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LymeScience

@lymescience.org.bsky.social

Grassroots SciComm + Patient Advocacy + Consumer Protection Because patients deserve better LymeScience.org

342 Followers  |  171 Following  |  681 Posts  |  Joined: 18.10.2024  |  2.2132

Latest posts by lymescience.org on Bluesky

WHO and its commitment to global pediatrics

WHO and its commitment to global pediatrics

My latest on @who.int and its enduring commitment to global pediatrics

jppt.kglmeridian.com/view/journal...

04.08.2025 22:42 β€” πŸ‘ 72    πŸ” 22    πŸ’¬ 2    πŸ“Œ 0

We have now seen two horrific instances of when a quack's malpractice leads to the unnecessary death of a parent's daughter, followed by the quack waging a vicious harassment campaign against the parent.

The narcissism of quacks knows no bounds.

04.08.2025 19:03 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Chronically Ill? In Kennedy’s View, It Might Be Your Own Fault - KFF Health News In their zeal to β€œMake America Healthy Again,” top Trump administration officials depict patients and the doctors who treat them as partly responsible for whatever ails them.

In the MAHA universe, medicine is portrayed as illness and both patients and doctors are blamed for making the wrong choices.

kffhealthnews.org/news/article...

04.08.2025 13:13 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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Jacquie B (@thesleepiestscientist) on Threads Today is Day 13 of Tae-Heung β€œWill” Kim being wrongfully detained by ICE. He has been mocked, ridiculed, stolen from, abused and tortured for NO REASON. He is a legal permanent resident and PhD stud...

Thanks to Jacqui for posting on threads:
www.threads.com/@thesleepies...

03.08.2025 22:54 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Donate to Help Free Will Kim from ICE Detention, organized by Tae Kim Tae Heung β€œWill” Kim, a 40-year-old lawful permanent resident, has called Texas home for… Tae Kim needs your support for Help Free Will Kim from ICE Detention

His family is doing everything they can to get him released but Texas state reps have done NOTHING.

His family has organized a go fund me to pay for his legal fees which are sky rocketing. Please consider donating, calling reps in Texas. Links ⬇️

RELEASE WILL NOW!!!
www.house.gov/representati...

03.08.2025 22:53 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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From Will's colleague Jacqui:

Today is Day 13 of Tae-Heung β€œWill” Kim being wrongfully detained by ICE. He has been mocked, ridiculed, stolen from, abused and tortured for NO REASON.

He is a legal permanent resident and PhD student studying Lyme Disease. Photo of Jacqui and Will in the lab πŸ‘‡

03.08.2025 22:53 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0

The surges in cases in Canada may be showing us our future

03.08.2025 22:39 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Conspiracy theories follow familiar patterns, repeating the same tropes over and over again, so that when a new event happens, the theorists can interpret that event through the same old corrupted frame… and blaming science for diseases has been an old, worn-out story, since long before Covid.

02.08.2025 19:07 β€” πŸ‘ 201    πŸ” 48    πŸ’¬ 8    πŸ“Œ 0

Highly recommended πŸ‘‡

03.08.2025 17:57 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Good journalism on chronic Lyme pseudoscience

Isabelle Hachey first wrote about Amir Khadir in 2019. He is finally being charged by the Collège des médecins du Québec.

www.cmq.org/en/protect-t...

See Isabelle Hachey's articles in La Presse:
lymescience.org/good-journal...

03.08.2025 17:56 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

DΓ©rives seemed to be incredibly well done, based on imperfect machine transcribing and translating. I was hoping that official transcriptions would be released later, so only looked at the first few episodes.

It's important to recognize the harms of modern quackery.

03.08.2025 17:56 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

HHS Secretary Robert F. Kennedy Jr. is the head of a disinformation campaign against vaccines that is harming and will continue to harm Americans.

Republicans encourage it.

I’m not reposting his latest lies from Twitter, because they are egregious, offensive, and an insult to every scientist.

02.08.2025 18:06 β€” πŸ‘ 226    πŸ” 61    πŸ’¬ 11    πŸ“Œ 0
Termination letter for appointment to the Advisory Committee to the Director, CDC.

Termination letter for appointment to the Advisory Committee to the Director, CDC.

Today I received notice that my appointment to the Advisory Committee to the Director of the CDC--a committee whose existence is mandated by Congress--has been terminated.

31.07.2025 16:11 β€” πŸ‘ 41    πŸ” 25    πŸ’¬ 4    πŸ“Œ 1
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The Vaccine Injury Compensation Program needs to be updated, not eliminated In many ways, despite what RFK Jr. and Rep. Paul Gosar claim, the Vaccine Injury Compensation Program is more friendly to claimants than a regular court.

The Vaccine Injury Compensation Program needs to be updated, not eliminated: it's better for claimants than regular courts, Arthur Caplan and I explain. www.statnews.com/2025/07/31/v... via @statnews.com

31.07.2025 17:02 β€” πŸ‘ 9    πŸ” 7    πŸ’¬ 0    πŸ“Œ 0
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My second email today to Bhattacharya regarding his interview.

1/8

01.08.2025 01:48 β€” πŸ‘ 88    πŸ” 17    πŸ’¬ 6    πŸ“Œ 5

Sigh- the upside down world of quackery: where toxins are healthy and vaccines are toxic

01.08.2025 04:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thanks to the staff at @statnews.com for the free podcast update on post-Vinay Prasad FDA

01.08.2025 03:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Borrelia burgdorferi (Lyme Disease) After completing this article, readers should be able to:Lyme disease is the most common vector-borne disease in the United States. In the United States, the spirochete Borrelia burgdorferi sensu stri...

