COVID-19 Longhauler Advocacy Project

Today our #LongCOVIDAwareness letters are on their way out to every US senator, representative, & governor, the president, each states department of health, federal health agencies, public health associations/ medical societies, HHS, & major national and state-based media. 

YOUR UP NEXT!
#LongCOVID

Long COVID Awareness Events 2026- State Organizers & Participants Interest Form March 15th is Long COVID Awareness Day Internationally. We honor Long COVID throughout the month of March and over Long COVID Awareness week, the week of the 15th through the 21st this year. The CO...

We’re hard at work planning & finalizing Long COVID Awareness Month 2026!

So far, over 140 people have signed up as state-based organizers or event participants & we’re still looking for more.

If you’re interested, please add your name to the interest list here: docs.google.com/forms/d/1ZtM...

100+ people registered on day 1! Join us for #LongCOVIDAwareness 2026 & register below!

Opportunities are open beyond C19LAP community members. We welcome other Long COVID groups and organizations to reach out to contact@longhauler-advocacy.org if they wish to collaborate on this initiative.

Please consider sharing this initiative. TY!
#LongCOVIDAwareness #LongCOVIDAwareness2026
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Long COVID Awareness Events 2026- State Organizers & Participants Interest Form March 15th is Long COVID Awareness Day Internationally. We honor Long COVID throughout the month of March and over Long COVID Awareness week, the week of the 15th through the 21st this year. The CO...

Preparing for Long COVID Awareness 2026!
- March is Long COVID Awareness Month!
- 3/15: Long COVID Awareness Day
- 3/15-21 Long COVID Awareness Week!

The COVID-19 Longhauler Advocacy Project is seeking state leads/ organizers & participants! Register & learn more: forms.gle/UYLqmBUDGfvZ...
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Support Our Mission | C19LAP | COVID-19 Longhauler Advocacy Project By partnering with C19LAP, donating, volunteering, or simply amplifying our message, you help us move the needle significantly. As we continue to grow and tackle the challenges of Long COVID, includi...

Still in the mood for holiday giving?

Your gift can make a world of difference when supporting the work of the COVID-19 Longhauler Advocacy Project.

Consider giving today!
www.longhauler-advocacy.org/support-our-...

Background Long COVID (LC) is a systemic, disabling disease that follows COVID-19 infection with no treatments, cures, or therapeutic preventatives, and everyone is at risk. Ten of millions are impacted across t...

The lack of #LongCOVID education has contributed to the largest public health failure of our time.

Our plan offers a scalable, state-implemented, nationally aligned model to rebuild Long COVID infrastructure rooted in education.

Learn more ⬇️
longhauler-advocacy.org/so/5aPiVBtbw...

This #campaign is about building a nationwide public health infrastructure for #LongCOVID, something no federal agency has delivered. Your gift accelerates state-level systems, clinician education, and national leadership.

#Donate this #GivingTuesday. Support #SystemsChange: https://bit.ly/FR4LC26

C19LAP will honor our top 5 fundraisers w/ 100 3M N95 masks, a #LongCOVID Awareness shirt & wristband. Donate or create a campaign to help C19LAP’s continuity, expansion, & success here: https://bit.ly/FR4LC26 #GivingTuesday #GivingSeason

This movement rises when the community rises. Your donation, fundraiser, or major gift strengthens the national #LongCOVID response. From the start of the pandemic, Long COVID patients have not only risen to the occasion but led the work. https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason

C19LAP drives Long COVID legislation and work nationwide, bringing forward the lived experiences of our community to develop the needed solutions. Your contribution fuels this work: https://bit.ly/FR4LC26 #LongCOVID #GivingTuesday #PublicHealthMatters #GigingSeason

C19LAP plays a central role in national public health education, providing guidance to medical specialty societies, clinicians, researchers, medical students, & state and local health departments. Help support our work: https://bit.ly/FR4LC26

#LongCOVID #GivingTuesday #GivingSeason

Guidance from public health officials has lacked since the start of the pandemic. C19LAP has filled those gaps and needs your help to continue to do so! Your support ensures families and clinicians have access to essential resources. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #GivingSeason

C19LAP, as a patient-led, volunteer organization, has built the largest #LongCOVID network in the US. Your generosity helps scale this impact. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason

Long COVID patients in NC struggle to find care as clinics close their doors “Like a lot of people, I still have a house payment, I still have car payments, and, you know, I couldn’t just stop working.”

