KimK ... one day at a time πŸ‡¨πŸ‡¦'s Avatar

KimK ... one day at a time πŸ‡¨πŸ‡¦

@topazstudioscom.bsky.social

Retired πŸͺ· Grandmother β€’ 3 chronic illnesses since early 2020 πŸ₯„ #longCOVID #ESKD #IgGdeficiency πŸ’™ Volunteer at @renegaderes πŸ₯© animal-based keto ♿️ amputee

1,132 Followers  |  3,424 Following  |  1,167 Posts  |  Joined: 08.01.2024  |  2.5531

Latest posts by topazstudioscom.bsky.social on Bluesky

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"Pernio-like lesions ( #COVID19 toes) and associated #limb #ischemia are also diagnosed in COVID-19." #amputation

15.09.2025 00:48 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Vascular Alterations Following COVID-19 Infection: A Comprehensive Literature Review SARS-CoV-2, the causative agent of the ongoing COVID-19 pandemic, has revealed a broader impact beyond the respiratory system, predominantly affecting the vascular system with various adverse manifest...

"COVID-19 Associated Nephropathy has been proposed to describe renal involvement in #COVID19 which according to American Society of Nephrology ranges btwn 15% to 40%. Acute #kidney injury, proteinuria & progression of chronic renal disease reported as manife..."

pmc.ncbi.nlm.nih.gov/articles/PMC...

15.09.2025 00:34 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
What to know about Long Covid
YouTube video by Evgeniy Shubnikov What to know about Long Covid

My lecture, "What to Know About Long Covid" has been posted by the University of Pittsburgh's Supercourse on YouTube! Just the basics!

What to know about Long Covid youtu.be/DHTns4qMQj8?... via @YouTube

16.01.2025 21:03 β€” πŸ‘ 141    πŸ” 48    πŸ’¬ 15    πŸ“Œ 0
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Covid-19 early 2020 followed by #longCovid, End-Stage Kidney Disease, IgGdeficiency, 75+ symptoms... and as of last month an #amputee due to blood vessel damage. ♿️

Please show your support for research by donating any amount to @RenegadeResearch.bsky.social at www.renegade-research.org/donate πŸ’™

14.09.2025 04:10 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

1. Have you seen our
New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social

Links in
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22.08.2025 11:20 β€” πŸ‘ 5    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0

So sorry to hear πŸ«‚πŸ˜’ It is possible to stop kidney disease at any stage. Perhaps we should compare notes in the future. Tied up this month with my chronically ill son and other.

03.07.2025 15:24 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Welcome! You are invited to join a webinar: Biochemical Pathways & Clinical Applications for ME/CFS with Joshua Leisk & John Haughton, MD. After registering, you will receive a confirmation email abou... A Renegade Research Clinical Roundtable with Joshua Leisk Theoretical Biochemist, Independent Sydney, Australia Known for The Born Free Protocol https://bornfree.life/2024/ John Haughton, MD, is the...

Don’t miss our next clinician’s roundtable where our medical director, John Haughton, MD, and Joshua Leisk from the Born Free protocol will discuss biochemical dysfunction and clinical approaches in MECFS and Long Covid.

Registration link: us06web.zoom.us/webinar/regi...

02.07.2025 11:40 β€” πŸ‘ 8    πŸ” 4    πŸ’¬ 0    πŸ“Œ 1
Renegade Research logo white on black background

Renegade Research logo white on black background

βœ…οΈ Accelerate Research + Care! πŸ”¬ #MECFS #longCOVID

Our work impacts the lives of many! Patients + caregivers are listened to and empowered. (campaign link below)

24.06.2025 10:06 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0

We have many exciting projects underway! Any amount of donation helps, no matter how small. Thanks, we appreciate you! πŸ™

πŸ”— www.zeffy
.com/en-US/fundraising/9888892c-f8dc-4dca-b1c2-3603f6f3c755

24.06.2025 10:06 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Here's one stat to sit with today.

"Prevalence studies have found that 65–70 percent of youth in the justice system meet the criteria for a disability, a rate that is more than three times higher than that of the general population."

www.ndrn.org/wp-content/u...

23.06.2025 14:41 β€” πŸ‘ 144    πŸ” 49    πŸ’¬ 1    πŸ“Œ 6

I was delighted to log on this morning to see that you have reached your GFM goal! Best wishes with your next steps! πŸ«‚πŸ’™

24.06.2025 09:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Dysautonomia - The Ehlers Danlos Society

Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system. Many people with #EDS or #HSD also have a type of #dysautonomia. There are different types of dysautonomia with different symptoms.

www.ehlers-danlos.com/dysautonomia/

24.06.2025 08:59 β€” πŸ‘ 8    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Today's Deals

Next time you shop on #Amazon, use our affiliate link below to help support Renegade Research β€œat no additional cost to you” by shopping as you usually do. Our non-profit organization will receive a small percentage from Amazon. This helps our NPO operate. πŸ’™ Thank you!

