Iโm just getting oriented. Some great old bird app friends are emerging here. Hoping for a happier funnier place.
01.01.2025 20:33 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0@schultzielawyer.bsky.social
Award winning Canadian litigator @ Schultz Law Group LLP. Advocate and fundraiser for kids with disabilities and medical complexities. End Duchenne. Believer that hugs and laughter are medicine. Hopeful.
Iโm just getting oriented. Some great old bird app friends are emerging here. Hoping for a happier funnier place.
01.01.2025 20:33 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Very interesting. Iโm a (happy and somewhat innovative) law firm owner in Canada and taught the Business of Law course at the University of Windsor, happy to connect if that could be valuable.
22.12.2024 12:21 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0While we live in Canada, I felt it was still important to share this post. When Emery was diagnosed with #Duchenne in 2012, we hoped for but didnโt have any certainty that new treatment would arise. Ems was part of the #Givinostat drug trial-his & othersโ fearlessness will help change the ๐ for #DMD
21.12.2024 13:48 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Magic in the mundane
Iโm sharing @gurdeeppandher.bsky.social wonderful article below, especially for the #Duchenne #DMD community. It feels so heavy and so hard, all the time, because it is. But our boys are children or were, and so were we once. There is magic to be found, even in the mundane.
So happy to see the Remarkable Life of Ibelin discussed in the Algorithm Breakers. A film about community, what it is to live while dying from #Duchenne. @mattgalloway.bsky.social this film is part of why I messaged you about the value of social media and an online life for kids with disabilities.
07.12.2024 04:55 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Imagine a world with more Slaight Family Foundations. A world of giving and hope, and possibility for all. Iโm incredibly proud of Holland Bloorview Kids Rehab Hospital for their leadership role in this phenomenal donation and the legacy it will create.
05.12.2024 11:58 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0@oudmarcus.bsky.social merges onto the DVP while releasing into the universe โletโs all be kindโ.
Worthy of a Bluesky share ๐ค
Iโm craving a Toblerone.
04.12.2024 02:37 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0@mattgalloway.bsky.social hi Matt, listening to your show about Australiaโs new ban on social media for under 16 year olds. Would love to see a discussion about the value of social to kids with disabilities re: connectivity and community. ๐
03.12.2024 13:50 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Indeed! Well, my Dutch husband has returned to his Limburg roots, joining us as @oudmarcus.bsky.social
Note to all, our content and interests will be very different, apart from #Duchenne ๐
Looking forward to this new era!
My husband, who has never been on the bird app or even LinkedIn, is setting up his BlueSky account. It might take a few days as he is obsessing about his handle๐
That said, if he joins, itโs a sign that the sky really is the limit on this app - a true non joiner joining!
Hi Brent, please add me. Thanks!
15.11.2024 12:01 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0New here. Happy to be off you know what. #Law #DuchenneMuscularDystrophy #BetterTogether
15.11.2024 02:51 โ ๐ 6 ๐ 0 ๐ฌ 0 ๐ 0