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PVRI

@pvrinstitute.bsky.social

Pulmonary Vascular Research Institute (PVRI) is a global medical organisation focused on the improvement of care and awareness of pulmonary vascular diseases.

65 Followers  |  145 Following  |  220 Posts  |  Joined: 20.02.2025  |  1.4273

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PVRI 2026 Dublin β€” Speaker SpotlightπŸ’‘

From molecular mechanisms to major milestones β€” the conversations in Dublin will dive deep into the science shaping the future of pulmonary vascular disease.

Join us in Dublin as we celebrate 20 years of PVRI.

🎟 Register now: pvrinstitute.org/learning-hub...

05.12.2025 10:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Living with PH can be overwhelming β€” but patients are not powerless πŸ’œ

Our new Patient Engagement & Empowerment toolkit includes:

β–ͺ️11 short videos
β–ͺ️A printable leaflet
β–ͺ️A foldable patient guide

➑️ Explore the toolkit: pvrinstitute.org/PHpatients

04.12.2025 14:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Huge thank you to the Alliance for PH and PH Association Ireland for their invaluable support at PVRI Dublin 2026! πŸ’œ

We’re honoured to have both organisations joining us.

➑️ Explore all exhibitors & sponsors here: pvrinstitute.org/pvri-2026-exhibitors-sponsors

04.12.2025 09:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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❓ Did you know?

PHGPS findings show that about half of adult patients (54.8%) are connected to a national PH patient organisation.

These networks make a real difference β€” helping people feel informed, supported, and less alone.

➑️ Read the full #PHGPS paper: doi.org/10.1183/2312...

03.12.2025 15:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join our PVRI 2026 Dublin fundraising events and help us celebrate 20 years of PVRI!

Come together as a community and support our mission to improve awareness, diagnosis, and research in PH.

❓ What’s happening?
β–ͺ️ Morning Run/Walk
β–ͺ️ PVRI Pub Social

➑️ Signup now: pvrinstitute.org/learning-hub...

02.12.2025 12:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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What a month! πŸ’œπŸŒ

35 participants across 13 countries have taken part in our first-ever #BreathBeyondBorders challenge...

πŸƒ runningπŸšΆβ€β™€οΈwalking 🚴cycling πŸš£β€β™€οΈ rowing ⛸️ skating

We’re now at Β£1,272 raised, and we’d love to reach our goal of Β£1,500.

➑️ Donate today: www.justgiving.com/campaign/bre...

02.12.2025 09:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Upcoming webinar πŸ–₯️

Living Legend: Rubin Tuder
πŸ—“οΈ 11 December
πŸ•“ 16:00 GMT

Join us for our next Living Legends in PH session featuring Rubin Tuder, a pioneer in PH whose work β€” including the SU-Hx model β€” has shaped the field for decades.

➑️ Register now: pvrinstitute.org/learning-hub...

01.12.2025 14:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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PVRI Awards 2026 nominations close at midnight! ⏰

There’s still time to recognise the people who’ve gone above and beyond for our global PH community.

You can nominate for:
β–ͺ️Lifetime Achievement Award
β–ͺ️Achievement Award
β–ͺ️Special Recognition Award

πŸ‘‰ Submit now: pvrinstitute.org/learning-hub...

01.12.2025 08:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We did it β€” we’ve raised over Β£1,000 for #BreathBeyondBorders! πŸŽ‰

And today, we’re excited to share a clip of Paul Hassoun completing his incredible 9-hour piano challenge. 🎹

But we’re not done yet. Can we reach Β£1,500 before the finish line? πŸƒ

➑️ Donate now: www.justgiving.com/campaign/bre...

28.11.2025 15:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
How to empower yourself & others A comprehensive guide for people living with pulmonary hypertension, their families, & carers from the PVRI IDDI Patient Engagement and Empowerment Workstream.

We invite PH professionals to:
β–ͺ️explore the full series
β–ͺ️share the materials with your patients
β–ͺ️use the co-brandable leaflet & guide in your clinics and networks

Together, we can help patients take an active role in their care 🀝

➑️ Explore the series: pvrinstitute.org/PHpatients

27.11.2025 12:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Developed by PVRI's IDDI Patient Engagement & Empowerment Workstream, the series explores 11 core themes, including:

β–ͺ️understanding PH
β–ͺ️accessing psychological support,
β–ͺ️shared decision-making,
β–ͺ️clinical trials

and more!

27.11.2025 12:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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We’re delighted to launch...πŸ₯

PVRI’s PH Patient Engagement & Empowerment Series 🀝

A new evidence-based resource designed to help people living with PH β€” and the families & carers who support them β€” feel more informed, confident, and empowered.

➑️ Explore the series: pvrinstitute.org/PHpatients

27.11.2025 12:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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❓Missed yesterday’s iPVD Virtual Symposium session?

The full session, Microbes/Parasites and Sex Differences in PVDs, is now ready to watch!

Catch up on the discussion and stay connected to the latest advances in inflammatory and infectious PVD πŸ’¬

➑️ Watch here: pvrinstitute.org/learning-hub...

27.11.2025 10:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We’re live! πŸŽ₯

Join now for Microbes/Parasites and Sex Differences in PVDs β€” part of our iPVD Virtual Symposium Series.

We’re exploring how infection, inflammation, and sex-specific biology shape pulmonary vascular disease.

πŸ‘‰ Join now: pvrinstitute.org/learning-hub...