This story is about UNC Chapel Hill's #LongCOVID clinic being closed due to funding being cut. Another huge reason for our plea for donations to the @c19lap.bsky.social C-19 Longhauler Advocacy Project 🙏🏾.

www.charlotteobserver.com/charlottefiv...

bit.ly/FR4LC26

Your leadership matters. Whether through a personal contribution or a major gift, you fuel the programs federal, state, and local agencies have abandoned.

Donate or start a fundraiser: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact

We are transforming more than 60 C19LAP chapters into coordinated statewide #LongCOVID systems to create the national infrastructure families and clinicians need.

Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason

C19LAP develops the most comprehensive patient-led #LongCOVID resources in the world. Our #publichealth tools are used by patients, clinicians, medical schools, state health departments, and beyond.

Your donation this #GivingTuesday helps power and disseminate this work: https://bit.ly/FR4LC26

Every day without action on #LongCOVID leads to progressive disease, rising #disability, death, economic instability, and healthcare collapse.

Your investment this #GivingTuesday can help us change the outcomes for millions. #Give today: https://bit.ly/FR4LC26

#LongCOVID is now the leading #chronicillness in children. Schools are unprepared and families are overwhelmed. Your support helps builds #pediatric guidance, school resources, and statewide programs.

#Donate this #GivingTuesday to support our work and #LongCOVIDKids: https://bit.ly/FR4LC26

C19LAP leads at the highest levels of national public health, partnering with cross-sector partners across public health to shape the national response to #LongCOVID.

#Donate, start your own #campaign, and strengthen our #impact today! https://bit.ly/FR4LC26
#GivingTuesday #SystemsChange

We are building a national #LongCOVID #PublicHealth infrastructure including statewide offices, clinical alignment, resource hubs, community outreach, and disability and workforce support.

Your support strengthens the national the response: https://bit.ly/FR4LC26
#GivingTuesday #GivingSeason

Long COVID affects every community. Parents, teachers, healthcare workers, and employers are all impacted as systems fail and support disappears.

Your contribution helps build the response families need.

Donate and start a campaign: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact

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bit.ly/FR4LC26

C19LAP's reporting on disability prevalence & economic cost of #LongCOVID lead to the memorandum that formed the majority of Long COVID federal efforts. Now abandoned, C19LAP is stepping in but we need your support this #GivingTuesday! https://bit.ly/FR4LC26
#SystemsChange #PublicHealth #Donate

Help C19LAP lead the #LongCOVID response millions need this #GivingTuesday! #Donate, #Give, #Spreadtheword, and create your own individual or team campaign today! bit.ly/FR4L ✅

Email ⬇️ (video too long to post but embedded within)
longhauler-advocacy.org/so/07PhWIS7S...

Every fundraiser becomes a force multiplier, expanding awareness, strengthening the national response, and fueling real progress for #Long COVID.

Start an individual or team campaign for C19LAP or donate: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #SocialImpact

Delay is devastation. Every day without action brings more disability and economic loss. Your donation powers national clinician guidance, public health coordination, and vital resources families rely on.

Act now: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #Donate

Help Lead the Long COVID Response Millions Need! The crisis is growing. The response is shrinking. We need you.Long COVID affects an estimated seventy million people in the United States, and nearly every Long COVID program has been dismantled six years into the pandemic. There are no FDA-approved treatments, no cures, and no coordinated national response to guide patients, clinicians, or public health leaders.Since 2020, disability rates have risen 20 percent, mirroring Long COVID prevalence. Eighty percent of affected children report difficulties with daily activities, and Long COVID has surpassed asthma as the leading chronic condition...

#GivingTuesday Week: Day 1 Summary

The #LongCOVID crisis is accelerating while the response collapses. C19LAP is stepping in to fill the gap.

Read + take action: https://longhauler-advocacy.org/so/f7PhRSMp-?languageTag=en&cid=32cccdf3-66ea-4355-b4fd-6877749a1a9d

#Donate: https://bit.ly/FR4LC26

C19LAP helped define Long COVID at the national level. This definition now guides clinicians, researchers, and disability determinations.

Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters