@projectcask.bsky.social
#ProjectCASK is a nonprofit organization committed to developing treatments and finding a cure for #CASKgene disorders— ultra-rare, severe conditions affecting brain development that currently lack any available therapies.
With just one click, you can give your child’s doctor a full view of their medical journey.
@Citizen.Health not only powers research into CASK, it supports better, more coordinated care for your loved one.
www.citizen.health/partners/project-cask
Our 2024 Impact Report is here! Thanks to YOU, we made incredible strides toward treatments for CASK gene disorders:
🧬 4 groundbreaking studies initiated
💰 $631,408 committed to CASK research
🤝 Global collaboration
📖 Read the full report here: www.projectcask.org/impact
#KickCASK #CureCASK
SAVE THE DATE!!!
This coming Mother’s Day week, we’re celebrating the incredible moms in the CASK community with THE MOTHER OF ALL ART SHOWS — an exhibition and auction featuring 30 original works by acclaimed artists (and some talented CASK mamas, papas, grandpas, grandmas, aunties and uncles!)
Today is International Epilepsy Day - a day to promote awareness of epilepsy around the world.
On this day, we honor those in our CASK community and beyond who live with seizures, and we call on everyone to raise awareness of the impacts of epilepsy in daily life.
Introducing our limited edition Roar for Rare apparel!
Show your colors this #RareDiseaseday because our Liocorns are more than anyone could imagine.
To receive by 2/28 place your order by:
2/17 for domestic
2/12 for international
www.projectcask.org/category/all...
@rarediseasedayofficial
From all of us at #ProjectCASK, thank you. Your generous support throughout the year and specifically our 2024 End of Year campaign means more to us—and to the children and families in #CASKgene community—than words can express. We are energized to scale our efforts in 2025!! For the kids, forever.
03.02.2025 07:55 — 👍 0 🔁 0 💬 0 📌 0
