Breathe with MD, Inc.

You can access two of our popular medical self-advocacy tools on breathewithmd.org. Learn about the Respiratory Care Information Card at breathewithmd.org/respiratoryi... and the Clinical Considerations Form at breathewithmd.org/clinicalcons....

#BreathingMuscleWeakness
#NeuromuscularDisease

Mouthpiece ventilation (MPV) is an option for some Noninvasive Ventilation (NIV) users who need mask-free breathing support during the day.

"Breathe community" member Anna shares her success with volume support MPV: app-strapi-swe-uat.azurewebsites.net/uploads/MAR_...

Did you see our July email update earlier this week? If not, read it here: conta.cc/46xlAoC

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy

We hope you are able to find some joy in this day.

#FourthofJuly

Did you see our June email update earlier this week? If not, read it here: conta.cc/44CEB7q

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy

Knowledge is power and can save lives! See our supplemental Oxygen caution-related animations playlist at www.youtube.com/playlist?lis....

#BreathingMuscleWeakness
#MuscularDystrophy
#NeuromuscularDisease
#SupplementalOxygen
#OxygenTherapy
#RespiratoryFailure

Wishing a Happy Father’s Day to all!

Did you see our May email update earlier this week? If not, read it here: conta.cc/4mAOauP

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy

Does your clinician measure MIP and MEP on Pulmonary Function Testing (PFT)? Measures of MIP and MEP will can show respiratory muscle weakness when FVC (Forced Vital Capacity) does not.

Reference: www.annualreviews.org/content/jour...

#BreathingMuscleWeakness
#NeuromuscularDisease

Do you have questions on mechanical ventilation? If so, fill out our form at forms.gle/VPwzVw49PQje... to tell us what YOU want to know about mechanical ventilation for Neuromuscular Disease (NMD). We will select as many questions as possible to answer.

#VentilatedVoices
#BreathingMuscleWeakness

Knowledge is power and can save lives! See our supplemental Oxygen caution-related animations on our YouTube Channel in a playlist located at www.youtube.com/playlist?lis....

#BreathingMuscleWeakness
#MuscularDystrophy
#NeuromuscularDisease
#SupplementalOxygen
#OxygenTherapy
#RespiratoryFailure

Did you see our April email update? If not, read it at conta.cc/4jJejoK

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy

Consider asking your Neuromuscular breathing clinician if painless methods to measure Carbon Dioxide (CO2) via the exhaled breath (capnography) or through the skin (transcutaneous) might be available to you.

Reference: www.breathenvs.com/e-m-older-ch...

Accounts for our free, self-paced, online course, “Breathing Muscle Weakness 101,” are still available.

Enroll here, and please allow our volunteer approximately 48 hours to send your account details: forms.gle/kYZVhzUPv9d3...

See article:
practicalneurology.com/articles/202...

#BreathingMuscleWeakness #NeuromuscularDisease #MuscularDystrophy

Our “Clinical Considerations for Neuromuscular Disease (NMD) Patients” form is a self advocacy resource for those who use assisted/mechanical ventilation.

Learn more at
breathewithmd.org/clinicalcons..., and download the form at the bottom of the page to print and begin using it.

ONE WEEK until enrollees will get their account information, log on, and learn! Have you enrolled?

Learn more: breathewithmd.org/education.html

Fill out the form at forms.gle/VPwzVw49PQje... to tell us what YOU want to know about mechanical ventilation for Neuromuscular Disease (NMD). We will select as many questions as possible to answer in social posts, our Living Ventilated blog, and/or in our monthly email updates.

Do you know what happens to cause respiratory involvement in NMD? Are you familiar with the appropriate management and intervention options? With our self-paced, online course, learn all of this and more!

Learn more here: breathewithmd.org/education.html

Enroll here: forms.gle/kYZVhzUPv9d3...

It costs nothing to support our mission, except for the time it takes to comment on or share our posts, to mention us on your social media and/or in groups, and to tell others about us. We appreciate your support. Find our mission here: breathewithmd.org/missionandpr...

Our 2025 version of “Breathing Muscle Weakness 101,” our FREE online course for individuals living with Neuromuscular Disease (NMD) and their loved ones, will be enrolling students soon. Stay tuned for forthcoming details.

#BreathingMuscleWeakness #NeuromuscularDisease

Knowledge is power and can save lives! See our supplemental Oxygen caution-related animations on our YouTube Channel in a playlist located at www.youtube.com/playlist?lis....

#BreathingMuscleWeakness
#MuscularDystrophy
#NeuromuscularDisease
#SupplementalOxygen
#OxygenTherapy
#RespiratoryFailure

Our Evaluation webpage on our website provides an overview of what individuals living with an NMD in the US should expect when seeking a clinical evaluation of their condition’s respiratory involvement. Check it out at breathewithmd.org/evaluation.html.

#BreathingMuscleWeakness

You may have noticed our decreased presence on social media and our slower response. We are working through a COVID-19 infection and a subsequent rebound infection. Our hope is to get back to our usual day-to-day operations the week of February 17.

We hope everyone is staying well!

The “ALS RespCare Course” is a free US National Online ALS Respiratory Care Course that is an accredited continuing education course.

We encourage those living with Neuromuscular Disease and their loved ones to tell their physician specialists about it. Learn more at
alsrespcare.com/homepage.php

Our monthly email update was sent last week. Read it at conta.cc/4jNvXJd.
#BreathingMuscleWeakness #NeuromuscularDisease #MuscularDystrophy

Preparing for surgery or any procedure that requires anesthesia? You may find our page breathewithmd.org/surgery.html informative and helpful. Also, our video playlist at youtube.com/playlist?lis... may also be of interest to you.

#BreathingMuscleWeakness
#NeuromuscularDisease
#MuscularDystrophy

All of our recently developed supplemental Oxygen caution-related animations are available on our YouTube Channel in a playlist located at www.youtube.com/playlist?lis....

#BreathingMuscleWeakness
#MuscularDystrophy
#NeuromuscularDisease
#SupplementalOxygen
#OxygenTherapy
#RespiratoryFailure

http://breathewithmd.org/ We educate and raise awareness about breathing muscle weakness in Neuromuscular Disease and equip individuals to advocate for their own appropriate respiratory care. Our focus is on noninvasive venti...

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