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ALK Positive Australia Inc.

@alkpostitiveaust.bsky.social

A charity dedicated to support & research for ALK Positive Cancer patients in Australia.

49 Followers  |  38 Following  |  35 Posts  |  Joined: 24.04.2025  |  1.7956

Latest posts by alkpostitiveaust.bsky.social on Bluesky

Identifying Dependencies of Drug Tolerant Cells in ALK Positive Lung Cancer.
YouTube video by ALK Positive Australia Identifying Dependencies of Drug Tolerant Cells in ALK Positive Lung Cancer.

Can we find a way to manage drug resistance & progression in ALK+ lung cancer? Here is a link to Dr. Dane's presentation on his research into this very question. It is science-heavy, but do stick with it as the information within is truly exciting for our community. youtu.be/Z5fg4akM1eo?...

05.02.2026 05:07 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Why does resistance develop in ALK+ lung cancer, and how might it be prevented?
Please join our webinar with Dr Vassiliadis, recipient of the 2026 ALK+ Inspirational Research Grant. This research goes directly to the question at the core of our community.
REGISTER NOW: forms.gle/HL6MHup8UB5S...

29.01.2026 00:38 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Patient - ALK Positive Australia Find essential Patient Information for ALK Positive Lung Cancer, including resources and support groups for patients and caregivers.

A reminder that there is a (downloadable) Patient Information Guide on our website, which aims to provide patients & carers with clear, correct & current information about ALK positive lung cancer & its treatment in Australia. alkpositive.org.au/patient/

29.01.2026 00:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Second Opinion Program | ALK Positive Eligible members can connect with ALK-positive lung cancer specialists for free through the ALK Positive Second Opinion Program.

An incredible annoucement regarding the ALK Positive Inc Second Opinion Program & its availability to those outside the US: alkpositive.org/living-with-...

15.01.2026 23:49 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We are so pleased to have you on our team Dr Vassiliadis.

02.12.2025 00:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Do you have Lung Cancer and are taking a Targeted Treatment?
A research project is being conducted seeking to understand the experience. It takes about 20 minutes - please consider sharing your story: mquni.au1.qualtrics.com/jfe/form/SV_...
Your journey is unique. Your insights are powerful.

02.12.2025 00:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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As Lung Cancer Awareness month comes to a close please consider buying a pair of laces & supporting much needed research into the leading cause of cancer deaths worldwide & in Australia. docs.google.com/document/d/e...

28.11.2025 02:55 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Such an epic undertaking, raising funds for research. We are cheering you on every day!

23.11.2025 23:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Patient - ALK Positive Australia Find essential Patient Information for ALK Positive Lung Cancer, including resources and support groups for patients and caregivers.

We have a Patient Information Guide that is downloadable on our website, that provides an excellent overview of ALK+ cancer & the treatments available to us in Australia. alkpositive.org.au/patient/

21.11.2025 03:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The '4' in Laces4Lungs represents both AJ's age - 4 months old - and the stage of his Mums ALK+ lung cancer, at diagnosis. What a powerful fundraising drive this has become.
Order your laces today: docs.google.com/document/d/e...

18.11.2025 22:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This Lung Cancer Awareness Month, Bec & Chris Henry are pedalling 620km over 5 days, visiting every PET scan centre in WA.

Their goal? To raise $10,000 for lung cancer research and treatment.

Together, we can change the future of lung cancer care.

Donate here >

17.11.2025 22:30 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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TOGA Announces Recipients of the 2026 Inspirational Research Grants - TOGA - Thoracic Oncology Group Australasia The Thoracic Oncology Group of Australasia (TOGA) is thrilled to announce the recipients of the 2026 Inspirational Research Grants.

What a week it has been for the ALK+community in Australia. Not one but TWO grants awarded this week that focus on advancing research in ALK Positive lung cancer. Go Science!
thoraciconcology.org.au/inspirationa...

13.11.2025 23:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We could not be more thrilled with these announcements today - empowering researchers with the resources they need to make a real difference to our community. Bravo to all involved!

12.11.2025 04:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Identifying ALK+ resistance pathways is at the very core of what is important to us all. That makes the announcement of Dr Vassiliadis as the recipient of the ALK Positive Australia/TOGA Inspirational Grant for 2026 so thrilling.
Every $ donated to ALK Positive Australia goes towards research.

12.11.2025 04:00 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
Ms Roxanne Chen - Understanding anaplastic lymphoma kinase (ALK).....
YouTube video by ALKPositive Experts Ms Roxanne Chen - Understanding anaplastic lymphoma kinase (ALK).....

