CURE Epilepsy

The best seizure action plan is one that fits your real life. Your plan should reflect where you go and who is around you, especially because you may not be able to explain what you need. A plan makes sure the right steps are in place.

➡️ Learn more: https://bit.ly/4c7PfaA

Rescue meds can stop certain seizures, but only if others know when and how to use them. A seizure action plan spells this out clearly, so that teachers and colleagues can act quickly and confidently. Learn more here: https://bit.ly/4c7PfaA

#SAPAW2026 #SeizureActionPlans

Welcome Drew, 2026 Community Enrichment Program intern! Drew has lived with epilepsy since age 12. This internship will help him reach his goal of making a difference for others in the epilepsy community.

Thank you to SK Life Science, Inc. for their generous support of this program!

Is your seizure action plan up-to-date? Seizure Action Plan Awareness Week is a great time to check! And if you don't have a plan, consider this your sign to consider making one.

Learn more about seizure action plans here: https://bit.ly/4c7PfaA

#SAPAW2026 #SeizureActionPlans

Join us at CURE Epilepsy Takes Manhattan, an evening of music, laughter, and stories with Miguel Cervantes and his Broadway friends! Past performers include Tamar Greene (Hamilton), Ginna Claire Masón (Wicked), David Josefsberg (Waitress), and more. Get your tickets here: https://bit.ly/4rsNDwp

Ten Years of Accumulation: Snow-Day Thoughts Between Jonas and Fern Decade. Over the past week, winter storm Fern has blanketed large parts of the United States with several feet of snow, leading to a virtual standstill in many regions. When I looked back, I realiz…

What's changed in the field of #epilepsy #genetics and precision medicine over the past 10 years? Dr. Ingo Helbig reflects on that exact question in a recent blog post. Check it out here: https://epilepsygenetics.blog/2026/01/27/ten-years-of-accumulation-snow-day-thoughts-between-jonas-and-fern/

Use of the AES Behavioral Health Toolkit will help clinicians identify symptoms of #anxiety, #depression, or suicide risk in people with #epilepsy or seizures. buff.ly/BCCS3mP

Join us in congratulating our latest grantees!
Dr. Christos Lisgaras, Nathan Kline Institute
Drs. Sonja Bröer, Florian Heyd, Rossella Di Sapia, Free University of Berlin
Dr. Mahboubeh Ahmadi, University of California, Riverside
Dr. Aswathy AmmothumKandy, @usc.edu
Dr. Alex Felix, @upenn.edu

Editor's Choice 2025: The Journal of Physiology <em>The Journal of Physiology</em> publishes research in all areas of physiology and pathophysiology that illustrates new physiological principles or mechanisms.

Congrats to Dr. Gordon Buchanan! A study supported by a CURE Epilepsy Award, in partnership with the Joanna Sophia Foundation, was listed as a 2025 Editor's Choice at Journal of Physiology (June): https://physoc.onlinelibrary.wiley.com/doi/toc/10.1111/(ISSN)1469-7793.Ed-Choice-2025?page=1

Research News + Latest Research Stay up to date with the latest developments across the epilepsy research community--from publications to news articles.

In this month's Epilepsy Research News:
🧠 Reducing Seizures and Restoring Memory
❤️‍🩹 Depression Increases Epilepsy Risk, Makes it Harder to Treat
🧈 Linking Metabolic Defects to Dravet
👵 Late-Onset Epilepsy a Distinct Neurodegenerative Subtype?

https://www.cureepilepsy.org/news/

Genetic Testing in Adult Epilepsy: GEAN’s Plan to Standardize Practice and Study Adult Outcomes | NeurologyLive - Clinical Neurology News and Neurology Expert Insights Elizabeth Gerard, MD, an epileptologist at Northwestern Medicine, provided clinical insights on a new consortium, GEAN, which aims to expand genetic testing and define adult phenotypes for rare geneti...

Dr. Gerard joined @neurology_live to give insights on a new consortium, GEAN, aiming to expand genetic testing and define adult phenotypes for rare genetic epilepsies. Check it out: https://www.neurologylive.com/view/genetic-testing-adult-epilepsy-gean-plan-standardize-practice-study-adult-outcomes

A wonderful result from the lab of our good friend, Dr. Baraban! Here's to many more sea-zure free years.

If you're a new parent, read this to understand more about febrile seizures.

8-Year-Old Has Disease So Rare It Doesn't Have a Name. Now He's First in the World to Receive Treatment (Exclusive) Amber Freed tells PEOPLE how she worked for years to find a treatment for her son Maxwell's SLC6A1 diagnosis, and finally got the treatment administered in September, making history in the process.

8-year-old Maxwell, with a disease so rare it didn’t even have a name, just became the first to receive a breakthrough gene therapy thanks to relentless research and breakthrough gene therapy. Hope in action. 💙 #raredisease #epilepsy #gentics

Full story: https://bit.ly/4oRXtWV

Febrile Seizures – CURE Epilepsy Seizure types are classified by where they begin in the brain, consciousness changes, and symptoms. Learn how each type presents and is managed.

Our febrile #seizures overview provides a clear summary of febrile seizure types, causes, risk profiles, diagnostic considerations, and current understanding of recurrence and future epilepsy risk. Learn more: https://bit.ly/4pZozN2

#epilepsyresearch #neurology #pediatrics

North East epilepsy brain implant trial gives ‘bit of hope’ - BBC News Adam Atkinson has an implant in his brain which is tracking the seizures he experiences.

