@laineadrienne.bsky.social
Sometimes artist, surviving endometriosis, garden gnome, COVID competent
Still am.
16.11.2025 10:21 — 👍 105 🔁 16 💬 2 📌 0
Who asked clinically vulnerable if we were ok with this? The turning point where preventable deaths were forgotten. What about layered mitigations? Clean Air & vaccines. Why didn’t #RightToLife apply to COVID? #ECHR
16.11.2025 11:50 — 👍 20 🔁 5 💬 0 📌 0Want to honor Alice Wong and her work? Wear a damn mask!
15.11.2025 07:32 — 👍 742 🔁 304 💬 2 📌 8My heart is so heavy … I lost a friend and mentor yesterday and the disability community lost a leader.
The incomparable Alice Wong passed away.
She inspired me to find my voice.
She encouraged me to take up space and embrace my disabled body.
Respect Alice Wong’s call here:
“When I am in public spaces and see most people unmasked either because they think the virus is a hoax, that masking is virtue signaling & a sign of weakness, aren't thinking about it, or that they simply don’t care, I feel like an expendable burden not worth saving.”
The irony here is painful.
Alice Wong wrote a column for Vogue called Disability Visibility. You can still find all her writing for Vogue under her author name.
But *Disability Visibility* - also the name of the advocacy group she launched - has been erased.
Exactly how disabled people often are.
This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin. We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.
💔 Alice Wong’s last words: “Don’t let the bastards grind you down.”
We can never thank Alice enough for fighting all the good fights and especially all the hard fights. We all learned so much from your brilliance, your courage, and your indefatigable leadership. We will never forget you.
If no one in your timeline is grieving the loss of Alice Wong today then you’re not hearing from enough disabled people or even people who listen to disabled people.
That’s a massive segment of society to which you will likely belong some day. Might want to turn an ear toward them sooner than later
‘Death remains my intimate shadow partner. It has been with me since birth, always hovering close by. I understand one day we will finally waltz together into the ether. I hope when that time comes, I die with the satisfaction of a life well-lived, unapologetic, joyful, & full of love.’
—Alice Wong
=Alice Wong on the cafe patio at the Museum of Modern Art in San Francisco.
Wonderful writer & warrior.
15.11.2025 11:06 — 👍 191 🔁 28 💬 1 📌 3Alice in her own words: bsky.app/profile/thra...
15.11.2025 10:58 — 👍 427 🔁 110 💬 10 📌 4
Black text on a yellow background - This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin. We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.
“Don’t let the bastards grind you down. I love you all.”
15.11.2025 06:15 — 👍 3315 🔁 1095 💬 10 📌 161Honoring Alice Wong's life and legacy with gratitude, in solidarity and sorrow, this morning. I was a fan; thinking of all who loved and knew her personally.
Alice's words speak to us still. As a chronically ill person, I will keep listening. What a beautiful, bold, *brilliant* life well lived.
“It’s not just the illness. It’s the social response to COVID that has grown up around us, isolates & alienates us, creating a sense of pressure, anxiety & tension. People don’t believe in our illness, & they work to ensure reinfection risk is high as it can be.”
open.substack.com/pub/thegaunt...
In the light of this, it's important to establish the relationship between reactivation of EBV (which, of course, can be triggered by SARS-CoV-2 infection) and the development of new-onset lupus.
www.scientificamerican.com/article/the-...
Relationship between shingles and coronavirus disease 2019: a self-controlled case series study Get access Arrow Tomoki Mizuno, Jun Suzuki, Shota Takahashi, Haruka Imai, Hideya Itagaki, Tomohiro Akaba, Makiko Yoshida, Shiro Endo International Journal of Epidemiology, Volume 54, Issue 5, October 2025, dyaf162, https://doi.org/10.1093/ije/dyaf162 Published: 26 September 2025 Article history
Study: Relationship between shingles and coronavirus disease 2019: a self-controlled case series study.
