Eating Disorders Genetics Initiative

🚨NEW PREPRINT ALERT!🚨

Jacob Knyspel investigated the moderating impact of exposure to different traumas on genetic risk for PTSD, using data from @ukbiobank.bsky.social, @gladstudy.bsky.social, @edgiuk.bsky.social and @nihrbioresource.bsky.social

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www.researchsquare.com/article/rs-8...

🗣️ Give peer supporters a seat at the table.

Lizzie Mitchell warned that without valuing their voices, we risk burnout and moral injury in peer workers.

🎥 Watch Lizzie (from 27:45): buff.ly/ESrkyQz

#PeerSupport #MentalHealth #Recovery

Eating Disorders Genetics Initiative | EDGI UK The Eating Disorders Genetics Initiative is a project set up by King's College London, in collaboration with Beat, to explore genetic and environmental risk factors for eating disorders.

The Eating Disorders Genetics Initiative @edgiuk.bsky.social needs you!

EDGI are looking for people with experience of any eating disorder (formal diagnosis not required!) to take part in their groundbreaking research on eating disorders.

⭐Be part of change. Sign up now👉 edgiuk.org

Ketamine could treat depression by interacting with the brain's 'opioid system' New research has found that Ketamine's antidepressant effects involve the brain’s opioid system.

Ketamine is a fast-acting antidepressant that works even for patients who don't respond to other medication.

The @kingsioppn.bsky.social discovery that the drug's antidepressant effects involve the brain’s opioid system offer insight into how it treats depression.

www.kcl.ac.uk/news/ketamin...

Weight loss are functioning as a medically-prescribed eating disorder. From what I can see, these jabs are functioning as a medically-prescribed eating disorder. I am watching friends and loved ones engage in the behaviours I worked so hard to address. I am watching the...

; weight loss jabs are "functioning as medically-prescribed eating disorders." 👏🏻👏🏻

sadly, this is 100% accurate and making the jab so widely available will cause untold amounts of harm.

this article is well worth a read.

via @dumpthescales.bsky.social

www.endeatingdisorders.org/post/from-wh...

A privilege to be back in Parliament this week for an event organised as part of the APPG on Eating Disorders with @hopevirgo.bsky.social and @werahobhouse.bsky.social.

A wonderful opportunity to chat about EDCRN @edgiuk.bsky.social and the importance of continued investment in ED research.

Thank you so much for joining us yesterday @paulkohlersw19.bsky.social at the APPG for Eating Disorders and for always being such a huge supporter of our campaigning work!

We're sure the @edgiuk.bsky.social team loved meeting you and chatting all things research and genetics!

@edgiuk.bsky.social EDGI UK paper alert - in this paper RA and PhD student Saakshi Kakar worked on using the free text responses in EDGI and also the GLAD study @gladstudy.bsky.social to find new information about eating disorder symptoms.

Thank you so much to everyone who came along including @edgiuk.bsky.social, @rachelegan.bsky.social, @priyatew.bsky.social
@annacarnegie.bsky.social and of course a huge big thank you to @werahobhouse.bsky.social @hopevirgo.bsky.social for pulling it altogether!

I hosted eating disorder experts & campaigners in Parliament today.

For too long, eating disorders have been misunderstood - it was therefore great to offer an opportunity to improve ED awareness.

Thank you to @edgiuk.bsky.social, @dumpthescales.bsky.social & @edcrn.bsky.social joining us🤝

Two-part diagram illustrating steps in data processing. Part 1, titled 'Merging dataframes,' shows three blue database icons connected by red lines, representing the merging process. Part 2, titled 'Preprocessing,' features a funnel labelled 'Responses' at the top. Inside the funnel, arrows indicate stages: 'Tokenisation,' 'Removing stop words,' and 'Stemming.' An arrow at the bottom points to the word 'Tokens'.

📊 We text-mined 1,675 responses from participants in
@gladstudy.bsky.social & @edgiuk.bsky.social who had anorexia nervosa, bulimia nervosa, or binge-eating disorder

Many described behaviours that weren’t part of standard clinical or research assessments, but were harmful and clinically relevant

Great job @saakshikakar.bsky.social!

New research from @kingsioppn.bsky.social @nihrbioresource.bsky.social has identified a range of weight loss behaviours associated with #eatingdisorders which are not currently included in assessment criteria: www.maudsleybrc.nihr.ac.uk/posts/2025/j...

📽️First author Saakshi Kakar explains:👇

@karinaallayne.bsky.social @nihr.bsky.social @edgiuk.bsky.social @gladstudy.bsky.social

We're hosting a drop-in session next Wednesday over lunchtime where you can meet the #DumpTheScales and @edgiuk.bsky.social teams to find out more about our work around eating disorders.

We'd love to have you there @paulkohlersw19.bsky.social and @steffanaquarone.bsky.social 🙌

🧠Autistic people with EDs face unique barriers to care. This paper explores how the #PEACEPathway—a tailored, autism-informed ED approach—improves engagement. 8 key domains emerged, leading to a practical self-assessment checklist for services.

www.mdpi.com/2072-6643/17...

Making eating disorder treatment more inclusive: The PEACE Pathway April is Autism Acceptance Month – a time not only to raise awareness, but to champion acceptance, inclusion, and real-world change for Autistic people. One brilliant example of this is the PEACE…

How do we make #EatingDisorder treatment more inclusive to Autistic people? One way is the 'PEACE Pathway', led by IoPPN's Prof Kate Tchanturia, a treatment that adapts to the individual – not the other way around.

#AutismAcceptanceMonth
Read more: www.kcl.ac.uk/making-eatin...