More info on the LymeScience website, including good journalism, statements by doctors and scientists, stories of victims, a Rogues Gallery.

Slightly out of date AAP article used above:

publications.aap.org/pediatricsin...

Latest science-based standards: academic.oup.com/cid/article/...

31.07.2025 23:49 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Red flags of Chronic Lyme Quackery

Chronic Lyme quackery is distinguishable from conventional medicine due to prominent red flags.

A "Lyme literate" quack is typically involved, and usually they use marketing terms like integrative, functional, naturopathic, and alternative.

lymescience.org/red-flags-of...

31.07.2025 23:41 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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LymeScience on X: "There are 3 stages of #Lyme disease, each with different typical manifestations: 1. Early localized (days to weeks) 2. Early disseminated (weeks to months) 3. Late (months to years) There are some differences between North America & Europe. Image source: https://t.co/zMpj7nBjSm https://t.co/mtSfRIbBwf" / X There are 3 stages of #Lyme disease, each with different typical manifestations: 1. Early localized (days to weeks) 2. Early disseminated (weeks to months) 3. Late (months to years) There are some differences between North America & Europe. Image source: https://t.co/zMpj7nBjSm https://t.co/mtSfRIbBwf

Lyme disease is well-characterized, especially in the North American variant.

Prognosis is excellent, though some symptoms can persist after treatment.

False #Lyme diagnosis is one reason that a treatment may not work.

x.com/LymeScience/...

31.07.2025 23:32 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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How Celebrities Are Changing the Way We See Chronic Lyme Since 2007, Jezebel has been the Internet's most treasured source for everything celebrities, sex, and politics...with teeth.

Writing for Jezebel in 2016, Stassa Edwards published How Celebrities Are Changing the Way We See Chronic Lyme

www.jezebel.com/how-celebrit...

31.07.2025 23:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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What Happens When Lyme Disease Becomes an Identity? The tick-borne disease that’s now a movement.

One of the best articles on the Scientology-like chronic Lyme cult is this piece by Molly Fischer, published in NY Mag:

www.thecut.com/2019/07/what...

31.07.2025 23:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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But often the fraudulent diagnoses are only the beginning of the harms of becoming a victim of chronic Lyme quackery.

Real treatment is delayed, and fraudulent Lyme disease treatments are costly and can be harmful.

There are toxicities and deaths:
www.bloomberg.com/news/feature...

31.07.2025 23:03 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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The chronic Lyme cult started by blaming Lyme for everything but it quickly evolved to blaming ticks for everything and finally just using any sort of quack diagnosis (e.g. fake "toxic mold", "vaccine injury", gluten issues)

That's how Yolanda Hadid received 20+ quack diagnoses.

31.07.2025 23:03 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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What is the dangerous chronic #Lyme movement? It’s a cult, a health scam, and a pseudoscience. There is established research on each of these topics.

The β€œLyme literate” quack is the cult leader, the snake oil profiteer, & the fake expert.

31.07.2025 23:03 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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In the worst cases, celebrities become vocal members of the chronic #Lyme cult and help to recruit new victims.

Not only did Yolanda Hadid spend millions of dollars on quack treatments for 20+ quack diagnoses, but she became a perpetrator of Medical Child Abuse for two of her kids.

31.07.2025 23:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
American Academy of Pediatrics: Misinformation about chronic Lyme disease on the Internet and in popular media has led to publicity and anxiety about Lyme disease that is out of proportion to the actual morbidity that it causes. There is no evidence that chronic Lyme disease exists. [...] On the basis of strong evidence from research, patients treated for Lyme disease who have persistent, nonspecific symptoms (eg, arthralgia and fatigue) do not have persistent infection; the risks of prolonged treatment with antimicrobials far outweigh benefits, if any.

American Academy of Pediatrics: Misinformation about chronic Lyme disease on the Internet and in popular media has led to publicity and anxiety about Lyme disease that is out of proportion to the actual morbidity that it causes. There is no evidence that chronic Lyme disease exists. [...] On the basis of strong evidence from research, patients treated for Lyme disease who have persistent, nonspecific symptoms (eg, arthralgia and fatigue) do not have persistent infection; the risks of prolonged treatment with antimicrobials far outweigh benefits, if any.

Obviously we wish for everyone to have full and fast recoveries from their symptoms, whatever their cause.

But like the American Academy of Pediatrics notes, the media will spread misinformation about #Lyme disease, which became the new "toxins" or "gluten" (a fad scapegoat for real problems).

31.07.2025 23:03 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0
CBS News headline from 2019: Jessica Biel joins vaccines skeptic RFK Jr to oppose bill - but says she's not against vaccinations

CBS News headline from 2019: Jessica Biel joins vaccines skeptic RFK Jr to oppose bill - but says she's not against vaccinations

CNN, ABC, and NY Times headlines about Justin Timberlake's Lyme disease diagnosis, which caused his tour to end

CNN, ABC, and NY Times headlines about Justin Timberlake's Lyme disease diagnosis, which caused his tour to end

In diagnostic testing, the positive predictive value (PPV) is the percent chance that a positive result is a true positive.

The positive predictive value of a celebrity #Lyme disease diagnosis is very low.

And if there's anti-vax sentiment in the family, the PPV goes lower due to crank magnetism.

31.07.2025 23:03 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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Some bad lies from someone leading the health depertment in the US.

Yes, it is a govenment scheme. Does he really think a plantif is better of dealing with a phamaceutical company? Does he imply you can buy the courts?
1/5

31.07.2025 16:49 β€” πŸ‘ 4    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0

Wow- thanks for reviewing that crank film

31.07.2025 00:21 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@lymescience.org is following 20 prominent accounts