Briana Arnett

Trump's made tariffs central to his presidency. Chaos may come next President Donald Trump suffered a rare rebuke when the Supreme Court ruled against his tariff agenda. The decision Friday throws U.S. trade policy back into uncertainty.

apnews.com/article/trum...

Beyond Awareness: What the Rare Disease Community Really Needs is written across the top center of a watercolored backdrop of purple, pink and blue blend together. Embedded into the background is a DNA helix, a faint image of the back facing side of a group of people and a heart beat symbol. Underneath the title, are two awareness ribbons side by side: one ribbon a rainbow zebra theme and the other a black and white zebra theme.

Beyond Awareness: What the Rare Disease Community Really Needs

Learn more at:
www.rare360.life/post/beyond-...

#rareadvocacy #rarediseasecommunity #rare360 #rarediseaseday #livingrare #valentinesday

Demand Your Members of Congress Co-Sponsor the Melt ICE Act Now! 🗣️Tell Congress: Close ALL Detention Centers! The Melt ICE Act would close all detention centers and release our detained neighbors back into our communities, where they belong. Join UWDA in taking ...

🗣️ Tell Congress: Close ALL Detention Centers! The Melt ICE Act would close all detention centers & release our neighbors back into our communities, where they belong. Join me & UWDA in demanding members of Congress co-sponsor the Melt ICE Act: actionnetwork.org/letters/dema...

Happy #LunarNewYear! Today marks the beginning of the Year of the #FireHorse in the Chinese zodiac, a symbol long associated with intensity, independence, movement, and transformation.

For the #raredisease community, this symbolism resonates deeply.

Learn more at:
www.rare360.life/post/the-yea...

Congress Maintains Most Federal Funding for Libraries, Museums, and Archives.

Rebuking President Trump, Congress votes to maintain most of the federal funding for libraries, museums, and archives.

www.everylibrary.org/congress2026... via @everylibrary.bsky.social

🩵

I have another blue sky page for my chronic pancreatitis with EPI. I just changed the name. It’s @scarredpancreascp.bsky.social

a zoom in on my new fursona sheet where a text box says “gender is permanently whatever makes me crossdressing right now” with mars and venus symbols intertwined, and a pretty bow on the box.

fursona sheet coming along great

Do yourself a favor and block every account you see bashing Kamala.

Tonight’s dumb napkin cartoon…

Reuters: New Mexico lawmakers on Monday passed legislation to launch what they said was the first full investigation into what happened at Zorro Ranch, where the late U.S. sex offender Jeffrey Epstein is accused of trafficking and sexually assaulting girls and women.

A win! A federal judge has instructed the Interior Department to restore signage and video exhibits at George Washington’s former Philadelphia residence that explain his ownership of enslaved people.

I have another blue sky page for my chronic pancreatitis with EPI. I just changed the name. It’s @scarredpancreascp.bsky.social

Prospective multicenter study of patients with intractably painful #ChronicPancreatitis or RAP found total pancreatectomy with islet autotransplantation significantly reduced pain burden and improved quality of live.
🔗 ow.ly/FW0T50XA8jE

In time with the
@ueg guidelines, our review on #chronicpancreatitis was published in @TheLancet
authors.elsevier.com/c/1kDP6V-4XO...
Thanks to #robertcverdonk
#hjalmarsandvoort #naomithierens and #jeaninvanhooft

🔹 Welcome to #TrigTriviaTuesday - where we help boost your #TrigIQ.

Did you know high triglycerides can trigger #AcutePancreatitis— and it’s often more severe and deadly than other causes?

Even one episode increases future risk. Repeated flares? They can lead to #chronicpancreatitis or worse.

a graph of pancreatitis

#ChronicPancreatitis (CP) is a syndrome commonly associated with clinical features of abdominal pain, exocrine and endocrine insufficiency, secondary pancreatic cancer, and other complications.

🔗 Access the online course on Gutflix: https://bit.ly/3VmddW5

Well, you should see Polythene Pam…

Neurodivergent Voices in Play – A Kajillion Thanks for Kabillion Toys - Journey Through The Senses By: Neurodivergent Voices in Play/Neurodivergent Collectables (Marlene Sharp, Vadim Govorov and Autism in Entertainment) On a pre-Thanksgiving Tuesday in November 2025, producers and principals Mike a...

www.journeythroughthesenses.org/2026/01/15/n...

Some humor, but still true.

This is concerning, that a rep feels they must post this. A lot in our coalition has felt the same way and worried about it, but didn’t think we’d be here publicly.

YouTube video by Harry Sisson Trump IMPLICATED In Newly Resurfaced Footage

youtu.be/S__eEv9qG7c?...

How's your brain? A bit too gooey LOUD! Haunted At max capacity Too thinky Not thinking enough Fragile Victimized by this cruel world Sunny Do not disturb mode Detached All shook-up Foggy I want a refund (lol) Full of silly songs Sparkling

Describe your sad: BIG sad small sad Light sprinkling of sad Rising sad Sharp sad Confusingly beautiful sad Heavy sad Creeping sad Sad on toast

How are you feeling?
🫠🥺😵‍💫😄🫣😎🫩😖☺️

Need help finding mental health resources: We will help you find what you need 🩵

linktr.ee/thezebraalliance
#mentalhealth #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability ##ehlersdanlossyndrome

PhenoTips Speaker Series presents: Matchmaking for Rare Disease Diagnosis with Matthew Osmond, Genetic Counsellor at CHEO and Care4Rare Matchmaking Genetic Counsellor. February 15th 2026, 12-1 pm EST.

To celebrate #RareDiseaseDay, we've invited Matthew Osmond, #CHEO Genetic Counsellor & #Care4Rare Project Manager, to join a #SpeakerSeries panel on #Matchmaking for #RareDisease Diagnosis.

Join Matthew and other #PatientMatchmaking pioneers live: us06web.zoom.us/webinar/regi...

Rare Advocacy Spotlight: Reagan-Udall Foundation for the FDA Highlighting the Reagan-Udall Foundation for the FDA and its impact on rare disease research and clinical trials.

🌟 This Month’s Rare Advocacy Spotlight: Reagan Udall Foundation for the FDA 🌟

They connect patients, clinicians, researchers & industry to advance collaboration, innovation & patient-centered solutions.

📩 Read & subscribe: https://bit.ly/46EroM7

#RareAdvocacySpotlight #RareDisease

Rare Disease Month: Taking a People-First approach in the global fight against rare disease - PacBio For Rare Disease Month, we’re sharing stories across the globe that connect the data to the lives of the families at the center of it.

Rare disease is more than statistics. It is lived every day by families searching for answers.

For Rare Disease Month, we share global, People-First stories showing how earlier genomics and long-read WGS can shorten diagnostic journeys.

Details: bit.ly/3ZyEczS

#WeCareForRare #PacBio #RareDisease

🦓This month, we stand with our neighbors, caregivers, researchers, and healthcare professionals working to improve awareness, access to care, and support across our state for #raredisease.

🌶 #NewMexico needs a #RDAC!

#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras

Rare Diseases, Real Stories Rare Diseases, Real Stories

February is Rare Disease Month. The Rare Diseases, Real Stories podcast series spotlights families affected by rare diseases. Listen here: direc.to/oUKe

#RareDiseaseMonth #RareDisease #RareDiseases #RareDiseasesRealStories #podcast #GeneTherapy @courageousparentsnetwork.org @uofmass.bsky.social 🎧