Living with PH can be overwhelming β but patients are not powerless π
Our new Patient Engagement & Empowerment toolkit includes:
βͺοΈ11 short videos
βͺοΈA printable leaflet
βͺοΈA foldable patient guide
β‘οΈ Explore the toolkit: pvrinstitute.org/PHpatients
04.12.2025 14:15 β π 0 π 0 π¬ 0 π 0
Huge thank you to the Alliance for PH and PH Association Ireland for their invaluable support at PVRI Dublin 2026! π
Weβre honoured to have both organisations joining us.
β‘οΈ Explore all exhibitors & sponsors here: pvrinstitute.org/pvri-2026-exhibitors-sponsors
04.12.2025 09:30 β π 0 π 0 π¬ 0 π 0
β Did you know?
PHGPS findings show that about half of adult patients (54.8%) are connected to a national PH patient organisation.
These networks make a real difference β helping people feel informed, supported, and less alone.
β‘οΈ Read the full #PHGPS paper: doi.org/10.1183/2312...
03.12.2025 15:30 β π 0 π 0 π¬ 0 π 0
Join our PVRI 2026 Dublin fundraising events and help us celebrate 20 years of PVRI!
Come together as a community and support our mission to improve awareness, diagnosis, and research in PH.
β Whatβs happening?
βͺοΈ Morning Run/Walk
βͺοΈ PVRI Pub Social
β‘οΈ Signup now: pvrinstitute.org/learning-hub...
02.12.2025 12:45 β π 1 π 0 π¬ 0 π 0
What a month! ππ
35 participants across 13 countries have taken part in our first-ever #BreathBeyondBorders challenge...
π runningπΆββοΈwalking π΄cycling π£ββοΈ rowing βΈοΈ skating
Weβre now at Β£1,272 raised, and weβd love to reach our goal of Β£1,500.
β‘οΈ Donate today: www.justgiving.com/campaign/bre...
02.12.2025 09:15 β π 0 π 0 π¬ 0 π 0
Upcoming webinar π₯οΈ
Living Legend: Rubin Tuder
ποΈ 11 December
π 16:00 GMT
Join us for our next Living Legends in PH session featuring Rubin Tuder, a pioneer in PH whose work β including the SU-Hx model β has shaped the field for decades.
β‘οΈ Register now: pvrinstitute.org/learning-hub...
01.12.2025 14:15 β π 0 π 0 π¬ 0 π 0
PVRI Awards 2026 nominations close at midnight! β°
Thereβs still time to recognise the people whoβve gone above and beyond for our global PH community.
You can nominate for:
βͺοΈLifetime Achievement Award
βͺοΈAchievement Award
βͺοΈSpecial Recognition Award
π Submit now: pvrinstitute.org/learning-hub...
01.12.2025 08:30 β π 0 π 0 π¬ 0 π 0
We did it β weβve raised over Β£1,000 for #BreathBeyondBorders! π
And today, weβre excited to share a clip of Paul Hassoun completing his incredible 9-hour piano challenge. πΉ
But weβre not done yet. Can we reach Β£1,500 before the finish line? π
β‘οΈ Donate now: www.justgiving.com/campaign/bre...
28.11.2025 15:31 β π 0 π 0 π¬ 0 π 0
How to empower yourself & others
A comprehensive guide for people living with pulmonary hypertension, their families, & carers from the PVRI IDDI Patient Engagement and Empowerment Workstream.
We invite PH professionals to:
βͺοΈexplore the full series
βͺοΈshare the materials with your patients
βͺοΈuse the co-brandable leaflet & guide in your clinics and networks
Together, we can help patients take an active role in their care π€
β‘οΈ Explore the series: pvrinstitute.org/PHpatients
27.11.2025 12:14 β π 0 π 0 π¬ 0 π 0
Developed by PVRI's IDDI Patient Engagement & Empowerment Workstream, the series explores 11 core themes, including:
βͺοΈunderstanding PH
βͺοΈaccessing psychological support,
βͺοΈshared decision-making,
βͺοΈclinical trials
and more!
27.11.2025 12:14 β π 0 π 0 π¬ 1 π 0
Weβre delighted to launch...π₯
PVRIβs PH Patient Engagement & Empowerment Series π€
A new evidence-based resource designed to help people living with PH β and the families & carers who support them β feel more informed, confident, and empowered.
β‘οΈ Explore the series: pvrinstitute.org/PHpatients
27.11.2025 12:14 β π 0 π 0 π¬ 1 π 0
βMissed yesterdayβs iPVD Virtual Symposium session?
