc.org/view/outdoor...

"As a person doing #art… it’s therapeutic for me. It keeps me going, keeps me thinking about other things in life, not always work, work, #work…." Ahmed Zayed Obeidat, MD, PhD

www.ijmsc.org/view/ahmed-o...
#NeuroArtFriday

"No offer of #DMT & delays in #initiation were primarily due to need for imaging & specialty referrals, as well as financial barriers. Medication assistance teams may play crucial role in limiting delays & financial hurdles associated with #insurance coverage..."
www.ijmsc.org/view/evaluat...

Proteomic Biomarker Panel for Gauging Multiple Sclerosis Disease Activity: A Case Series From Real-World Use

"The serum-based multiplex #proteomic assay #MultipleSclerosis Disease Activity (MSDA) test is a clinically validated and newly emerging #biomarker platform that monitors 18 serum proteins including neurofilament light chain."
www.ijmsc.org/view/proteom...

Shedding Light on the Black Box of Rehabilitation: Differential Short- and Long-Term Effects of Multidisciplinary Multiple Sclerosis Rehabilitation

"... #inpatient [ #multidisciplinary #rehabilitation] improves functioning & health-related quality of life in people with #MultipleSclerosis; the type, degree, & persistence of the benefits are associated with a patient’s main focus area of rehabilitation..."
www.ijmsc.org/view/sheddin...