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Scribbler Pen

@scribblerpen.bsky.social

Writer, editor, analyst. Disability employment rights advocate. Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid

5,299 Followers  |  3,308 Following  |  1,267 Posts  |  Joined: 14.11.2023  |  2.0125

Latest posts by scribblerpen.bsky.social on Bluesky

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Stop the Surge of Hate Speech Against Disabled People in the UK Can you spare a minute to help this campaign?

Please join me in supporting @atlantarey.bsky.social petition for action to curb #disability hate speech in the UK. It couldn't be more timely.
chng.it/s9fTpcmgD2

01.08.2025 21:43 โ€” ๐Ÿ‘ 8    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Revealed: Harvard publisher cancels entire journal issue on Palestine shortly before publication As Harvardโ€™s feud with Trump escalated, so did tensions over an โ€˜education and Palestineโ€™ issue of a prestigious journal. Scholars blame the โ€˜Palestine exceptionโ€™ to academic freedom

Exclusive: Harvard publisher cancels entire journal issue on Palestine shortly before publication.

My latest.
www.theguardian.com/education/20...

22.07.2025 11:17 โ€” ๐Ÿ‘ 1085    ๐Ÿ” 644    ๐Ÿ’ฌ 48    ๐Ÿ“Œ 114
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From Long Flu to Long COVID: A Brief History of Postviral Illness | Think Global Health Despite centuries of examples, long-term maladies after flu and other viruses remain absent from mainstream policy

www.thinkglobalhealth.org/article/long...

23.07.2025 06:42 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

There is something deeply ironic in the Lords debate on the Universal Credit bill #UCBill being preceded by the debate over who gets to own the Telegraph.
But when it gets to it, you can see it here: parliamentlive.tv/Event/Index/86

22.07.2025 17:16 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Bullying at work: What to do if you are on the receiving end No one should feel unsafe or undermined in the workplace.

Coming up on 6th August, free, for charity sector professionals:
Bullying at work: What to do if you are on the receiving end
Date: 6 aug โ€ข 11:00

www.eventbrite.com/e/bullying-a...

22.07.2025 10:14 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Labour suspends four rebel MPs for breaching party discipline Neil Duncan-Jordan, Brian Leishman, Chris Hinchliff and Rachael Maskell all voted against welfare reforms.

Those suspended or demoted are all that Labour MPs should be.
www.bbc.co.uk/news/article...

16.07.2025 16:51 โ€” ๐Ÿ‘ 1    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Brazilian neuroscientist reveals how viral infections transform the brain through microscopic detective work Dr. Danielle Beckman's innovative research at the California National Primate Research Center demonstrates how viral infections disrupt brain homeostasis, leading to neuroinflammation and cognitiv...

Very honored to have given this Rising Star interview, where I could talk a bit about myself, my research, my passion for microscopy, and my dream to help find a cure for #LongCovid one day ๐Ÿ’”

Link for the full interview: short-link.me/123uR
Press release:
www.eurekalert.org/news-release...

01.07.2025 17:19 โ€” ๐Ÿ‘ 147    ๐Ÿ” 46    ๐Ÿ’ฌ 7    ๐Ÿ“Œ 2

@bsky.app Please can you consider an edit button that allows changes for one minute after posting. This will allow better quality tweets from those of us who suffer from fatigue/dyslexia. This should be an adaption. If it locks down after a minute it protects the integrity of the post.

10.07.2025 08:59 โ€” ๐Ÿ‘ 33    ๐Ÿ” 4    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 0
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Environment Agency insider alleges โ€˜cover-upโ€™ over sewage sludge on farmland Regulator and government accused of colluding with water industry to dump potentially toxic waste without oversight

The more we discover, the worse it gets. Now we learn the water companies wrote the guidance ensuring sewage sludge is not tested for the vast majority of contaminants before being spread on farmland. They gave themselves a free licence to dump hazardous waste. ๐Ÿงต
www.theguardian.com/environment/...