The full session, Microbes/Parasites and Sex Differences in PVDs, is now ready to watch!
Catch up on the discussion and stay connected to the latest advances in inflammatory and infectious PVD π¬
β‘οΈ Watch here: pvrinstitute.org/learning-hub...
27.11.2025 10:30 β π 0 π 0 π¬ 0 π 0
Weβre live! π₯
Join now for Microbes/Parasites and Sex Differences in PVDs β part of our iPVD Virtual Symposium Series.
Weβre exploring how infection, inflammation, and sex-specific biology shape pulmonary vascular disease.
π Join now: pvrinstitute.org/learning-hub...
26.11.2025 15:04 β π 0 π 0 π¬ 0 π 0
What do microbes, parasites, and sex differences mean for PVD? π¦
Join us this Wednesday, 26 November at 15:00 GMT, for our next iPVD Virtual Symposium. Together, weβll explore how infection, inflammation, and sex-specific biology shape PVD.
β‘οΈ Register here: pvrinstitute.org/learning-hub...
25.11.2025 15:45 β π 0 π 0 π¬ 0 π 0
Weβre proud to share a brand-new #PulmonaryCirculation submission from our Latin America Task Force!
Why Wait for Sick People to Get Sicker? The Paradox of the Treatment of Patients With Pulmonary Arterial Hypertension
π Read here: pvrinstitute.org/learning-hub...
25.11.2025 10:15 β π 0 π 0 π¬ 0 π 0
β Heading to #PVRI2026 Dublin?
Most of our reserved hotel rooms (70%) will be released to the public at the end of November.
If you havenβt booked your stay yet, do it soon so you donβt miss out on our special rates next to the venue.
β‘οΈ Secure your room: pvrinstitute.org/learning-hub...
24.11.2025 14:15 β π 0 π 0 π¬ 0 π 0
Hereβs a first look π₯π
Our November PH Community Call sparked an important conversation on methamphetamine-associated PAH with Cole Uhland, and Franz Rischard.
Watch the teaser below then dive into the full recording.
β‘οΈ Watch here: pvrinstitute.org/learning-hub...
24.11.2025 10:15 β π 0 π 0 π¬ 0 π 0
Weβre so close! π
Together, weβve raised Β£970 for Breath Beyond Borders β just Β£30 away from Β£1,000.
Weβve put together this little video to celebrate the incredible people taking on challenges around the world.
β‘οΈ Please show your support and donate today: www.justgiving.com/campaign/bre...
21.11.2025 14:31 β π 0 π 0 π¬ 0 π 0
Weβre digging deeper into the biology behind PVD π
Join us for the next webinar in the global iPVD Virtual Symposium Series:
Microbes/Parasites and Sex Differences in PVDs
ποΈ 26 November 2025
π 15:00 GMT
β‘οΈ Register for free now: pvrinstitute.org/learning-hub...
21.11.2025 12:01 β π 2 π 1 π¬ 1 π 0
New in Pulmonary Circulation π
A real-world comparison of PH-ILD patients starting inhaled treprostinil vs. those who remain untreated.
π 10 November 2025
β‘οΈ Read the article: pvrinstitute.org/learning-hub...
20.11.2025 16:15 β π 0 π 0 π¬ 0 π 0
Weβre live now!
Join our November PH Community Call π€
Today weβre discussing treatment response and survival in methamphetamine-associated PAH with Cole Uhland and Franz P Rischard.
β‘οΈ Join now: pvrinstitute.org/learning-hub...
20.11.2025 15:03 β π 0 π 0 π¬ 0 π 0
Did you know? π
The PH Global Patient Survey (PHGPS) found that about half of adult patients (54.8%) are part of a national PH patient organisation.
These organisations play a vital role in helping people navigate life with PH.
β‘οΈ Read the full #PHGPS paper: doi.org/10.1183/2312...
19.11.2025 16:45 β π 0 π 0 π¬ 0 π 0
Join our next PH Community Call π€
This month, weβll explore treatment response and survival in methamphetamine-associated PAH, with insights from Cole Uhland and Franz P Rischard.
ποΈ 20 November 2025
π 15:00 GMT
β‘οΈ Register now: pvrinstitute.org/learning-hub...
19.11.2025 11:15 β π 0 π 0 π¬ 0 π 0
Our #BreathBeyondBorders team is on the move! ππ
Together, our participants have achieved:
π Running: 178km/111miles
πΆ Walking: 156km/97miles
π Swimming: 21km/13miles
π΄ Cycling: 501km/311miles
This is what global collaboration looks like.