πŸ”— amzn.to/3DKgOaX

22.06.2025 14:45 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Renegade Research logo - white on black background

Renegade Research logo - white on black background

βœ…οΈ Weekends are a great time to catch up on #Clinician and #Research Roundtables!

πŸ”— Check out the past recordings on our Renegade Research YouTube channel at www.youtube.com/@renegaderes... ... #RenegadeResearch

14.06.2025 11:31 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Trial By Error: Edinburgh Study Links ME/CFS to β€œBlood-Based Biomarkers”
2 Comments / By David Tuller / 21 June 2025
By David Tuller, DrPH

Last fall, a team from the University of Edinburgh released a pre-print called β€œReplicated blood-based biomarkers for myalgic encephalomyelitis not explicable by inactivity.” At the time, I posted an interview with the lead investigator, Chris Ponting, a professor of genetics at the university.

The peer-reviewed version of the study has just been published by the journal EMBO Molecular Medicine. According to a press release from the University of Edinburgh, β€œThe largest ever biological study of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) has identified consistent blood differences associated with chronic inflammation, insulin resistance, and liver disease.” The work involved collaboration between the university’s Institute of Genetics and Cancer and the Schools of Mathematics and Informatics.

Trial By Error: Edinburgh Study Links ME/CFS to β€œBlood-Based Biomarkers” 2 Comments / By David Tuller / 21 June 2025 By David Tuller, DrPH Last fall, a team from the University of Edinburgh released a pre-print called β€œReplicated blood-based biomarkers for myalgic encephalomyelitis not explicable by inactivity.” At the time, I posted an interview with the lead investigator, Chris Ponting, a professor of genetics at the university. The peer-reviewed version of the study has just been published by the journal EMBO Molecular Medicine. According to a press release from the University of Edinburgh, β€œThe largest ever biological study of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) has identified consistent blood differences associated with chronic inflammation, insulin resistance, and liver disease.” The work involved collaboration between the university’s Institute of Genetics and Cancer and the Schools of Mathematics and Informatics.

Edinburgh Study Links ME/CFS to β€œBlood-Based Biomarkers” By David Tuller @davetuller1.bsky.social

virology.ws/2025/06/21/t...

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

22.06.2025 13:37 β€” πŸ‘ 26    πŸ” 7    πŸ’¬ 0    πŸ“Œ 0

This is exciting!

22.06.2025 14:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

There's definitely something strange going on here. My kidneys were healthy before SARS-CoV-2 infection.

22.06.2025 14:47 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

If 4.9 million kids with asthma is a national health priority, what does it mean when 5.8 million have Long Covid?

Why is the #1 chronic condition in children being ignored?

21.06.2025 18:35 β€” πŸ‘ 2195    πŸ” 632    πŸ’¬ 82    πŸ“Œ 26

Good to know, thanks @thosvarley.bsky.social

22.06.2025 12:50 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Too Much Exertion Produces Autonomic Nervous System Hit in Long COVID, ME/CFS, and Fibromyalgia - Health Rising Geoff’s Narrations The GIST The Blog Β  A trip to Seattle to see Dr. Ruhoy held up the blogs a bit but they’re back! Exercise physiologist Rob Wust’s β€œWearable heart rate variability monitoring identif...

Too Much Exertion Produces Autonomic Nervous System Hit in #LongCOVID, #MECFS, and #Fibromyalgia

www.healthrising.org/blog/2025/04...

22.06.2025 12:42 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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Largest study to date assesses long-term impact of COVID-19 on kidneys A new study of more than 13 million people in England has found no evidence to suggest mild COVID-19 infection may cause long-term kidney damage. However, patients hospitalized with severe COVID-19 in...

'Largest study to date assesses long-term impact of COVID-19 on kidneys'

'A new study of more than 13 million people in England has found no evidence to suggest mild COVID-19 infection may cause long-term kidney damage.'

medicalxpress.com/news/2025-06...

20.06.2025 22:12 β€” πŸ‘ 26    πŸ” 6    πŸ’¬ 2    πŸ“Œ 0
A Mechanical Basis: Brainstem Dysfunction as a Potential Etiology of ME/CFS and Long COVID The underlying pathologies driving post-acute infectious syndromes (e.g. myalgic encephalomyelitis / chronic fatigue syndrome, long COVID, etc) remain poorly understood. Given the extreme burden these illnesses impose on suffers, and the dramatic increase in cases following the COVID-19 pandemic, it is important to establish a deeper understanding of these pathologies. We propose a model of how ME/CFS (and related illnesses), might emerge following a viral insult. Central to this hypothesis is the recognition that the core diagnostic features of ME/CFS involve bodily systems known to be governed by the brainstem. This is consistent with the growing literature suggesting that spinal and craniocervical pathologies are over-represented in people with ME/CFS and other post-infectious disorders. We hypothesize that a non-trivial number of cases of ME/CFS and Long Covid (LC) may have a ``mechanical basis." We propose that an infectious insult may trigger an initial loss of connective tissue integrity in susceptible individuals (e.g. those with pre-existing hypermobility spectrum disorders), which in turn leads to instability at the craniocervical junction, and ultimately mechanical deformation of the brainstem. This ultimately causes widespread autonomic nervous system and immune system dysfunction due to aberrant signaling from the deformed nuclei. This causal chain may also lead to a vicious cycle: if the dysregulation produced by the initial brainstem deformation leads to a deranged immune response or state of chronic hyper-inflammation, further expression of connective tissue degrading and remodeling factors such as MMPs and mast cells may be triggered. This could further degrade the connective tissues of the craniocervical junction and, in turn, increase mechanical deformation of the brainstem, leading to symptom exacerbation over time and leading to the chronic, lifelong presentation typical of ME/CFS.

