The Bottom Line IBD

Thanks so much, Peggy! Nice to hear from you. Hope all is well in your world.

#19 Rachel reflects on staying in Crohn's remission, four years after stopping infliximab

🎧 Drug withdrawal in #IBD: a patient's perspective.

open.spotify.com/episode/3Tcf...

#crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab

#16 Learning the basics of diet in IBD - with dietitian Dearbhaile O'Hanlon

Let's talk about diet in #IBD!

Our new podcast episode does just that with our special guest, principal gastro dietitian, Dearbhaile O'Hanlon.

Hope you enjoy it!

open.spotify.com/episode/3Uwq...

Bile acid diarrhoea / malabsorption can be a big problem for Crohn's patients who've had their terminal ileum removed.

Professor Julian Walters (@jrfw51.bsky.social) joins our latest #IBD podcast episode to give us concise and up-to-date information on BAD/BAM.

🎧 Listen here: pod.link/1798553243

Really enjoyed recording this #IBD podcast episode on bile acid diarrhoea / malabsorption with Prof Julian Walters and Nigel.

I learnt so much from both the clinical and patient perspective. Thanks to both of them. ⭐

#wrestlingtheoctopusibd

#12 Mental Health and IBD with Clinical Psychologist, Dr Stacey Boardman Wrestling the Octopus (IBD) · Episode

Our #IBD patient podcast, Wrestling the Octopus, has just notched up its 1000th download!

To mark this milestone, we've just published an episode on tackling mental health challenges in Crohn's and UC - with IBD clinical psychologist, Dr Stacey Boardman.

Lots of top tips! ⤵️

tinyurl.com/459d97vn

Thanks so much, Jan! What fabulous encouragement for Nigel and I to receive. Truly appreciated. 😊

We have an episode on diet and #IBD in September. We will keep you posted on a release date. Thanks for the recommendation even so!

I do!

#8 From Birkenhead to Philadelphia - an IBD Patient's Story Wrestling the Octopus (IBD) · Episode

Meet Rob, a UK lawyer now living in the US who developed Crohn’s disease 3 years ago.

Rob joined Nigel and me on our #IBD patient podcast to discuss why he actively pursued early surgery - and just how important family support has been to him in managing his IBD.

open.spotify.com/episode/69OY...

#6 Part 2 - More IBD patients' questions answered by Dr Mark Samaan Wrestling the Octopus (IBD) · Episode

* NEW IBD PATIENT PODCAST EPISODE *

Check out Part 2 (Episode 6) of our #IBD patient podcast with Dr Mark Samaan. ⭐️

Dr Samaan returns to answer another set of our common patient questions on Crohn's and UC - we hope you'll find it an informative and educational listen!

open.spotify.com/epi...

#6 Part 1 - IBD patients' questions answered by Dr Mark Samaan Wrestling the Octopus (IBD) · Episode

Episode 6 of our #IBD patient podcast, "Wrestling the Octopus" gets expert answers to some common questions on Crohn's disease and ulcerative colitis.

Joining us in this special two-parter is consultant gastroenterologist, Dr Mark Samaan from Guy's & St Thomas'. ⭐

open.spotify.com/episode/6Adm...

Wrestling the Octopus (IBD) Two long-term IBD patients, Rachel and Nigel, share their experiences and perspectives on living with inflammatory bowel disease (Crohn's disease and ulcerative colitis).

Coming soon... a consultant gastroenterologist answers some common questions on inflammatory bowel disease for our #IBD patient podcast, Wrestling the Octopus.

While that's cooking, check out our other episodes here: wrestlingtheoctopusibd.buzzsprout.com

#crohnsdisease #ulcerativecolitis

#4 World IBD Day special - Shooting the breeze on IBD Wrestling the Octopus (IBD) · Episode

* NEW IBD PODCAST EPISODE *

It's #WorldIBDDay - which surely calls for us to shoot the breeze on various #IBD topics!