An excellent presentation for those of you interested in the science behind this disease & the way we move forward with treatment. A must watch, and delivered in a very approachable way. Thanks you Ms Chen and@alkpositiveuk.bsky.social @florianmerkle.bsky.social
youtu.be/ZlYnuuvLWuE?...

06.11.2025 04:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Living Longer with ALK Positive Lung Cancer: Share Your Story - ALK Positive Australia Australians with advanced ALK positive lung cancer can share their experiences in a confidential 30–60 min interview to improve care. Email ALKpositive@sjog.org.au.

November is Lung Cancer Awareness Month, a time to elevate patient voices. Please consider sharing your story. alkpositive.org.au/2025/11/05/l...

05.11.2025 23:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#Lungcancer can affect anyone - even if it’s the last thing you’d expect. It doesn’t care about age, history or lifestyle.

Symptoms aren’t always obvious they can be subtle & not always respiratory related.

Don’t ignore signs that persist. Finding it early increases your options. #LCSM

03.11.2025 08:30 β€” πŸ‘ 10    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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Buy your @laces4lungs today! Bling up your shoes whilst supporting ALK Positive Australia & standing with us for Lung Cancer Awareness month. Buy your Laces4Lungs today!
ORDER HERE: docs.google.com/forms/d/e/1F...

02.11.2025 23:54 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Membership Application - ALK Positive Australia Learn how to submit your ALK Positive Australia Membership Application and stay informed about ALK positive cancer support.

ALK Positive Australia have released their inaugural newsletter! It is jam-packed with ALK+ news & achievements. If you are interested in receiving a copy please sign up here: alkpositive.org.au/membership-a...

02.11.2025 01:24 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Lung cancer is the leading cause of cancer death in Australia but receives less than 6% of the research funding. 35% of women & 15% of men diagnosed with lung cancer have never smoked. Help us drive research this November: alkpositive.org.au/donate/

31.10.2025 22:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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ALK+ community please follow Laces4Lungs and throw your support behind this wonderful initiative, with all proceeds going to ALK+ Australia.
Well done AJ - you are a star!⭐️⭐️⭐️⭐️⭐️

www.facebook.com/profile.php?...

23.10.2025 03:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Our website got a glow-up!
Launching in the next few days β€” same mission, fresh new look.

Got feedback or ideas? Drop us a message here or email secretary@alkpositive.org.au

09.10.2025 23:58 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Sending deep gratitude & support from Down Under.

10.09.2025 23:54 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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"WHAT IS IT REALLY LIKE TO LIVE WITH ALK ON TKI'S IN AUSTRALIA?"
Share your story in this important study. This is open to any Australian ALKie at Stage IIIB or IV on a TKI for more than 12 months. It will be an online interview for 30-60 minutes.
Email alkpositive@sjog.org.au to share your story.

25.08.2025 03:13 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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- 36 Australians are diagnosed with lung cancer every day.
- Lung cancer is the leading cause of cancer death in Australia, but attracts less than 6% of cancer research funding.

Today we acknowledge those raising awareness & working towards better outcomes for lung cancer patients.

01.08.2025 01:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Our Chair Jon & Dep Chair Lisa with Prof Nick Pavlakis, Prof Ben Solomon & Prof Tom John at the @togaanz.bsky.social ASM - working together for better outcomes for ALK Positive patients.

31.07.2025 01:03 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We could not be prouder of our Dep Chair & friend Lisa Briggs - the recently announced recipient of the 2025 Jeannie Ferris Award. Bravo Lisa - thank you for all that you do. You are a force!

30.07.2025 01:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
The ALK Positive Australia & TOGA Inspirational Research Grant applications are now open!
YouTube video by ALK Positive Australia The ALK Positive Australia & TOGA Inspirational Research Grant applications are now open!

The TOGA/ALK Positive Australia Inspirational Grant applications are now open! youtu.be/DzZBR6DPAN8?...

09.07.2025 02:20 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

🀝 Eligibility: Projects must involve consumer representatives.

Get ready to apply and make an impact!

Let’s work together to drive real change.

Find out more > buff.ly/2Tv3YUR

07.07.2025 02:00 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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The ALK+ Australia & TOGA Inspirational Research Grant applications are now open! We are proudly seeking innovative research that makes a real difference for people living with ALK-positive lung cancer. thoraciconcology.org.au/inspirationa...

03.07.2025 01:21 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@alkpostitiveaust is following 20 prominent accounts