@c19lap.bsky.social
A U.S. based #grassroots, #patientled, all-volunteer 501(c)(3) #nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC #IACC #Disability #PublicHealth https://www.longhauler-advocacy.org
A graphic with a teal gradient background and white text that reads: “Learn more about our team at longhauler-advocacy.org/team-community.” The C19LAP logo is repeated at the bottom of the image on a white background.
You can learn more about our team and our mission at
longhauler-advocacy.org/team-community
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She has shared her family’s story across media platforms, panel discussions, and conferences, and recently collaborated with the North Carolina Department of Health and Human Services on two public service announcements (PSA’s) about Long COVID.
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A professional headshot of Brooke Keaton, a middle-aged black woman smiling in front of a light-colored background. She is wearing glasses and a teal collared shirt. The bottom banner includes the C19LAP logo on the left and her name “Brooke Keaton” in teal on the right, with a white background and teal border.
Brooke Keaton is a December 2020 Longhauler, former early childhood educator, and dedicated mother to two daughters, one of whom also has Long COVID. Brooke brings her passion for education, child health, and equity to her advocacy for underserved communities affected by Long COVID.
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Tammy has shared her Long COVID journey through national media outlets, expert panels, and public health conferences, using her voice to advance awareness and change.
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a social media moderator, administrator, and Division lead. She is a passionate advocate for clinician education and for expanding healthcare accessibility in rural communities like her own.
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A professional headshot of Tammy Wilshire, a middle-aged white woman smiling in front of a neutral background. She has shoulder-length curly brown hair and is wearing a patterned blouse. The bottom banner includes the C19LAP logo on the left and her name “Tammy Wilshire” in teal on the right, with a white background and teal border.
Tammy Wilshire is a first-wave March 2020 Longhauler with a professional background in nursing, social services, and nonprofit work, as well as experience leading support groups. A long-standing volunteer with the COVID-19 Longhauler Advocacy Project (C19LAP), Tammy has served as ...
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A graphic with a teal gradient background and white text. At the top, the COVID-19 Longhauler Advocacy Project (C19LAP) logo appears in black and red. Below, large white script text reads “Welcome.” Underneath, bold white text says: “The COVID-19 Longhauler Advocacy Project is proud to welcome Tammy Wilshire and Brooke Keaton to our Board of Directors.”
Please join the COVID-19 Longhauler Advocacy Project in proudly welcoming our newest Board of Directors, Tammy Wilshire and Brooke Keaton. We’re honored to have their leadership, expertise, and unwavering commitment as part of our team. Learn more about them below!
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-Use employer matching programs
-Give through a Donor Advised Fund (DAF)
-Host a Birthday Fundraiser on social media
-Share this message and encourage others to give
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Please consider support our work. We would not be here without the support of our community. Thank you.
-Donate online (paypal.com/donate/?host...) or by check to: COVID-19 Longhauler Advocacy Project, Inc., 7491 N Federal Hwy C5, P.O. Box 305 Boca Raton, FL, 33487
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Together, we can continue fighting for the hundreds of millions of people who are impacted by Long COVID, and continue working to prevent others from getting Long COVID.
We’re not done. We’re just getting started.
#C19LAP #5YearsStrong #LongCOVID #DisabilityJustice #PublicHealth #AdvocacyMatters
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We are a pro public health organization focused on solutions, science, and patient empowerment. The need for our work has never been greater, and the burden has never been heavier for those living with Long COVID.
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C19LAP’s leadership has directly shaped some of the most significant Long COVID initiatives to date.
C19LAP develops strategic, community developed resources through collaboration w/ clinicians, agencies, employers, schools, insurers, disability organizations, & others.
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What began as a place to connect, validate, & survive quickly evolved into a national movement. C19LAP became a platform for truth-telling, a driver of change, & a relentless force for accountability, demanding recognition, access to care, & research that centers those most impacted.
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Today marks five years since the COVID-19 Longhauler Advocacy Project (C19LAP) was born out of urgency, out of frustration, and out of the unshakable belief that patients deserve to be heard, believed, and protected.
Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en
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Even if you are not in MN, please help like and comment on this post for traction and share on other platforms! TYSM. If you've sent a letter, comment letting us know to help with traction as well!
09.05.2025 20:28 — 👍 8 🔁 3 💬 0 📌 0
URGENT ACTION NEEDED FROM MINNESOTANS!
MN risks losing its Long COVID program among the nation's best with top staff. Legislators seem set on defunding it before session ends May 19. ALL MN constituents, friends & family please urgently send letters, call & advocate repeatedly!
bit.ly/SAVEMNLCPROG
C19LAP founder Karyn here, the hair loss for me ended up being the onset signs of my lupus.
18.04.2025 17:37 — 👍 0 🔁 0 💬 0 📌 0
Studies across 14 nations show 25% to 30% rate of long COVID
Among the 25.1% of participants who said they experienced long-COVID symptoms, 12.8% reported sleeping disorders.
www.cidrap.umn.edu/c...
Contact your members of congress today and tell them to #FundNIH! www.congress.gov/members/find...
More than 500 organizations are recommending at least $51.3 billion for NIH’s base funding level (see the full recommendation here www.aamc.org/research/adh... 2/2
The WH is reportedly planning a 40% cut—$20B—to NIH in its FY 2026 budget request, slashing it to $26.7B. This would be catastrophic for medical research. www.msn.com/en-us/health...
Congress must reject it. Our lives depend on it.
Contact them today! 1/2
Is Covid Rewriting the Rules of Aging? Brain Decline Alarms Doctors as millions of long-Covid patients continue to struggle with cognitive difficulties.
Ft: C19LAP BOD Ken Todd.
www.wsj.com/health/welln...
Long Covid, the long-term effects of COVID-19, shortness of breath, chronic cough, brain fog, headache, abdominal pain, diarrhea, rashes, mood, swings, depression, anxiety, extreme tiredness, fatigue, sleep disorder, abnormal menstruation changes, in the sense of smell, taste, and fever
This is public health in action. Clear communication and getting the word out is the critical first step to protecting communities. (But please retire the flawed RECOVER 12-Sx Study & instead use the consensus 2024 NASEM Long COVID definition).
@mdhumanservices.bsky.social #longcovidawsreness
"The cuts in all of our agency are not affecting science," he said. "Front-line enforcement jobs and health delivery jobs are preserved."
Closing the Office for Long COVID Research & Practice certainly affects science & health delivery.
abcnews.go.com/Politics/rfk...
For every 10% increase in the percentage of observed individuals who were fully masked, the odds of detecting SARS-CoV-2 in school wastewater decreased by nearly 10%.
ajph.aphapublications.org/doi/10.2105/...
RECOVER pathobiology studies funding restored.
Showing up when called upon matters. It doesn’t always work, but sometimes it does, and can make a huge difference.
thesicktimes.org/2025/03/28/u...
5050 Letters Sent!
Keep it going!
Send yours today!
Tell a friend!
actionnetwork.org/letters/long...
We are up to 3,800!#TellaFriend
27.03.2025 04:14 — 👍 8 🔁 3 💬 0 📌 1From 450 this morning to 2,909 at 5pm est! Keep it going, tell a friend! It takes 30 seconds to participate.
26.03.2025 21:12 — 👍 6 🔁 1 💬 0 📌 1
Interested in talking to the media? docs.google.com/forms/d/1Qhy...
26.03.2025 19:40 — 👍 0 🔁 0 💬 0 📌 0
In 30 seconds you can support millions with Long COVID. Tell the admin to keep their hands off #LongCOVIDPrograms!
actionnetwork.org/letters/long...
