Clare Hadley

Stick 'em up!

No-one else in my family has MS but my mum, sister & niece all had ME. I can’t help thinking my MS links to it in some way.

I’d have thought so!
Of course the documentary only shows one side but given some of the original evidence has been retracted it’s hard to see they’d have anything convincing.

I watched it this afternoon. They make quite a convincing case, all the original evidence was circumstantial but added up to convict her. However if that some of that evidence comes under doubt there really doesn’t seem to be enough to go on.

It gets very confusing!
So many MS symptoms could be something else & they all flare up randomly from time to time. Several times I’ve had my left ear checked for infection, but no, it’s just random MS ear-ache 🤷🏻‍♀️

So glad you got help when you needed it. I hope you’re feeling loads better tomorrow & the smoke clears.

Love having sweet peas in the garden & plenty to cut & bring indoors. Unfortunately haven’t quite recovered my sense of smell after covid yet. I have to get my nose right in there & take a good deep sniff to get just the slightest hint of their perfume.

Sorry to hear this Mal, glad you’re ok.

Ooh, disappointing! I have to say I fell for the story although you always know these things are written with a lot of bits exaggerated & others left out.
2nd & 3rd books repetitive & boring, film very dull! I won’t be bothering with the 4th…

Very scary!
It's such a slog ringing round everywhere too. OH did all that on the first prescription but wasn't around for the second one. If I'd felt worse I wouldn't have managed it.

All the pharmacies we spoke to said suppliers simply couldn’t supply either drug to them. GPs were unaware of the problem - hopefully it’s short-lived & they’ll be available again soon

For #MSFriday this week, my experience of #MS & anti-virals:

I tested +ve earlier this week & was prescribed paxlovid, but none to be found anywhere. Same story with the only alternative, molnupiravir🤷🏻‍♀️

Worrying situation for MS patients but luckily my symptoms haven’t been bad & I’m on the mend 🙂

I tracked mine for a while, but couldn’t see a pattern so in the end just decided it wasn’t a very useful thing to do

3 males! That’s good news for numbers returning to Poole Harbour 🙂

We had a garden visitor! So excited to see a little hedgehog trundling along 🥰

Lovely to see the wildflower seeds I scattered a couple of years ago are coming into their own...

Good to be part of this group & great to meet in person this week!
Looking forward to getting involved in more future projects - so important to have our voices valued by those influencing policy.
‘Nothing about us without us’
#MS

How’s your #MSFriday shaping up?
I’m in recovery mode (ie quiet day pottering at home then feet up with wine….) after a trip to London for a @denpru-qm.bsky.social meeting. Great to meet the team in person & feeling positive about involvement in research projects ahead.

All of these seem to help, they have common elements yet they’re all a bit different.
The psychological benefit of taking some level of control is definitely a common factor!

So difficult & reminds me of our experience with my dad a couple of years ago. Alzheimer's, chest infection, covid, flu all made it impossible to investigate & treat the bowel cancer we all suspected.
In the end managing symptoms rather than prolonging end of life was the best way forward
Xxx

Sending hugs, we're all so amazed by what you're doing!

Morning!
Things ok here, sun’s shining & forecasts say this afternoon’s rain will pass us by.
Off on an Osprey spotting tour with @harbourbirds.bsky.social this afternoon so 🤞the forecasts are right.

Squirrel walk on Brownsea Island

The main thing that trips me up is my own feet!

Yeah, we often hear it & you can see tyre marks on the road where they’ve done donuts.
I think they use local car parks too.

I do get naughtier than that or I'd never eat out!
Our sailing club does a small portion of GF fish & chips & I do occasionally have that with no obvious I'll effect. I do get a good wallop of fatigue if I indulge in sugar though.

That looks good!
My sister gave me a bottle of 'misogrette' salad dressing. Somewhat processed & probably not really OMS compliant, but very tasty!

I don't miss meat or milk & cream, but it's that satisfying complex hit of umami you get with a good cheese. I occasionally get a good artisan vegan cheese but a lot of those have quite a bit of coconut oil.
I wouldn't miss crisps but can't stop myself when they're there 🤷🏻‍♀️

I still can’t resist the odd slither of cheese, especially something like gruyere. Otherwise not too bothered.
With some of the processed stuff it’s just hard to break the habit - I go on autopilot reaching for the crisps.

#pottery