Nigel & I chat ideas for beating fatigue, the cost of Crohn's, crazy things steroids made us do 🙃 and why neither of us are keen on wearables.

open.spotify.com/episode/3nV3...

Ebb Tide rose - purple

The highlight of May for me each year is the blooming of my favourite rose, Ebb Tide.

Though purple is usually my least chosen colour in flowers, this one is a gorgeous smoky shade of it. And the smell is just sublime... 😍

#2 How Do You Like Your IBD Medication Served... Oral, IV or Injection? Wrestling the Octopus (IBD) · Episode

Episode 2 of our #IBD patient podcast, Wrestling the Octopus is live!

What factors should IBD healthcare professionals take into account when helping patients choose how they take their drugs: orally, IV or injections?

Listen here: open.spotify.com/epi...

#crohns #crohndisease #ulcerativecolitis

The Dilemmas of Disclosing Crohn’s Disease at Work and the Factors Impacting the Decision Background/Objectives: Individuals with Crohn’s disease often experience challenges at work and are confronted with the decision of whether to disclose their health status in their workplace. This stu...

The Dilemmas of Disclosing Crohn’s Disease at Work and the Factors Impacting the Decision.

#ibd #crohns #crohnsdisease

www.mdpi.com/2624-5647/7/...

We don't have all the answers when it comes to cracking the mysteries of #IBD, but we should never forget the privilege of modern medicine.

I'm keeping this front of mind today on #InternationalWomensDay in remembering our bygone IBD sisters who had fewer treatment options than us. To their memory.

I - like many others - cannot believe what we are seeing and hearing at the moment. Sending you love and heartfelt support.

Thanks so much for your kind support, Peggy. @crohnoid.bsky.social and I are gearing up for the next subjects! I hope all is well with you.

Thanks so much, Richard - really appreciate your support. Hope all is well in your world.

Hope you had a good time. What were your favourite bits of Berlin (outside conference)?

No, thank YOU!!

All these exotic names you're giving me, I've never heard of any of them! 😁 Anyway, here's the RSS feed for you... feeds.buzzsprout.com/2453562.rss

No, I was just too lazy to list the rest! What app are you on?

My compatriot and fellow Crohn’s patient suggested we should make a podcast about IBD, so we did. First episode is now up on Spotify - open.spotify.com/show/0GgADPx...

We had fun making it and I’ve learnt a lot about editing. There may be a few rough edges for this first one!

#1 To start or stop IBD medication? We debate this hot topic! Wrestling the Octopus (IBD) · Episode

Welcome to mine and @Crohnoid's new 8-episode #IBD patient podcast, "Wrestling the Octopus" (title pinched from Nigel's book of the same name!).

In this episode, we're debating the hot topic of starting and stopping IBD medication.

We hope you enjoy it! 🎧 🥂

open.spotify.com/episode/06rH...

It's hard to imagine being at peak performance, I agree.

Jarl Magnus Riiber to retire aged 27 after Crohn's disease diagnosis Jarl Magnus Riiber, the most successful Nordic combined athlete of all time, will retire at the end of the season aged 27 after being diagnosed with Crohn's disease.

Seems like there's a disproportionately high number of sports people who end up with #IBD.

Possibly my imagination, but it certainly feels that way...

www.bbc.com/sport/articl...

Offering #IBD patients a place of psychological safety in clinic is one of the most critical things their doctor can do. Preferably early on.

Everything else that might benefit a patient - from tests to treatments to behavioural changes - should queue up behind this pivotal thing, in my view.

Deconditioning in quiescent Crohn’s Disease patients with heightened fatigue perception AbstractBackground & Objective. IBD fatigue aetiology is poorly understood. This study quantified body composition and physical function alongside prot

new article from Nottingham BRC and @spmic-uon.bsky.social "Deconditioning in quiescent Crohn’s Disease patients with heightened fatigue perception" In JCC! academic.oup.com/ecco-jcc/adv...