@jojomcp.bsky.social
Partnerships & Community Manager for Medics For Rare Disease. This is my personal account and my views are my own. Let’s make #Raresky a thing
Such a great day! Such amazing stories shared… @loomoomahoo.bsky.social
10.03.2025 18:48 — 👍 1 🔁 0 💬 0 📌 0@helenmaginnis.bsky.social hellllloooooo. You can join the cool gang that is me and @loomoomahoo.bsky.social 😎
06.03.2025 18:57 — 👍 1 🔁 0 💬 0 📌 0Last Friday was amazing! So many stripes on show! #ShowYourStripes @medicsforrare.bsky.social
06.03.2025 18:56 — 👍 1 🔁 1 💬 1 📌 0
Let’s turn @bsky.app stripey today! #ShowYourStripes for #RareDiseaseDay @medicsforrare.bsky.social #RareSky
28.02.2025 13:23 — 👍 1 🔁 0 💬 1 📌 0
Are you ready to #ShowYourStripes for Rare Disease Day? Check out ideas on how to get involved at www.m4rd.org/rarediseased... and let’s turn #BlueSky stripey on the 28th!
@medicsforrare.bsky.social #RareSky
I needed a new toy and a #papertablet was calling my name!! I cannot wait for my ReMarkable 2 to arrive so i can join the cool kids gang with @loomoomahoo.bsky.social
20.02.2025 17:03 — 👍 1 🔁 0 💬 1 📌 0Showing off your fancy animation skills @loomoomahoo.bsky.social ! Love it!! #showyourstripes #RareSky
19.02.2025 10:39 — 👍 1 🔁 1 💬 0 📌 0
Tonight my husband and I attempted a romantic valentines meal. This was our 7-year old son’s contribution #legoflower ❤️
14.02.2025 19:34 — 👍 0 🔁 0 💬 0 📌 0
So does that make me @loomoomahoo.bsky.social ?
13.02.2025 15:48 — 👍 0 🔁 0 💬 1 📌 0A colleague called me tenacious today for stirring up some sibling rivalry among my eldest kids to see who could best promote @medicsforrare.bsky.social #ShowYourStripes in their work place by contacting the Senior Publicity Manager @paramountpictures.bsky.social UK. I’m taking it as a compliment 🤔
12.02.2025 20:09 — 👍 2 🔁 0 💬 1 📌 0I’m going with advocacy #showyourstripes
12.02.2025 19:53 — 👍 1 🔁 0 💬 0 📌 0Should we get you a black and white cat and make up a little song about your postal prowess?
07.02.2025 09:49 — 👍 1 🔁 0 💬 1 📌 0
Calling all those in the #RareSky community… get ready to #ShowYourStripes for Rare Disease Day @medicsforrare.bsky.social @loomoomahoo.bsky.social
06.02.2025 18:59 — 👍 3 🔁 1 💬 0 📌 0You heard ‘em… go go go! @medicsforrare.bsky.social @loomoomahoo.bsky.social #RareSky #ShowYourStripes
06.02.2025 18:44 — 👍 1 🔁 0 💬 1 📌 0Amazing work @iiamaish.bsky.social #RareSky
05.02.2025 12:56 — 👍 2 🔁 1 💬 0 📌 0
Had to try them out!! Getting ready for #RareDiseaseDay #ShowYourStripes @medicsforrare.bsky.social #ThinkRare #RareSky
05.02.2025 09:04 — 👍 4 🔁 2 💬 0 📌 0I’m not a medical expert but I don’t believe so…
05.02.2025 09:02 — 👍 0 🔁 0 💬 0 📌 0Come and join us ahead of Rare Disease Day and be educated about #RareDisease at this online training with @medicsforrare.bsky.social on 25th Feb #Genetics #Genomics #RD101 #ThinkRare #RareSky
04.02.2025 20:45 — 👍 1 🔁 0 💬 2 📌 0Rare Disease Day you say?! I hadn’t realised… 😂 #RareSky #RareDisease
04.02.2025 17:54 — 👍 2 🔁 0 💬 1 📌 0Save by day, murder by night!!
31.01.2025 22:14 — 👍 1 🔁 0 💬 0 📌 0Ha!!! Wait until you get drawn into the US version 😂 #banished
31.01.2025 21:49 — 👍 1 🔁 0 💬 1 📌 0I’m proud to be the Partnerships & Community Manager for @medicsforrare.bsky.social Our vision is equitable healthcare for everyone. Our mission is to shape a medical profession that can provide a timely diagnosis and excellent care to people living with rare conditions #RareSky
30.01.2025 15:56 — 👍 3 🔁 1 💬 1 📌 0Yes to #Raresky @loomoomahoo.bsky.social @aaronblocker.com
30.01.2025 15:50 — 👍 2 🔁 0 💬 1 📌 0
@medicsforrare.bsky.social official #ShowYourStripes for Rare Disease Day 2025 campaign page is now live!! 🧦 🦓
Go check out their fantastic new assets and get your stripe on ready to raise awareness now: www.m4rd.org/rarediseased...
#ShowYourStripes
#MedicsForRare
