@nmraredisease.bsky.social
🦓 Digital source for New Mexico Rare Disease Community. 🌐 www.nmraredisease.org #NMRareDisease #NMRare #Showyourstripes #ziazebras
🦓 2️⃣ Days till New Mexico's #rarediseaseday celebration! 🥳
🌶 #NewMexico needs a #RDAC!
💛 Join us in advocating for the change our children and families need to thrive in the future.
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 3 Days till New Mexico's #rarediseaseday celebration!
🌶 We need better healthcare and a #RDAC will help us all!
💛 Please join us and advocate for the change New Mexico's children and families need!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 Each February, the global community comes together to raise awareness for people living with #raredisease — conditions that affect fewer than 1 in 2,000 people but impact millions of lives worldwide.
🌶#NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #ziazebras
🦓 Join us Friday 2/27 to celebrate #rarediseaseday!
📝 More info is on the site:
tinyurl.com/2cmwb42d
🌶 Come and #showyourstripes #NewMexico!!! 🦓
#nmleg #nmpol #nmrare #nmraredisease #raredisease #ziazebras
🦓 In #NewMexico, awareness matters!
🌶 Patients, caregivers, families, advocates, and researchers are working daily to improve access to diagnosis, care, research and support here in our state.
#RDAC #nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
🦓 It is #ValentinesDay weekend! ❤️
💛 So, let’s spread some love and make #RareDisease visible in the Land of Enchantment!
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
🦓This month, we stand with our neighbors, caregivers, researchers, and healthcare professionals working to improve awareness, access to care, and support across our state for #raredisease.
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 In New Mexico, thousands of individuals and families are living with #rarediseases — and behind every diagnosis is a story of resilience, advocacy, and hope.
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓Today is World Cancer Day, most cancers are rare and affect children.
Let's raise awareness of #raredisease and encourage prevention, detection, and better treatment for everyone!
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 February is #raredisease month, a time to honor the strength of the rare disease community and shine a light on conditions that often go unseen.
💛 Join us this month to celebrate!
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 Rare Disease Day 2026 is next month, info on our website.
We invite you all to join us and help advocate for #raredisease and better healthcare for all new mexicans.
🌶 #NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 What if we used this time to commit to something even bigger — like supporting those who face challenges we may never fully understand?
🌶This year, let's make a resolution to raise awareness for #raredisease, #NewMexico!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #ziazebras
🦓 #raredisease can often go undiagnosed for years, leaving patients with fewer treatment options and a lack of support, resulting in feeling isolated and loneliness.
🌶 #NewMexico needs a
#RDAC and better healthcare!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 Rare diseases, aka orphan diseases, affect a small number of people compared to common illnesses.
While each disease might affect a few, together, they impact millions globally.
#NewMexico needs a #RDAC!
#nmleg #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
🦓 Many rare diseases don't have the same visibility or funding as more common conditions, which means patients often struggle to get the care they need.
🌶 That needs to change #NewMexico!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras #raredisease
🦓 #Rarediseaseday 2026 is coming next month #NewMexico!
Are you ready to celebrate?
More details coming soon!!!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 To everyone living with or caring for someone with a #raredisease this season: your resilience is remarkable. Your way of celebrating—quietly or loudly, simply or creatively—is just as magical and meaningful.
🌶#NewMexico needs a #RDAC!
#nmrare #nmraredisease #ziazebras
🦓 This year, let's make a resolution to raise awareness for #rarediseases not only in #NewMexico but globally for all.
🌶 NM needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
🦓 2026 needs to be the year that #Newmexicans living with #raredisease don't have to travel for healthcare!
Join us and let's improve #NewMexico #healthcare for all.
✔️ NM needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓Welcome to 2026!🥳
This year will be full of achievements and milestones made in changing how #raredisease is treated and diagnosed.
First, #NewMexico needs a #RDAC!
Please join us & improve our state for all!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 Have a #HappyNewYear #NewMexico!🥳
#Welcometo2026!
🎉 Join us and improve healthcare across the state, NM needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
🦓Your #raredisease experience matters!!
Even if fewer people understand what you’re going through, your feelings—whether joy, grief, hope, or frustration—are real and deserve space.🤍
🌶#NewMexico needs a #RDAC!
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 #MerryChristmas #NewMexico!🌲
🌶 Join the herd, and let's finalize the #RDAC for everyone's benefit! ❄️
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
🦓 Wishing those affected by #raredisease comfort, connection, and moments of light this holiday season. 🎄🎁
⏰️ It's time #NewMexico has an #RDAC! ❄️
#nmleg #nmpol #nmrare #nmraredisease #raredisease #showyourstripes #ziazebras
🦓 Tons of patients have to travel out of state for #healthcare.
Many discover how difficult it is to get records & prescriptions filled by out of state providers due to restrictions in #NewMexico.
#Raredisease deserves better!
#nmleg #nmpol #nmrare #nmraredisease #ziazebra
🦓 Every day is #rarediseaseday for patients & families suffering from rare diseases.
They get no breaks or vacations but deserve quality healthcare, especially here in #NewMexico!
Let's make #NewMexico #healthcare better for all!
#nmrare #nmraredisease #raredisease #ziazebras
🦓 You’re not alone!
There’s a whole #raredisease community of people navigating similar challenges, even if your condition is rare.
🖇 Connection can happen in small, meaningful moments but not without effort.
#NewMexico
#RDAC #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 #NewMexico #patients and especially those with #raredisease, deserve better #Healthcare!
No patient should have to travel to another state just to be seen or heard.
✔️ Join us and be a voice for positive change!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #raredisease #ziazebras
🦓 Time is important when managing or diagnosing #raredisease.
🗓 #NM wait times vary from 4-8 weeks to months, depending on the provider.
It's unacceptable for anyone!
#NewMexico #patients deserve better!
#RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
🦓 Holiday seasons are often painted as a time of joy, celebration, and togetherness. For those living with a #RareDisease, it can also bring unique challenges that aren’t always visible to others.
#NewMexico #RDAC
#nmleg #nmpol #nmrare #nmraredisease #showyourstripes #ziazebras
