"Pernio-like lesions ( #COVID19 toes) and associated #limb #ischemia are also diagnosed in COVID-19." #amputation
15.09.2025 00:48 β π 0 π 0 π¬ 0 π 0@topazstudioscom.bsky.social
Retired πͺ· Grandmother β’ 3 chronic illnesses since early 2020 π₯ #longCOVID #ESKD #IgGdeficiency π Volunteer at @renegaderes π₯© animal-based keto βΏοΈ amputee
"Pernio-like lesions ( #COVID19 toes) and associated #limb #ischemia are also diagnosed in COVID-19." #amputation
15.09.2025 00:48 β π 0 π 0 π¬ 0 π 0"COVID-19 Associated Nephropathy has been proposed to describe renal involvement in #COVID19 which according to American Society of Nephrology ranges btwn 15% to 40%. Acute #kidney injury, proteinuria & progression of chronic renal disease reported as manife..."
pmc.ncbi.nlm.nih.gov/articles/PMC...
My lecture, "What to Know About Long Covid" has been posted by the University of Pittsburgh's Supercourse on YouTube! Just the basics!
What to know about Long Covid youtu.be/DHTns4qMQj8?... via @YouTube
Covid-19 early 2020 followed by #longCovid, End-Stage Kidney Disease, IgGdeficiency, 75+ symptoms... and as of last month an #amputee due to blood vessel damage. βΏοΈ
Please show your support for research by donating any amount to @RenegadeResearch.bsky.social at www.renegade-research.org/donate π
1. Have you seen our
New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social
Links in
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So sorry to hear π«π’ It is possible to stop kidney disease at any stage. Perhaps we should compare notes in the future. Tied up this month with my chronically ill son and other.
03.07.2025 15:24 β π 0 π 0 π¬ 0 π 0Donβt miss our next clinicianβs roundtable where our medical director, John Haughton, MD, and Joshua Leisk from the Born Free protocol will discuss biochemical dysfunction and clinical approaches in MECFS and Long Covid.
Registration link: us06web.zoom.us/webinar/regi...
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οΈ Accelerate Research + Care! π¬ #MECFS #longCOVID
Our work impacts the lives of many! Patients + caregivers are listened to and empowered. (campaign link below)
We have many exciting projects underway! Any amount of donation helps, no matter how small. Thanks, we appreciate you! π
π www.zeffy
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Here's one stat to sit with today.
"Prevalence studies have found that 65β70 percent of youth in the justice system meet the criteria for a disability, a rate that is more than three times higher than that of the general population."
www.ndrn.org/wp-content/u...
I was delighted to log on this morning to see that you have reached your GFM goal! Best wishes with your next steps! π«π
24.06.2025 09:01 β π 1 π 0 π¬ 0 π 0Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system. Many people with #EDS or #HSD also have a type of #dysautonomia. There are different types of dysautonomia with different symptoms.
www.ehlers-danlos.com/dysautonomia/
Next time you shop on #Amazon, use our affiliate link below to help support Renegade Research βat no additional cost to youβ by shopping as you usually do. Our non-profit organization will receive a small percentage from Amazon. This helps our NPO operate. π Thank you!
π amzn.to/3DKgOaX
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οΈ Weekends are a great time to catch up on #Clinician and #Research Roundtables!
π Check out the past recordings on our Renegade Research YouTube channel at www.youtube.com/@renegaderes... ... #RenegadeResearch
Trial By Error: Edinburgh Study Links ME/CFS to βBlood-Based Biomarkersβ 2 Comments / By David Tuller / 21 June 2025 By David Tuller, DrPH Last fall, a team from the University of Edinburgh released a pre-print called βReplicated blood-based biomarkers for myalgic encephalomyelitis not explicable by inactivity.β At the time, I posted an interview with the lead investigator, Chris Ponting, a professor of genetics at the university. The peer-reviewed version of the study has just been published by the journal EMBO Molecular Medicine. According to a press release from the University of Edinburgh, βThe largest ever biological study of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) has identified consistent blood differences associated with chronic inflammation, insulin resistance, and liver disease.β The work involved collaboration between the universityβs Institute of Genetics and Cancer and the Schools of Mathematics and Informatics.
Edinburgh Study Links ME/CFS to βBlood-Based Biomarkersβ By David Tuller @davetuller1.bsky.social
virology.ws/2025/06/21/t...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
This is exciting!
22.06.2025 14:47 β π 0 π 0 π¬ 0 π 0There's definitely something strange going on here. My kidneys were healthy before SARS-CoV-2 infection.
22.06.2025 14:47 β π 1 π 0 π¬ 1 π 0If 4.9 million kids with asthma is a national health priority, what does it mean when 5.8 million have Long Covid?
Why is the #1 chronic condition in children being ignored?
Good to know, thanks @thosvarley.bsky.social
22.06.2025 12:50 β π 0 π 0 π¬ 0 π 0Too Much Exertion Produces Autonomic Nervous System Hit in #LongCOVID, #MECFS, and #Fibromyalgia
www.healthrising.org/blog/2025/04...
'Largest study to date assesses long-term impact of COVID-19 on kidneys'
'A new study of more than 13 million people in England has found no evidence to suggest mild COVID-19 infection may cause long-term kidney damage.'
medicalxpress.com/news/2025-06...
Very happy to announce the first of what will hopefully be many papers with @renegaderesearch.bsky.social.
The idea that post-acute infectious syndromes are related to dysfunction in the brainstem and cervical spine has been discussed by patients for years...
www.preprints.org/manuscript/2...
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Watching people Iβve known for years recover from Long COVID feels like the start of a quiet renaissance.
They return with a deep clarity about what truly matters, something words can barely capture.
Those who know, know.
What do Shania Twain,Β Avril Lavigne, Yolanda Hadid, Ashley Olsen,Β Kelly Osbourne, Bella Hadid, and Daryl Hall have in common? Lost voices and more linked to #Lyme diseaseΒ at some point in their lives.
globalnews.ca/news/3424165...
"First they got #longCovid. Then it made them homeless."
Subjected to major #discrimination due to my 3 #chronicillnesses this month. Was told where I live is WORST protection for renters than anywhere in Canada. π’
This #stigma + senseless #homelessness must stop!
thesicktimes.org/2025/06/17/l...
π£ People with Long COVID face an increased risk of housing insecurity. Research shows this trend, which people with the disease have warned for years. Freelance reporter @jloeppky.com reports for @thesicktimes.bsky.social.
thesicktimes.org/2025/06/17/l...
We are pushing so many people into housing insecurity. Imagine being very sick AND homeless. This is the reality of millions with #LongCovid.
Thank you the @thesicktimes.bsky.social for keep talking about it.
Mechanisms of Neuroinflammation in PCS
My interpretation of the potential mechanisms involved in post-COVID-19 neuroinflammation #LongCovid #NeuroCovid (2/3)
18.06.2025 17:00 β π 47 π 13 π¬ 1 π 0Sharing a link to our @RemissionBiome protocol info page for anyone who is new here or is not familiar with the project. π https://www.remissionbiome.org/about/protocol-overview #RenegadeResearch #Renegade50
@RemissionBiome is a project by Renegade Research - white logo on black background
Sharing a link to our @RemissionBiome protocol info page for anyone who is new here, or is not familiar with the project.
π www.remissionbiome.org/about/protoc... #RenegadeResearch #Renegade50
Around 1 in 10 in the country are suffering long covid, an estimated 409 million sufferers globally and yet we have this constant narrative being thrown at us that Covid is over. Itβs the height of stupidity at this point.
18.06.2025 14:38 β π 219 π 55 π¬ 3 π 3