ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
person living with ALS
advocate raising awareness and support
@ALSActionCanada
CFA | Sr. Executive Financial Analyst
📊 Driving financial excellence & strategic growth
🌐 M&A, risk management & Certified Transformation coach.
🌈
#HumanRights
Grandchildren, Finding a Cure for ALS, Bird Watching, Gardening, Walking, Music, Beach, Reading, Refinishing Furniture, Spending time w/ Family, Human Decency.
ALS Fighter since 2008; former Veterinary Technician Specialist ; amateur genealogist; firm believer in Liberty and Justice for ALL.
Over-educated / dog woman, Mom to 'All Things Living' Whisperer, IT prof, water burner, Bluesky lurker, reformed Republican, and ALS advocate
Husband, Actor, Activist, Uncle George to the Internet 🖖
Widow due to ALS.
Warrior because of ALS.
Three words for ALS...
WE WILL WIN!
Dog momma. Musical Lover. Total Ham!
my thoughts are mine and not my employer.
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
www.iamals.org/als-awareness-month
#ALSisHere
#SoAreWe
❤️🎶,🐈,genealogy & people with stories.Midwest grown mountain matured. Dem since 1976. CALS(mom) survivor dad & brother suicide. Iowa->Colorado->Montana->Minnesota
Midwestern Writer @Politico.com
Biotech reporter, San Francisco Business Times
ALS = Lou Gehrig's Disease Thought it had been cured by now?
Still no known cause. Still no cure. Still meh treatments. Still quickly fatal. Still outrageous.
https://x.com/alsadvocacy
Electronics Engineer who has ALS. Member IEEE Brain, EMBS,iBCI-CC.org.
Designed & built a custom AAC eye gaze computer.
BCI candidate to drive my exoskeleton. Python & CoPilot noob.
Interested in EAPs. #MedSky
Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinson’s, FTD, rare diseases. #patientsincluded
Reporter at STAT. The Harry Kane of biotech. Dog ❤️er. Polk Award winner. Said one analyst: The likes of Adam Feuerstein attack viciously.
Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
Epidemiologist. AIDS Activist. Dog lover. New Haven.