Published: 26 September 2025
academic.oup.com/ije/article-...
A preview card from Managed Healthcare Executive showing a teal-toned illustration of several 3D SARS-CoV-2 virus particles floating against a green gradient background. Below the image, the headline reads: “COVID-19 may increase the risk of shingles for some, Japanese study finds,” with the author listed as Jared Kaltwasser.
New data from Japan adds evidence that COVID-19 may raise shingles risk.
The findings come from nearly 400,000 patients diagnosed with COVID-19 from 2020–2023, showing a higher incidence of shingles for a full 6 weeks after being infected with the SARS-CoV-2 virus.
Source: archive.li/hFsm4
Hey so “underage girls” are…children. The word you’re looking for is children. They’re not like, women-in-waiting or women-lite or whatever. They’re children. I think some of you are very uncomfortable with what that means for you but it is still true.
12.11.2025 23:05 — 👍 18445 🔁 5026 💬 11 📌 11
Hey, fellow workers.
Some of you may already know this, but my spouse is a PhD student. She does that while also working. What you may not know is that her work for the last 4 years has been short-term contract after short-term contract, sometimes multiple contracts all at once.
Devastated by what's happening at TeenVogue. A 2017 article about endometriosis literally saved my life by laying out exactly how to seek treatment for the disease I'd suffered from since age 14. I will forever be grateful to TeenVogue for this crucial information. www.teenvogue.com/story/hyster...
10.11.2025 00:56 — 👍 1 🔁 0 💬 0 📌 0God I love her. Grind his bones to make your bread mama
09.11.2025 16:51 — 👍 445 🔁 39 💬 11 📌 0
Sounds like this is still true
www.thegauntlet.news/p/hospitals-...
One simple, powerful and often overlooked thing you can do to resist fascism?
Wear a mask, ideally an N95!
Covid is not over
Masking sends a powerful message that you value your health & the health of your community
That you don’t think disabled lives are expendable
It’s radical community care
I appreciate Andrew Nikiforuk at @TheTyee for highlighting the continuing science of COVID and the importance of prevention.
The virus keeps reshaping health and society — we can still choose to act wisely.
thetyee.ca/Analysis/202...
CBC’s Flagship Program Platforms “Quackery” for Long COVID
Canadian Health Sentinel
October 31, 2025
By Simon Spichak
stillcoviding.ca/en/news/cbcs...
#COVID #CovidIsNotOver #LongCovid
Go to LitCOVID and you can read hundreds of thousands of studies about how dangerous COVID infections are, including tens of thousands about how bad COVID is for pregnant women, babies, and children.
www.ncbi.nlm.nih.gov/research/cor...
"Can we disconnect not caring about a pandemic from a rise in fascist politics, war crimes and genocide in Palestine, and a cost of living and housing crisis amid record private sector profits?" #covid #longcovid
www.thespec.com/opinion/cont...
Hamilton Spectator article titled "minimizing COVID-19 is maximizing social harm" with photo of crowded indoor space and people in medical and respirator masks
Minimizing COVID-19 is maximizing social harm
One of the best articles I've read all year because it centers social justice and equity. Published today
Gift link 🎁 www.thespec.com/opinion/cont...
Screenshot of an AirSpot article titled “Coronavirus found in samples from 96% of flights.” The image shows a crowded airplane cabin with passengers seated close together, viewed from the back of the plane. The article header includes the AirSpot logo with green, yellow, and red bars and the tagline “Discover Healthy Air.” The byline below notes the article was published on October 1, 2023, with a 2-minute read time.
"Coronavirus found in samples from 96% of flights"
Article published: 01 Oct 2023
"If you believe it's now safe to fly without a protective mask, you might want to think again. New research shows the COVID-19 virus has been found on nearly every flight tested."
Source: archive.li/1S0tH
Attention #yycbike
28.10.2025 00:43 — 👍 54 🔁 39 💬 1 📌 0
