QUANTUM

📋 When assessing data quality, one key question is often overlooked: is a dataset fit for a given purpose?

💡 The 4th QUANTUM Project Forum will explore this user-centric approach through an interactive validation session.

📆 12 Feb | Online

👉 Interested? Contact us! quantumproject.eu/contact-us/

✅ On #DataProtectionDay, we recognise how essential strong safeguards are for #healthdata.
Trust also grows through transparency, #dataquality and responsible reuse the focus of QUANTUM.
👉 www.quantumproject.eu

🗺️ In 2025, QUANTUM took part in many meetings, events and conferences across Europe, connecting researchers, institutions, patients, advancing #DataQuality and utility in health research. In 2026, we build on this momentum towards a European data quality label.
👉 quantumproject.eu #EHDS

🎄 We wish you a very merry Christmas and a healthy, quality-filled New Year!
2025 was a milestone year. We released first project outputs, attended numerous high-impact events, and built many valuable connections with key stakeholders. Much more is coming in 2026, stay tuned!
👉 quantumproject.eu

🇩🇪 QUANTUM joins the BfArM Health Data Event in Bonn on 24–25 Nov.
🗣️ Our coordinator Enrique Bernal Delgado will contribute to discussions on how EU projects like QUANTUM can support secure, interoperable #healthdata ecosystem in the European Health Data Space #EHDS.
👉 www.bfarm.de/EN/News/even...

Thanks too all the attendees, speakers and panellists for this great session!
More informaiton about QUANTUM: quantumproject.eu

The session ended with a panel discussion with some of these data holders having tested the QUANTUM labelling tool, discussing feedback, challenges, and improvements for the tool.

Jan-Willem Boiten (Health-RI) presented the first findings from the first mid-scale test of the QUANTUM quality labeling tool, with health data holders willing to test the tool and the assessment process with enough variability regarding organisation typology, size, maturity level and data types.

Claudio Proietti Mercuri (@ihisunitsciensano.bsky.social) is now presenting the QUANTUM tool itself, which allows data holders to:
- Assess datasets quality/utility
- Generate and visualise data quality and utility labels,
- Provide transparent assessment of data holders maturity...

Lorenz Dolanski-Aghamanoukjan (@goeg.at), presented more in depth the QUANTUM label, the specifications of the datasets’ quality and utility label, the specifications que the data holders' maturity, the consensus process and implementation challenges.

Enrique Bernal Delgado, coordinator of @quantumproject.bsky.social presenting the projects and its main goal: respond to the #EHDS regulation by providing a #dataquality and utility label for the secondary use of #healthdata. #EPH2025

Elina Drakvik, coordinator of the @tehdas.eu joint action opened the session by presenting key aspects of the European Health Data Space, and TEHDAS' expected impact, which is to improve, implementation, coordination and best practices for the #EHDS and the secondary use of #healthdata. #EPH2025

We are very glad to be at the European Public Health Conference in Helsinki 🇫🇮 with a pre-conference session dedicated to QUANTUM, and how it aims to ensure Health Data Quality for better public health research and policymaking. #EPH2025

🧐 Read the last QUANTUM newsletter: preview.mailerlite.io/preview/8260...

📬 Get the next one ine your mailbox! Subscribe here: preview.mailerlite.io/preview/8260...

😊 QUANTUM was at the SNOMED CT Expo #SCTExpo25 in Antwerp!
We joined the first-ever European Projects Pavilion, sharing our work on #dataquality in the #EHDS.
Our colleague Monica Jones (HDR UK) also presented the QUANTUM Data Holder’s Maturity Model — great discussions on data governance followed!

YouTube video by QUANTUM - The Health Data Quality Label The European Health Data Space progress, news and what’s next for patients - QUANTUM Patients forum

Missed our latest QUANTUM Patients & Citizens Forum?
We talked about what’s new with the European Health Data Space (#EHDS) and what it means for patients and their organisations.

▶️ Watch the recording! youtu.be/vFma9D2t9Z8?...

❓ Are you part of a project interested in the QUANTUM Data Quality and Utility Labelling Tool?

🙋‍♂️ Join the 3rd QUANTUM Project Forum on 28 October – an event designed to engage stakeholders, gather feedback, and explore collaborations and synergies.

👉 Interested? info[at]quantumproject.eu

Join us this afternoon!
👉 sciensano.webex.com/weblink/regi...
Together with Birgit Bauer, Carola Schulz, Antonella Cardone (@cancerpatientseu.bsky.social), Katharina Schneider, we'll discuss the latest progress/next steps of the European Health Data Space #EHDS, and what it means for patients.

📅 8 October | 14:00–15:00 CET | Online

Join us for the 4th session of the QUANTUM Patients and Citizens Forum. This time, we’ll focus on:

💬 The European Health Data Space: progress, news and what’s next for patients

👉 Register now: sciensano.webex.com/weblink/regi... #EHDS

Will you be at #EPH2025 @ephconference.bsky.social in Helsinki this November?

Join our preconference session!

We’ll showcase our health data quality label, with a walkthrough of the QUANTUM tool + a panel sharing first implementation experiences.

ℹ️ Info & registration: ephconference.eu

📅 8 October | 14:00–15:00 CET | Online

Join us for the 4th session of the QUANTUM Patients and Citizens Forum. This time, we’ll focus on:

💬 The European Health Data Space: progress, news and what’s next for patients

👉 Register now: sciensano.webex.com/weblink/regi... #EHDS

YouTube video by QUANTUM - The Health Data Quality Label The Ethical & Legal Side of Health Data: Trust, Privacy & the EHDS - QUANTUM Patients Forum #3

🎥 Missed our 25 June QUANTUM patients and citizens forum session on ethics, privacy & the #EHDS? Watch the replay: www.youtube.com/watch?v=_2cH...

🗳️ Our next forum is in October — help choose the topic! Vote now 👉 www.menti.com/alfiq7nz7n2y

🤝 QUANTUM is proud to join forces with #EUCAIM through a new Memorandum of Understanding: together, we’ll push for high-quality, reusable #healthdata to support better #CancerResearch across Europe. Collaboration is key to building trust and value in data.
👉 cancerimage.eu/eucaim-annou...

Don't miss the next session of the QUANTUM patients & citizens forum!

We’ll explore how ethical and legal (#ELSI) frameworks, the European Health Data Space (#EHDS), and #GDPR support trust, privacy & fairness in #healthdata and #AI use.

👉 quantumproject.eu/event/patien...

📣 Registrations for the next session are open!

📅 Date: June 25, 2025 - 2 PM CET

💬 Topic: The Ethical & Legal Side of Health Data: Trust, Privacy & the EHDS

📝 Register here! sciensano.webex.com/weblink/regi...

YouTube video by QUANTUM - The Health Data Quality Label "Why should I care?" QUANTUM patients & citizens forum session 2 - Benefits of Health Data Labelling

The recording of our last patients and citizen forum session is now online!

We discussed on how a quality label can build trust and encourage data sharing, with real-life patient perspectives on the power of data in shaping care.

👉 www.youtube.com/watch?v=TfDc...

👋 Welcome to QUANTUM on BlueSky!
We are enhancing health data quality across Europe with a Data Quality & Utility Label supporting the EHDS.
Join us in building a trustworthy health data ecosystem.
🔗 quantumproject.eu
#HealthData #DataQuality #EHDS