26.11.2025 15:04 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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PVRI 2026 Dublin functions β¬‡οΈπŸŽ‰

Functions designed to celebrate everything we’re achieving in PH research and care.

πŸ“† Career Catalyst Luncheon – 30 January
πŸ“† Women in PH Luncheon – 31 January
πŸ“† PVRI 2026 Gala Dinner – 30 January

➑️ Register here: pvrinstitute.org/learning-hub...

26.11.2025 10:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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What do microbes, parasites, and sex differences mean for PVD? 🦠

Join us this Wednesday, 26 November at 15:00 GMT, for our next iPVD Virtual Symposium. Together, we’ll explore how infection, inflammation, and sex-specific biology shape PVD.

➑️ Register here: pvrinstitute.org/learning-hub...

25.11.2025 15:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We’re proud to share a brand-new #PulmonaryCirculation submission from our Latin America Task Force!

Why Wait for Sick People to Get Sicker? The Paradox of the Treatment of Patients With Pulmonary Arterial Hypertension

πŸ“„ Read here: pvrinstitute.org/learning-hub...

25.11.2025 10:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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❓ Heading to #PVRI2026 Dublin?

Most of our reserved hotel rooms (70%) will be released to the public at the end of November.

If you haven’t booked your stay yet, do it soon so you don’t miss out on our special rates next to the venue.

➑️ Secure your room: pvrinstitute.org/learning-hub...

24.11.2025 14:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Here’s a first look πŸŽ₯πŸ‘€

Our November PH Community Call sparked an important conversation on methamphetamine-associated PAH with Cole Uhland, and Franz Rischard.

Watch the teaser below then dive into the full recording.

➑️ Watch here: pvrinstitute.org/learning-hub...

24.11.2025 10:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We’re so close! πŸ’œ

Together, we’ve raised Β£970 for Breath Beyond Borders β€” just Β£30 away from Β£1,000.

We’ve put together this little video to celebrate the incredible people taking on challenges around the world.

➑️ Please show your support and donate today: www.justgiving.com/campaign/bre...

21.11.2025 14:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We’re digging deeper into the biology behind PVD πŸ”Ž

Join us for the next webinar in the global iPVD Virtual Symposium Series:

Microbes/Parasites and Sex Differences in PVDs
πŸ—“οΈ 26 November 2025
πŸ•’ 15:00 GMT

➑️ Register for free now: pvrinstitute.org/learning-hub...

21.11.2025 12:01 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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New in Pulmonary Circulation πŸ”Ž

A real-world comparison of PH-ILD patients starting inhaled treprostinil vs. those who remain untreated.
πŸ“† 10 November 2025

➑️ Read the article: pvrinstitute.org/learning-hub...

20.11.2025 16:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We’re live now!

Join our November PH Community Call 🀝

Today we’re discussing treatment response and survival in methamphetamine-associated PAH with Cole Uhland and Franz P Rischard.

➑️ Join now: pvrinstitute.org/learning-hub...

20.11.2025 15:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Did you know? πŸ’œ

The PH Global Patient Survey (PHGPS) found that about half of adult patients (54.8%) are part of a national PH patient organisation.

These organisations play a vital role in helping people navigate life with PH.

➑️ Read the full #PHGPS paper: doi.org/10.1183/2312...

19.11.2025 16:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join our next PH Community Call 🀝

This month, we’ll explore treatment response and survival in methamphetamine-associated PAH, with insights from Cole Uhland and Franz P Rischard.

πŸ—“οΈ 20 November 2025
πŸ•’ 15:00 GMT

➑️ Register now: pvrinstitute.org/learning-hub...

19.11.2025 11:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Our #BreathBeyondBorders team is on the move! πŸŒπŸ’œ

Together, our participants have achieved:

πŸƒ Running: 178km/111miles
🚢 Walking: 156km/97miles
🏊 Swimming: 21km/13miles
🚴 Cycling: 501km/311miles

This is what global collaboration looks like.

➑️ Donate today: www.justgiving.com/campaign/bre...

18.11.2025 13:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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A first for PVRI β€” a full webinar in Spanish!
Join us 16 December, 15:00 GMT for a focused session on Group 2 PH.

Un hito para PVRI β€” Β‘webinar totalmente en espaΓ±ol!
Únete el 16 de diciembre, 15:00 GMT para una sesión sobre HP Grupo 2.

➑️ Register / Regístrate: pvrinstitute.org/learning-hub...

18.11.2025 11:15 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Speaker spotlight πŸ‘€

At PVRI 2026, we’ll be asking the big questions shaping the next 20 years of pulmonary vascular medicine β€” from transformative targets to everyday living with PH.

πŸ“… 28 Janu – 1 Feb 2026
πŸ“ Dublin Royal Convention Centre

🎟 Register now: pvrinstitute.org/learning-hub...

17.11.2025 10:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Recording now live! πŸ“½οΈ

Unpack the challenges of developing new therapies for BPD-PH and hear from Steve Abman, Anne Hilgendorff, Bernard ThΓ©baud and Victoria Niklas.

A huge thank you to Sylvia Nikkho and Steve Abman for moderating!

➑️ Watch the recording here: pvrinstitute.org/learning-hub...

14.11.2025 14:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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❓Did you know?
73% of people living with PH have never taken part in clinical research. But 72% of those who haven’t would be willing to take part if invited.

There’s clear enthusiasm among patients to help advance research.

➑️ Read the full #PHGPS paper: doi.org/10.1183/2312...

14.11.2025 10:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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