Very happy to announce the first of what will hopefully be many papers with @renegaderesearch.bsky.social.

The idea that post-acute infectious syndromes are related to dysfunction in the brainstem and cervical spine has been discussed by patients for years...

www.preprints.org/manuscript/2...

1/N

19.06.2025 13:40 β€” πŸ‘ 12    πŸ” 6    πŸ’¬ 3    πŸ“Œ 0

Watching people I’ve known for years recover from Long COVID feels like the start of a quiet renaissance.

They return with a deep clarity about what truly matters, something words can barely capture.

Those who know, know.

21.06.2025 19:33 β€” πŸ‘ 68    πŸ” 9    πŸ’¬ 2    πŸ“Œ 0
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Shania Twain says Lyme disease caused her to lose her voice - National | Globalnews.ca Back in 2011, Shania Twain opened up about her struggle with dysphonia, and now says that the condition was brought on by Lyme disease.

What do Shania Twain,Β Avril Lavigne, Yolanda Hadid, Ashley Olsen,Β Kelly Osbourne, Bella Hadid, and Daryl Hall have in common? Lost voices and more linked to #Lyme diseaseΒ at some point in their lives.

globalnews.ca/news/3424165...

22.06.2025 06:49 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Long COVID is increasing housing insecurity, but support programs fail to help - The Sick Times A growing body of research shows that Long COVID, combined with a lack of government support, leads to financial insecurity and housing instability.

"First they got #longCovid. Then it made them homeless."

Subjected to major #discrimination due to my 3 #chronicillnesses this month. Was told where I live is WORST protection for renters than anywhere in Canada. 😒

This #stigma + senseless #homelessness must stop!

thesicktimes.org/2025/06/17/l...

19.06.2025 11:54 β€” πŸ‘ 7    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Long COVID is increasing housing insecurity, but support programs fail to help - The Sick Times A growing body of research shows that Long COVID, combined with a lack of government support, leads to financial insecurity and housing instability.

πŸ“£ People with Long COVID face an increased risk of housing insecurity. Research shows this trend, which people with the disease have warned for years. Freelance reporter @jloeppky.com reports for @thesicktimes.bsky.social.

thesicktimes.org/2025/06/17/l...

17.06.2025 16:03 β€” πŸ‘ 151    πŸ” 54    πŸ’¬ 4    πŸ“Œ 5

We are pushing so many people into housing insecurity. Imagine being very sick AND homeless. This is the reality of millions with #LongCovid.
Thank you the @thesicktimes.bsky.social for keep talking about it.

17.06.2025 17:59 β€” πŸ‘ 160    πŸ” 84    πŸ’¬ 4    πŸ“Œ 3
Mechanisms of Neuroinflammation in PCS

Mechanisms of Neuroinflammation in PCS

My interpretation of the potential mechanisms involved in post-COVID-19 neuroinflammation #LongCovid #NeuroCovid (2/3)

18.06.2025 17:00 β€” πŸ‘ 47    πŸ” 13    πŸ’¬ 1    πŸ“Œ 0
Sharing a link to our @RemissionBiome protocol info page for anyone who is new here or is not familiar with the project. 

πŸ”—  https://www.remissionbiome.org/about/protocol-overview #RenegadeResearch #Renegade50

Sharing a link to our @RemissionBiome protocol info page for anyone who is new here or is not familiar with the project. πŸ”— https://www.remissionbiome.org/about/protocol-overview #RenegadeResearch #Renegade50

@RemissionBiome is a project by Renegade Research - white logo on black background

@RemissionBiome is a project by Renegade Research - white logo on black background

Sharing a link to our @RemissionBiome protocol info page for anyone who is new here, or is not familiar with the project.

πŸ”— www.remissionbiome.org/about/protoc... #RenegadeResearch #Renegade50

19.06.2025 05:48 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Around 1 in 10 in the country are suffering long covid, an estimated 409 million sufferers globally and yet we have this constant narrative being thrown at us that Covid is over. It’s the height of stupidity at this point.

18.06.2025 14:38 β€” πŸ‘ 219    πŸ” 55    πŸ’¬ 3    πŸ“Œ 3

@topazstudioscom is following 19 prominent accounts