Emma Edwards

#parkinsons
#support

At Par Con today in Birmingham, hosted by @parkinsons.org.uk and representing the young onset Parkinson’s charity - SpotlightYOPD! Had lots of interactions with YoPDers already !
#parkinsons

Today is #WorldMentalHealthDay and we want to talk about the importance of having open conversations about mental health in #neurology, for both the people we care for & the teams who care for them. Watch the full video on our website: neurologyacademy.org/articles/wor...

@kernowpdnurse.bsky.social

Ever fancied becoming a Parkinson’s nurse?? It’s an incredibly rewarding job. @parkinsons.org.uk are not only fundraising for more nurses but will support interested nurses in gaining the skills to undertake the role. Look here for more details - prksn.uk/3HUgwke

Congratulations to the @moversand.bsky.social for getting their Gov petition to over 100,000 signatures.

Now let’s see the issues about why Parkinson’s care is so patchy across UK discussed at the highest level.

#parkinsons

Please do consider signing this Government petition that calls for better care for people with Parkinson’s. We need 100,000 signatures for it to be debated in Parliament.

#parkinsons
#neurology

www.facebook.com/share/p/15fx...

Day 4 (last day of @rcn.org.uk Congress): lively debates on financial hardships for nursing and care planning.

It’s been a great #nursing Congress and had great company from Shona, Mark and Jonathan from the Forum.

Think we convinced some nurses that #Neurology was the specialty to be in!!!

Day 3 of the @rcn.org.uk Congress in Liverpool. It’s been an interesting and humbling day listening to nurses who work in Conflict areas, quality improvements, lack of learning disability nurses to name but a few!
Mark from the @rcnneuro.bsky.social had a 2nd opportunity to talk on stage too!

Day 2 of the @rcn.org.uk Congress. Met up with fantastic, hard working staff from @parkinsons.org.uk who were giving out vital information on Parkinson’s to other nursing delegates.

#parkinsons
#rcn2025
@rcnneuro.bsky.social

Proud to be representing the @rcnneuro.bsky.social at the Liverpool RCN Congress, alongside fellow committee members Shona and Mark. Looking forward to be inspired by our fellow nursing professions and meeting up with @parkinsons.org.uk staff at their stand in the Expo area.

#RCN2025
#neurology

Research Discovery: Neurodegeneration in multiple system atrophy (MSA) is caused by toxic protein clumps that penetrate the nuclei of neurons and cause the death of those cells.

Diseases affected: Multiple System Atrophy (MSA)

Key findings: Oligodendrocytes are not the primary cause of MSA, as previously thought.

What's next? By identifying neurons as the primary victims of α-synuclein toxicity, researchers can now develop treatments that protect neurons from invasive protein aggregates or enhance the cells’ ability to clear them out.

A breakthrough in #MultipleSystemAtrophy (MSA) research: Dr. Victor Dieriks and his team in NZ have identified that the cause of this neurodegenerative disorder is toxic α-synuclein protein aggregates that invade neuron nuclei.

buff.ly/YKLxq6O

It was excellent….. and it was great to catch up with some fantastic advocates for Parkinson’s.

Movers and Shakers - the Big Sing A great day out in Westminster and Huddersfield

open.substack.com/pub/rorycell... We thought our @moversand.bsky.social colleague Gillian was bonkers when she suggested we organise a mass singalong of We Will Survive in Westminster – how wrong we were!
#parkinsons

Last week I was very pleased to attend 2 Parkinson’s events that had the theme of bringing people together. One was the launch of a new @parkinsons.org.uk support group at Tavistock. The other was The Movers and Shakers podcasters awareness event in London, with over 500 attending.

#parkinsons

@kernowpdnurse.bsky.social from our Neuroscience Nursing Forum, and in her capacity as PDNS, was very pleased to be part of this @parkinsons.org.uk project about engaging people with Parkinson’s in research.

www.parkinsons.org.uk/professional...

Postgraduate Research Scholarship in Dementia and Aged Care This scholarship supports students undertaking research in the implementation of a dementia model of care.

Postgraduate Research Scholarship in Dementia and Aged Care at the University of Sydney with Professor Yun-Hee Jeon.

For international students, both tuition and stipend will be covered. #FindAPhD @dementiaresearcher.bsky.social

www.sydney.edu.au/scholarships...

Important new report from @denpruexeter.bsky.social highlights hidden inequalities facing those living alone with dementia. Time to rethink dementia care. #Dementia #HealthEquity

www.dementiaresearcher.nihr.ac.uk/living-alone...

GPs are an integral and essential part of any person’s journey with Parkinson’s. SpotlightYOPD have created a poster to help GP’s support their younger patients pre and post diagnosis.

Please do share with GP colleagues/ surgeries.

#parkinsons
#parkinsonsawarenessmonth

Spotlight YOPD: Exciting Opportunity Following the recent announcement… | Spotlight YOPD (Registered Charity UK) Spotlight YOPD: Exciting Opportunity Following the recent announcement by our current Chief Executive, Carl Beech who decided to step aside due to the demands of his non voluntary work, restricting ...

www.linkedin.com/posts/spotli...

YARNS Transitions (Young Adults Rehabilitation experiences and Needs following Stroke) YARNS Transitions (Young Adults Rehabilitation experiences and Needs following Stroke) is a project working to develop a nurse-led, holistic, neurological rehabilitation intervention which supports th...

Young adults with stroke or acquired brain injury. The @rcnneuro.bsky.social are hosting member engagement Teams meeting on this on 17th Apr 12:30-1:30 sharing work of @edinburghuni.bsky.social and @rcnfoundation.bsky.social

find out more here health.ed.ac.uk/research/cur... email me for invite

denpruexeter.nihr.ac.uk/wp-content/u...

What a wonderful day meeting @SpotlightYOPD new friends and old ones. Lovely to see Carl, Nikki and Dawn. The wonderful Ellie and Gaynor and of course Gary and Simon from @ParkinsonsUK - looking forward to the future

Had fab visit from @carolinerassell.bsky.social from
@parkinsons.org.uk in Plymouth this week. Sometimes it’s helpful to precise a situation out loud to a visitor to see where the strengths and challenges are. We rarely get the time to reflect. Lots of planning conversations afterwards!
#parkinsons

I’m always a bit nervous just before a podcast…. Always worried that the dog will bark (she did), or I’ll say something ridiculous (probably did). Anyway, it was fabulous to talk about our charity SpotlightYOPD, and how collaborative working is key.
#collobarativeequation.
#parkinsons

I'm speaking at Restraint: Improving nursing practice with a human rights approach, join me Register now

I am delighted to be speaking RCNi's upcoming event in April. Join us for expert guidance on safe, ethical restraint & practical strategies. Book your place now. invt.io/1txbj2ysdke

Please do give this #RCN #Neuroscience #nurse account a follow! Lots of info on Nursing competencies / Neuro conditions / education will be shared over the yr to inspire (lure) the next generation of nurses over to Neurology! We’ll also be at the RCN Congress.
Join us!!!
@rcn.org.uk

Don't miss out on this! Small group online but 100% participatory, experiential learning.

Highly valued by all with ongoing support through the facilitators network

www.fons.org/programmes-d...

@rn-abi.bsky.social @shnp.bsky.social @greenfieldd.bsky.social @janettekeenan.bsky.social

The @rcnldnursing.bsky.social BlueSky account has gone live today. Steering committee are orientating themselves to it so please give the account a follow