10.07.2025 06:13 โ€” ๐Ÿ‘ 3180    ๐Ÿ” 1720    ๐Ÿ’ฌ 118    ๐Ÿ“Œ 105
Statue of suffragette Millicent Fawcett in Parliament Square in London holding a banner with a slogan attribute to her that says 'Courage calls to courage everywhere'

Statue of suffragette Millicent Fawcett in Parliament Square in London holding a banner with a slogan attribute to her that says 'Courage calls to courage everywhere'

Don't give up. โค๏ธโ€๐Ÿฉน We are very much not done.

09.07.2025 19:41 โ€” ๐Ÿ‘ 9    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

So there we have it, the #UCBill passed, just losing the #PIP part, but with no meaningful amendment to protect #UniversalCredit claimants including LCWRA group too disabled to work. That's ยฃ2.1bn cuts by the end of the decade from 750,000 people, and that's all that this bill is for.

09.07.2025 19:18 โ€” ๐Ÿ‘ 6    ๐Ÿ” 7    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

Thank you @rachaelmaskell.bsky.social for amendment 38 to #UCBill to protect UC health payments for LCWRA with remitting/relapsing health conditions. I am sorry it didn't pass, and that there wasn't the moral courage and the ethics to pass it. But thank you for trying and for your speech today. ๐Ÿ’œ๐Ÿ™

09.07.2025 18:46 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thank you @johnmcdonnellmp.bsky.social for your NC8 amendment to #UCBill. It didn't pass. What caused more than 400 MPs to object to the government having to publish the outcome of the review into PIP assessment and to have the right to scrutinise it?
They've just removed that right from themselves?

09.07.2025 18:28 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

It's unlikely that in response to the Green Paper consultation disabled people and DDPOs called for face-to-face assessments, when DWP sites are inaccessible and not Covid-safe esp. for those with impaired health.
Is the DWP ignoring the consultation responses? What happened to "co-production"?

09.07.2025 17:59 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

Stephen Timms: despite removing Clause 5 (PIP reforms) from the #UCBill DWP will "get on with more face to face assessments" as "should have been done after the pandemic".
Has Stephen Timms decided this without consulting disabled people's groups?
@longcovidsupport.bsky.social @cvcev.bsky.social

09.07.2025 17:54 โ€” ๐Ÿ‘ 8    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Thank you @vickyfoxcroftmp.bsky.social for asking for co-production on #UCHealth as there is now meant to be on #PIP.
S. Timms replies this would be "considered" after the PIP review concludes. That's not until late 2026, but UC health is being cut for 2026claimants from 2026. There isn't time?

09.07.2025 17:53 โ€” ๐Ÿ‘ 5    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thank you @kimjohnsonmp.bsky.social for saying what needs to be said, the UC Bill needs to be scrapped.
"It's a sadistically cruel cost cutting exercise."

There's been no consultation, nothing in the bill except punitive cuts to disabled, no support, just discrimination.
#BinTheBill

09.07.2025 15:37 โ€” ๐Ÿ‘ 9    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

"The government needs to stop making policy about #disabled people without them"
@adamjamesdance.bsky.social
๐Ÿ‘๐Ÿ‘๐Ÿ‘
#BinUCBill

09.07.2025 15:34 โ€” ๐Ÿ‘ 9    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Scientific norms shape the behavior of researchers working for the greater good While rarely explicitly taught to scientists in training, a set of common values guides science in the quest to advance knowledge while being ethical and trustworthy.

Why trust science?