A UK #epilepsy trial using a #brain implant is uncovering #seizures doctors couldn’t detect before—including during sleep. Families say the research is giving them “a little bit of hope.” 🧠 #Epilepsy #Neurotech #Hope

Learn more: https://bbc.in/44wsZmn

IS can look like reflux or a startle reflex. When in doubt—record, refer, and get an EEG. Every day of delay increases the risk of permanent damage. Learn more at infantilespasms.org.

#ISAW2025 #TimeIsBrain #PediatricCare

Risks can be minimized by avoiding bright flashing lights, covering one eye, wearing dark glasses, and staying far back from screens.
doi.org/10.1111/epi....

#epilepsy #ILAE #epilepsia #guidelines #patternsensitiveseizures #photoparoxysmalresponse #photosensitiveseizures #reflexepilepsy

Every moment matters. Infantile spasms require rapid recognition and referral. Treatment within the first week can change a child’s life. Learn more at infantilespasms.org
#ISAW2025 #Pediatrics #TimeIsBrain

🚨 It’s Infantile Spasms Awareness Week. IS can look like quick head drops or small jerks, but they’re a medical emergency that can cause brain damage. Early action can change a child’s future. When it comes to IS, Time is Brain. Learn more at infantilespasms.org.
#ISAW2025

Childhood absence epilepsy (CAE) often appears as brief staring spells that can be easy to miss. In our new Epilepsy Explained episode, we breaks down what CAE looks like, how it’s diagnosed, and what treatments can help: https://bit.ly/4oUNKjK

A background image of researchers with text that says, "Federal Funding Cuts Hinder Lifesaving Brain Research, written by Michelle Heritage. Featured in USA Today."

Executive Director Michelle Heritage contributed an opinion piece in today’s edition of @usatoday.com in support of #MedicalResearch funding. Scientists are on the verge of breakthroughs; the government should value and continue to fund research. #ResearchFunding

🔬🧠 Read the essay ➡️ buff.ly/Tc4CiJ4

BRAIN-MAGNET: A functional genomics atlas for interpretation of non-coding variants BRAIN-MAGNET, a convolutional neural network trained on 148,198 functionally tested non-coding regulatory elements, predicts enhancer activity directly from DNA sequence and identifies nucleotides ess...

Very pleased to share our latest paper published in Cell:
BRAIN-MAGNET: A functional genomics atlas for interpretation of non-coding variants: Cell www.cell.com/cell/fulltex...
@cellpress.bsky.social, @cp-cell.bsky.social, @ruizhideng.bsky.social #enhancer
here is a thread about our findings:

Personalizing Electrical Stimulation for Focal Epilepsy The connectivity networks between the thalamus and cortex — termed thalamocortical hodology — may be used to treat focal epilepsy.

Highlights from epilepsy research this month:

🧬Fixing a Genetic Brain-Disorder Defect in Mice: https://bit.ly/4pkYA2j
🧠Personalizing Electrical Stimulation for Focal Epilepsy: https://bit.ly/3K07Qd5
🧪Creating CBD-Like Seizure Treatments Without Cannabis: https://bit.ly/4i6pXKM

Seizure Rescue Meds – CURE Epilepsy Learn about seizure recuse medications, including who they can help and what they do. Includes educational resources.

🚨 Take a look at the practical guide to #seizure rescue #medications, what they are, when to use them & what to ask your #neurologist. Dive in: https://bit.ly/4qWJAZO. Made possible by support from Neurelis. #rescuemedication #epilepsy #epilepsytreatment

New Study Brings Hope and Guidance for People Newly Diagnosed with Focal Epilepsy - Westchester Medical Center Health Network A WMCHealth-led study finds most people with newly diagnosed focal epilepsy can achieve seizure freedom, but it often takes over a year and multiple treatments. The research offers hope, clearer expec...

Research from the Human Epilepsy Project offers hope for people newly diagnosed with focal epilepsy, showing that seizure control takes time, teamwork, and personalized care. Early specialist support and precision medicine are key to better outcomes.

🔗 https://bit.ly/46sZsuV

Epilepsy Awareness Month Celebrate Epilepsy Awareness Month in November with CURE Epilepsy—help educate, advocate, and inspire action toward a world without epilepsy.

Happy Epilepsy Awareness Month! Join us celebrating the breakthroughs that help people live better—and reminding everyone why supporting research matters. 💜 #EpilepsyAwareness #CUREepilepsy https://bit.ly/436dtgg

When a genetic test in epilepsy returns a VUS, what’s next? 🧬 Dr. Gemma Carvill and the #ILAE team explain how clinical context + data sharing + the right tools can narrow the uncertainty. #Epilepsy #Genetics #VUS

Learn more: https://bit.ly/47uFyiI

Promotional image for the Partners Against Mortality in Epilepsy conference in Atlanta, featuring three attendees focused on a presentation, with event details and a 'Register Today!' call to action.

📅 Mark your calendars! Join leading voices in patient #advocacy, #epilepsy research, and #SUDEP prevention at the 2025 #PAME Conference December 4, 2025, in #Atlanta.

Registration is now open! https://bit.ly/3WQB4he

It's not too late to register for #AES2025! #epilepsy #neurology

📍 Atlanta | Dec 5–9
✅ Register now: buff.ly/LfiKcir