Untangling The Mind-Body Connection In Chronic Pain Research suggests that better understanding the psychological and neurological components of chronic pain may lead to better treatments.

How do we untangle the mind-body connection to better treat chronic pain?

IoPPN researcher Dr Lauren Heathcote, PhD joined Science Friday for a discussion on a new psychological treatment that shows early promise in eliminating chronic back pain.

Listen now: www.sciencefriday.com/segments/chr...

The authors text-mined free-text responses from 1,675 participants with anorexia nervosa, bulimia nervosa, or binge-eating disorder from the GLAD Study and @edgiuk.bsky.social‬

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EDGI UK now collaborating with the Broad Institute to sequence exomes of participants with anorexia nervosa and bulimia nervosa

We’re excited to share the news that @edgiuk.bsky.social is now collaborating with the @broadinstitute.org of MIT and Harvard.

The Broad Institue will sequence the exomes of EDGI UK participants diagnosed with eating disorders.

www.maudsleybrc.nihr.ac.uk/posts/2025/m... @psychgenomics.bsky.social

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Take part in eating disorders research - EDGI

Take part in eating disorders research - STORY

Interested in taking part in #eatingdisorders research? Browse the @maudsleynhs.bsky.social website for studies like @edgiuk.bsky.social which are currently recruiting, and search by condition.

👉 slam.nhs.uk/take-part-in...
#EDAW #BePartofResearch @edifyresearch.bsky.social

orange background with purple, white and darker orange squiggly lines. Text reads: sign ups, in 2024 724 participants signed up! , that’s a 3.6% increase since 2023! eating disorders genetics initiative, EDGI, edgiuk.org

orange background with purple, white and darker orange squiggly lines and the number 1-5 with images (party hat, magnifying glass, megaphone, blog, big ben). Text reads: our top EDGI moments, Celebrating our 4th anniversary! Publishing a paper on our study design and initial findings. Attending ED advocacy events and meeting with our participants! Restarting our EDGI Blog as a way to stay in touch with our participants. Being a part of the Eating Disorders All Party Parliamentary Group, eating disorders genetics initiative, EDGI, edgiuk.org

orange background with purple, white and darker orange squiggly lines. Text reads: number of kits, in 2024 EDGI received 665 saliva kits, that’s a 12.9% increase since 2023! eating disorders genetics initiative, EDGI, edgiuk.org

orange background with purple, white and darker orange squiggly lines and numbers 1-5 with images of our top posts. Text reads: our top posts, Symptoms of ARFID. Experiencing atypical anorexia. Eating disorder recovery is always possible. Eating disorder awareness week theme: ARFID. Eating disorders are not a white mental health condition, eating disorders genetics initiative, EDGI, edgiuk.org

Everyone’s posting their #SpotifyWrapped, but let me introduce you to a different ‘wrapped’...

EDGI UK wrapped 2024!🔬

Thank you to all our participants, we could not do this without you.


Go to edgiuk.org for more information!

Pastel purple and orange background with a graphic of a woman hugging a child in the bottom right corner. Green texts, “Setting & Respecting Boundaries - Why?”; “Preserves safety and trust in relationships”; “Improves self-esteem”; “Supports growth and vulnerability” in light green text bubbles in the centre. Green text, “edgiuk.org” in a light green text bubble in the top right corner and EDGI logo in the bottom left corner.

Pastel purple and orange background with a graphic of a magnifying glass zooming into a question mark on a book to the left. Green texts, “Setting & Respecting Boundaries - How?”; “Ask if a person is okay with something - could be a hug or a personal question”; “Learn to say no, even without offering an explanation”; “Use ‘I’ statements to assertively express thoughts, feelings and opinions” in light green text bubbles in the centre. Green text, “edgiuk.org” in a light green text bubble in the top right corner and EDGI logo in the bottom left corner.

Pastel purple and orange background with a graphic of a magnifying glass zooming into a question mark on a book to the left. Green texts, “What ED-specific boundaries can look like”; “Limiting conversations around diets, weight or food”; “Agreeing to avoid triggering social settings”; “Regular group activities that do not involve food or exercise” in light green text bubbles in the centre. Green text, “edgiuk.org” in a light green text bubble in the bottom right corner and EDGI logo in the bottom left corner.

Boundaries are key🔐

Honour your limits and respect others’

Whether it’s avoiding tough topics or taking a break from crowded events, try to protect your peace and relationships.

For support, @beated is available.

edgiuk.org

Share your videos with friends, family, and the world YouTube

Watch the #EDGIUK leads discuss the importance of #EDGIUK: youtube.com/watch?v=rpa48qoMrMs

@nihr.bsky.social
@nihrmaudsleybrc.bsky.social @psychgenomics.bsky.social
@hopevirgo.bsky.social @kingscollegelondon.bsky.social

YouTube video by Eating Disorders Genetics Initiative The Eating Disorders Genetics Initiative (EDGI) Information Video

Hi BlueSky!

We're EDGI UK, an online research study exploring the genetic and environmental influences of all eating disorders

Our study is open to anyone
⭐16+
⭐residing in England
⭐Has ever experienced an eating (diagnosis not required)

Join today: edgiuk.org

Hello Bluesky!
We are the EDCRN, an initiative working to establish a UK-wide research network spanning child and adult eating disorder services.

Huge welcome to the Bluesky accounts of the world's largest cohort studies of anxiety and depression, and eating disorders

@gladstudy.bsky.social and @edgiuk.bsky.social

🧪 #episky #PsychSciSky #neuroskyence #devpsych #Medsky