VP Research & Strategic Partnerships @ ALS Canada. Science brain, advocate heart.

ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.

We raise awareness for ALS and support ALS research. Find out more at ALSdoubleplay.com #makeALShistory

Living with ALS diagnosed 2011. Tracheostomy free. Knitter, seamstress, reader of books. 92270 for warmth.

“Cosplay is for EVERYONE.” ✨👩‍🦽✨ Misa is a cosplayer and disability advocate based in New England.

Motor Neurone Disease Australia is the peak body for the MND community in Australia. We have built & sustained Australian MND research for 40 yrs and partner with other Australian and international MND/ALS organisations.

Palliative care physician, tender of those with ALS/MDS, mother, dog lover, positive deviant. Third-culture kid | #palliative #hapc #ALS #meded #creative | English • Spanish • Brazilian Portuguese • German |

Postdoc @mndoxford.bsky.social @ndcnoxford.bsky.social working on protein biomarkers of ALS/MND and extracellular vesicles.

Dad, Neurologist, lap swim junkie, fountain pen enthusiast, note-taker. Owner of too many notebooks.

Academic lawyer/bioethicist studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), and clinical research ethics and regulation, with a splash of psychedelics.

Drosophilist, DIY enthusiast, group leader, senior fellow & Dementia Research Leader Fellow based in SITraN, Sheffield, UK. Working on #FTD, #ALS and #MND Find us here: sites.google.com/view/the-west-lab-sheffield

Associate Professor at the Centre for Brain Research, University of Auckland, NZ. #ALS #MND #FTD. Lover of molecules, cells, life.

Neuroscientist 🧠 | ALS researcher 🧪👩🏽‍🔬 | human | biotech | she/her There is no 🌍 without ART

I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.

The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS www.als.net

Kieran and Quinn’s Dad. ALS Advocate. hoops4als.com

ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still meh treatments. Still quickly fatal. Still outrageous. https://x.com/alsadvocacy

Neuropsychologist, patient advocate, and digital health architect specialising in ALS, Parkinson’s, FTD, rare diseases. #patientsincluded

Electronics Engineer who has ALS. Member IEEE Brain, EMBS,iBCI-CC.org. Designed & built a custom AAC eye gaze computer. BCI candidate to drive my exoskeleton. Python & CoPilot noob. Interested in EAPs. #MedSky

Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. Oklahoma Blue Dot. ALS'ing since Feb. 2017.