@johnniebgoode.bsky.social
Living with Primary Progressive Multiple Sclerosis Medically retired but finding new roles after diagnosis in May 2022 Music fan
www.youtube.com/watch?v=F4PT...
Please share with your networks. Let's raise money for essential research.
Saw The Last Dinner Party last week. They were excellent.
31.10.2025 20:32 β π 2 π 1 π¬ 0 π 0
Saw A Void as support to Ugly Ozo this week. Excellent.
31.10.2025 20:29 β π 0 π 0 π¬ 0 π 0
Saw Ugly Ozo this week
31.10.2025 20:27 β π 0 π 0 π¬ 0 π 0
Saw The Last Dinner Party last night. Quite brilliant.
20.10.2025 08:09 β π 0 π 0 π¬ 0 π 0
My new tattoo. Damaged myelin on a nerve.
24.07.2025 20:52 β π 1 π 0 π¬ 0 π 0
I am sailing stormy waters to be near you.
24.07.2025 20:51 β π 0 π 0 π¬ 0 π 0
From Jessica Winter's in store appearance at Vinilo Records Southampton.
24.07.2025 20:48 β π 0 π 0 π¬ 0 π 0
From Panic Shack's inΜ store appearance at Vinilo Records Southampton.
24.07.2025 20:46 β π 0 π 0 π¬ 0 π 0Jessica Winter made an in store appearance at Vinilo Records in SouthamptonΜ last night
18.07.2025 04:17 β π 2 π 0 π¬ 0 π 0
www.youtube.com/watch?v=2CI1... My debut on YouTube,
25.04.2025 16:41 β π 2 π 0 π¬ 0 π 0
Another great night at Vinilo Records Southampton and an in store appearance by Those Damn Crows. #livemusic #disability #multiplesclerosis #thosedamncrows
14.04.2025 07:10 β π 2 π 0 π¬ 0 π 0
Record Store Day at Vinilo Records Southampton, They had sold out of the 7 inch single Come up and see me (Make me smile) originally released 50 years ago and one of the first singles I ever bought.
12.04.2025 14:35 β π 3 π 0 π¬ 0 π 0
Saw the great Better Joy last night, They were very good. Support Harvey Jay Dodgson an unexpected bonus. #betterjoy #livemusic
06.04.2025 17:35 β π 1 π 0 π¬ 0 π 0
Went tp see the wonderful Thea Gilmore last night. My first time but I have been a fan for 30 years. Spoke to her after the show and apologised for being late to the party. She is such a nice person. #TheaGilmore #livemusic #Papillon
02.04.2025 07:20 β π 0 π 0 π¬ 0 π 0Nothing like competent parents to make you feel you do not meet the grade. But do they have a record player or tickets to see Thea Gilmore and Better Joy next week? I rest my case.
29.03.2025 21:59 β π 0 π 0 π¬ 0 π 0
One wonders whether the irony of hiding and interview with a campaigner who is concerned and reduced welfare behind a paywall is lost in the i. Very pleased with the quote that those living with MS are not wastrels or ne'er-do-wells. #disability #multiplesclerosis #PIP
29.03.2025 21:52 β π 0 π 0 π¬ 0 π 0
www.bbc.co.uk/iplayer/epis... Available (in the UK only) for 23 days. #disability #multiplesclerosis #PIP
29.03.2025 21:46 β π 0 π 0 π¬ 0 π 0
www.eastleighnews.co.uk/2025/03/chan... For the third time this week I am in the news. This time as a champion of the Wessex Secure Data Environment. I do like the photo from 12-12 years ago, above Afghanistan. #research #improvedhealthoutcomes #multiplesclerosis #disability
29.03.2025 21:41 β π 0 π 0 π¬ 0 π 0
Welly's album with added John Street. #vinilorecordstore #vinyl #Welly
26.03.2025 20:03 β π 3 π 0 π¬ 0 π 0
Saw and met Welly (well 60% of them) at the Vinilo Record Store on Tuesday night.
26.03.2025 20:01 β π 0 π 0 π¬ 0 π 0
www.youtube.com/watch?v=1G7a...
Without the support of people like you the revolution will not start (at closing time - far fans of punk band Serious Drinking - or any other time.) #multiplesclerosis #stopMS #disability #research
www.bbc.co.uk/iplayer/epis... Watch from 6 minutes to see my friend Phoebe Day and I talk about PIP. #disability #multiplesclerosis #benefits
23.03.2025 11:54 β π 0 π 0 π¬ 0 π 0
Caught HotWax making an instore appearance at Vinilo Records last night. The NME describe their new album as a blistering debut from future rock titans and they are not wrong. #livemusic
13.03.2025 08:15 β π 3 π 0 π¬ 0 π 0
Chuck Prophet on Tuesday night #livemusic
06.03.2025 21:19 β π 2 π 0 π¬ 0 π 0
Listen from 13:37 to hear a text from John in Southampton (I wonder who that is?) who updates the nation on both a Chuck Prophet gig he attended and say that as he has Multiple Sclerosis he is resting up. MS mentioned on national radio. #multiplesclerosis #disability #invisibledisability #livemusic
06.03.2025 10:56 β π 1 π 0 π¬ 0 π 0
Well worth a listen to learn more about Multiple Sclerosis. I am lucky not to have the uncertainty of Relapsing Remitting MS. I mourn my old life but I step forward to embrace the future and what it will bring. #disability #multiplesclerosis #nexttattoo
www.thenakedscientists.com/podcasts/nak...
My wife separated from me before my diagnosis. Good. I do not need bad stuff now. Stay strong,
20.02.2025 23:11 β π 1 π 0 π¬ 0 π 0Stay strong in your battle.
20.02.2025 22:47 β π 1 π 0 π¬ 0 π 0