One answer to that question is because good scientists stick to certain ethical norms as they do their research and publish their results ๐Ÿงช

09.07.2025 13:48 โ€” ๐Ÿ‘ 30    ๐Ÿ” 8    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

โ—๏ธSevere Conditional Criteria (SCC) in the #UCBill protects very few: it excludes fluctuating symptoms and relies on diagnosis in NHS provision that might not be there. Most people too disabled to work face UC cuts.
Please vote for amendments 17, 44 by @graemedowniemp.bsky.social and 33 to fix this โ—๏ธ

09.07.2025 13:03 โ€” ๐Ÿ‘ 4    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
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URGENT ACTION: letter to send to MPs re UC bill - DPAC Subject line: UC bill: crucial amendments

Last minute push to write to your MP before tonight's vote on the #UCBill
You can use the letter here
dpac.uk.net/2025/07/urge...
and send it via Write to Them www.writetothem.com
Or quickly generate and send your letter here:
takingthepip.co.uk/write-to-you...

#BInUCBill #TakingThePIP

09.07.2025 12:40 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thank you so much for your clarity, hard work, compassion and decency. All the best today.
So many people owe you a debt of gratitude and stand with you, as you stand with them.

09.07.2025 12:35 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Most in the LCWRA category, too disabled to work/seek work are unprotected, i.e. people who can't get income through work will be losing income from their disability benefits.
UC increase applies to non-health UC rates only, while disabled claimants get cuts.
That's disability discrimination.

09.07.2025 12:30 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thank you , Richard, @richardburgon.bsky.social for all your hard work, compassion and decency, and good luck today!

09.07.2025 12:22 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Chart showing the impact on UC health claimants after Severe Conditions Criteria and SREL (terminal illness) protection, with 750,000 claimants on lower rate bearing a ยฃ2.1 billionย cutย byย 2029/30

Chart showing the impact on UC health claimants after Severe Conditions Criteria and SREL (terminal illness) protection, with 750,000 claimants on lower rate bearing a ยฃ2.1 billionย cutย byย 2029/30

UK Govt snuck out an impact assessment last night showing ยฃ2.1 bn cuts to Universal Credit health, with 750,000 claimants to lose ยฃ3,000 a year on average by 2029/30. via @richardburgon.bsky.social
The Severe Conditions Criteria (SCC) and SREL (terminal illness) are limited, protect barely 1 in 10.

09.07.2025 12:20 โ€” ๐Ÿ‘ 8    ๐Ÿ” 6    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image 07.07.2025 20:27 โ€” ๐Ÿ‘ 112    ๐Ÿ” 48    ๐Ÿ’ฌ 9    ๐Ÿ“Œ 1
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Welfare reforms breach international law, says new expert legal opinion New expert legal opinion says the governmentโ€™s welfare reforms โ€œresult in very serious breachesโ€ of international human rights law and constitute โ€œhuman rights violations for disabled peopleโ€ and desc...

Uk Government's #WelfareReforms breach international law, according to expert legal opinion by Jamie Burton KC, Doughty Street Chambers, commissioned by Equity @equityuk.bsky.social
www.equity.org.uk/news/2025/we...

Full legal opinion www.equity.org.uk/media/254d4q...

09.07.2025 11:34 โ€” ๐Ÿ‘ 2    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thinking of those lost in the past months, to exacerbated illness and to loss of hope. Of the tears that weren't splashed across the front pages.
Please don't ever give up hope. You are not alone โค๏ธโ€๐Ÿฉน๐Ÿ’š
There are many of us, holding each other up, we have your back. We'll see this through.
#BinUCBill

08.07.2025 22:35 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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UC & PIP Bill amendments A Flourish data visualization by Ayaz Manji

Visual guide to #UCBill amendments:
public.flourish.studio/visualisatio...
#WelfareBill

08.07.2025 22:27 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Given UN concerns, you should #BinUCBill tbinternet.ohchr.org/_layouts/15/...
โ—If you can't, amendments to support:
On UC: 2a or 14 and 17, 33, 38 (to protect severely disabiled)
On PIP: NC8, NC11
On consultation: NC7
On UN CRPD compliance: NC10, NC4
On impact/equality assessment: NC2, NC3, NC5

08.07.2025 22:26 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

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