Rebecca Stewart

Our community insights are a terrific snapshot

Do you understand what is meant by co-design in the context of advocacy and industry partnerships? Results from our poll asking, do you understand what is meant by co-design in the context of advocacy and industry partnerships?

We asked our community "Do you understand what is meant by co-design in the context of advocacy and industry partnerships?". insights brings you the latest views from your global RARE community. To access insights click below.

rarerevolutionmagazine.com/rare-insider...

From songlines to science: Bridging healthcare and Indigenous culture Gareth Baynam has pioneered an innovative project translating medical terminology into Aboriginal languages.

Discover how Prof. Gareth Baynam's 'Lyfe Languages' project bridges healthcare and Indigenous culture by translating medical terms! #IndigenousHealth #HealthcareInnovation #LyfeLanguages #RareDisease rarerevolutionmagazine.com/rare-insider...

Houston we have a problem: NASA-inspired strategies for rare disease Michael Wilbur discusses how many scientific advances have come out of the space programme that can be strategies for rare disease.

🚀 Houston, we have a problem: NASA-inspired strategies for rare diseases! 🌌 Let's unite to advocate for the rare disease community! rarerevolutionmagazine.com/rare-insider...
#RareDisease #Innovation #Research #PublicHealth #NASA #Healthcare

Solving the unsolvable: a revolutionary new model for diagnosing rare diseases Breaking down barriers and placing families at the heart of medical investigations, the undiagnosed hackathon has already secured diagnoses for families.

Exciting news! The Undiagnosed Hackathon is revolutionising rare disease diagnosis with global experts. Join us at Mayo Clinic in Sept 2025! Let's celebrate! rarerevolutionmagazine.com/rare-insider...
#MedicalInnovation #UndiagnosedHackathon
#RareDiseases

Dr Kate Cameron on championing diversity in research sampling Cytochroma is championing diversity in research sampling by representing men and women from different genetic backgrounds.

Exciting advancements in tissue engineering! Cytochroma is developing animal-free mini organs from stem cells. Watch Kate's interview: rarerevolutionmagazine.com/rare-insider... #TissueEngineering #StemCells #Innovation #RareDiseases #Cytochroma

incognito: the secret life of a...healthcare data CEO I have been at the centre of patient and community work within rare disease for over a decade and a digital health innovator

A digital health entrepreneur launched an AI venture after her daughter's rare diagnosis to empower those with chronic conditions. 🌍💡 #HealthcareLeadership #AI #RareDiseases #EmpathyDrivenTech rarerevolutionmagazine.com/rare-insider...

Helene Cederroth: Solving the unsolvable - A revolutionary new model for diagnosing rare diseases Interview by Emma Bishop, RARE Revolution insider, featuring Helene Cederroth, founder and CEO, Wilhelm Foundation

Exciting news! The Undiagnosed Hackathon is transforming rare disease diagnosis. Watch a sneak peek at Helen Cederroth's interview: rarerevolutionmagazine.com/rare-insider... #RareDiseases #MedicalInnovation #UndiagnosedHackathon #GlobalCollaboration #Hope

If you haven’t come across the new title RARE Revolution insider it’s a great time to subscribe with 25% off.

Jenifer Ngo Waldrop of Rare Disease Diversity Coalition (RDDC) Women in Rare: Jenifer Ngo Waldrop of Rare Disease Diversity Coalition (RDDC) With expertise in strategic planning

Championing equity in rare disease advocacy! Jenifer Ngo Waldrop of the RDDC is driving change to reduce health disparities. Read her inspiring journey here: rarerevolutionmagazine.com/rare-insider... #RareDisease #HealthEquity #RDDC

“Our goal is to print a kidney in 24 hours” Vidmantas Šakalys is CEO of Vital 3D, a company that is working towards its long-term goal of printing a kidney in 24 hours.

The future of organ transplants is here! Scientists aim to bioprint a functional kidney in just 24 hours. Could this transform healthcare? Read more: rarerevolutionmagazine.com/our-goal-is-... #Bioprinting #MedicalInnovation #FutureOfHealthcare

Capturing real-world data: “the right data, at the right time, in the right way” Michelle Conway Capturing discusses real-world data: “the right data, at the right time, in the right way”.

Real-world data is revolutionizing healthcare! Capturing the right data can drive better outcomes and accelerate breakthroughs. Learn more here: rarerevolutionmagazine.com/capturing-re... #RealWorldData #HealthcareInnovation #DataDrivenCare

A new method of peptide synthesis may be the key to a greener future for pharma Origin Peptides want to revolutionise the peptide market, which they are doing via an approach that is “greener, cheaper and faster”.

Dr. Sara ten Have discusses the environmental impact of peptides in drug development. Origin Peptides aims to revolutionise the market with a "greener, cheaper, and faster" approach. Read her full article here: rarerevolutionmagazine.com/a-new-method...

Rare Revolution Rare Revolution - Special Ed 016

Our #RareDiseaseDay edition is now live. Gearing up for another rare disease day that elevates this incredible community editions.rarerevolutionmagazine.com/html5/reader...

Excited to share this article about the work the wonderful Wayne Danter has been doing for us at Action for XP.

Calling out for partners to join us in the next phase of this important research project. Get in touch if you would like to find out more.

www.actionforxp.org/news/the-inf...