β‘οΈ Donate today: www.justgiving.com/campaign/bre...
18.11.2025 13:30 β π 0 π 0 π¬ 0 π 0
A first for PVRI β a full webinar in Spanish!
Join us 16 December, 15:00 GMT for a focused session on Group 2 PH.
Un hito para PVRI β Β‘webinar totalmente en espaΓ±ol!
Γnete el 16 de diciembre, 15:00 GMT para una sesiΓ³n sobre HP Grupo 2.
β‘οΈ Register / RegΓstrate: pvrinstitute.org/learning-hub...
18.11.2025 11:15 β π 1 π 1 π¬ 0 π 0
Recording now live! π½οΈ
Unpack the challenges of developing new therapies for BPD-PH and hear from Steve Abman, Anne Hilgendorff, Bernard ThΓ©baud and Victoria Niklas.
A huge thank you to Sylvia Nikkho and Steve Abman for moderating!
β‘οΈ Watch the recording here: pvrinstitute.org/learning-hub...
14.11.2025 14:15 β π 0 π 0 π¬ 0 π 0
βDid you know?
73% of people living with PH have never taken part in clinical research. But 72% of those who havenβt would be willing to take part if invited.
Thereβs clear enthusiasm among patients to help advance research.
β‘οΈ Read the full #PHGPS paper: doi.org/10.1183/2312...
14.11.2025 10:36 β π 0 π 0 π¬ 0 π 0
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Built with π by a global, remote team.
β¬οΈ Learn more about Buffer & Bluesky
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Interventional pulmonologist, palliative medicine physician interested in public health, medical humanities, Med Ed and science . Quiet moments in nature, music, arts and crafts help me recharge.
Pulmonary and Critical Care Physician, Advocate. Chair of the American Lung Association National Board. Avid Reader. Focused on Clean Air, Health effects of climate change, tobacco control, health care access. Views are my own He/Him.
Pulmonary physician-scientist at Brigham & Women's Hospital and Harvard Medical School. COPD. Alpha-1 antitrypsin deficiency. Genetics and biomarkers of disease subtypes and outcomes. Still on the other site for now @craig_hersh.
Dad, Husband, π« transplant pulmonologist, physician-scientist, KSU Wildcats π. Interested in improving transplant outcomes!
Assistant Prof, Pulmonary & Critical Care @ Johns Hopkins
Clinical: COPD, asthma, ICU
Research: COPD, platelet biology, pulse oximetry, health disparities
Formerly @AshFawzyMD on Twitter
https://profiles.hopkinsmedicine.org/provider/ashraf-fawzy/27012
Pulmonary/CCM Associate Professor at the Johns Hopkins - TEDx https://youtu.be/Bs83pow-Mvw - Husband and Girl Dad
Pulm/CC | lover of lungs w/interest in obstructive lung disease & the care of respiratory health in pregnancy | Endeavor NorthShore, University of Chicago Medicine, Michigan Medicine | She/her
Pulmonologist / intensivist / sleep specialist /medical educator #MDAPulmonary #MedEd #PCCM #SleepMed
Pulmonary and Critical Care Medicine physician and medical educator
Pulmonary & Critical Care Fellow @pennmedicine | Yale IM / UChicago Pritzker School of Medicine Alum | Machine learning and health disparities in the ICU
Pulmonary and Critical Care Medicine physician-scientist at the intersection of lung cancer and implementation science, CBPR, health equity and LGBTQ+ health. University of Washington, Fred Hutchinson Cancer Center.
He/him or they/them. π³οΈβππ³οΈββ§οΈ
Pulmonary and Critical Care doc. Opinions are my own and not medical advice.
Pulm Critical Care Sleep doc, life-long teacher, life-long learner
Pulmonary & Critical Care Fellow at UT Houston π«π«I Chief Resident IM TWCGME βοΈIβοΈπI Own views
A physiologist and pharmacologist passionate about better understanding right and left ventricular dysfunction. π«π«
Pulmonary and Critical Care faculty at the University of Colorado. Medical Education. Bikes. Skiing.
Pulmonary & Critical Care physician. Husband & Dad. Interested in #IPF, and other #ILD / Astrophotography, Traveling, Celtics.
Pulmonary & Critical Care Physician | Iowa City | Midwestern Dad Vibes | Educator | Building my Research Skills, T32 | Sharing the human experience, knowledge seeker.